#epilepsylife

[epilepsy-and-me]

[chronically-illest-chronicles]

Genetic Epilepsy Bumper Sticker Idea

"Shake what yo mama gave ya!"

[misssarahlouise]

Thank you @neuropace !

[k-emikatt]

anyone here take keppra and can provide any advice? i’ve just been told i’ll be put on it shortly but most reviews are telling me the side effects are pretty dreadful. this is my first time taking any meds for epilepsy following abnormalities on my EEG so i’m a little nervous ... :) ty

[lameweeb76]

Incredibles 2: Epilepsy Warning

Hey, so I know there’s a lot going on in the world right now (especially in America) but if you have elilepsy and want to see Incredibles 2 to forget about it all DON’T!

There are intense flashing lights in the film that may cause a seizure. They also last a very long time. So please be advised if you want to see it.

[purple-and-blue]

Why can’t I just live?

So I went shopping today for some new school outfits and stuff and got my eyebrows threaded for the first time (I’ve never gotten my eyebrows done at all) and I was finally feeling like I was ready to go back and feeling good and stuff. So I get home, I had gotten new purse, (I guess? It’s kind of large I just call it a bag), from TJ Maxx so I was in my room, had just put away all my new clothes and was now moving all my purse stuff from my old larger, cheaper, purse into my new purse. And I’m moving all my lip balms and stuff, and I see my carmex and I’m thinking my lips are kinda dry right now why don’t I put some on? I go to uncap it, and, boom, seizure outta nowhere. I don’t have auras so I was living the good life up until I find myself kind of in a dream state where I think I’m drowning and can’t breathe when I’m actually fine. And I’m struggling to breathe even though I can, (because I’m not drowning), so I’m breathing super heavily and every time I breathe out my abs contract and I can hear myself let out this operatic scream. All the while my family is right there telling me I’m fine and I finally figure out I’m having a seizure but I’m still confused so I’m still like saying I’m gonna die. Eventually I’m able to see but it’s weird because it doesn’t feel like my eyes are open but my dad says they are. And when I say things it also doesn’t really feel like I’m talking normally. Eventually I start to come out of this and one of my brothers said something and I in my hazy state made a joke I make when I’m fully conscious and they all laughed and when I smiled I noticed the corner of my lips hurt. Eventually, they moved me from the floor of the hallway to the living room couch. I started to discover my injuries, (I’m sure most Epileptics are familiar with this). A scrape on my knee, my bitten lip, a bruise on my thigh, another bruise on my foot, and the recently discovered scrape on my back. Not to mention the headache and nausea I had after. After taking ibuprofen, and the passing of time, I felt better. But I’m not sure I’ll ever feel all the way better. Because with every seizure I’m reminded of what I have to deal with. It’s not just seizures. In fact, that’s almost not even the worst part, for me at least. With every seizure, I’m reminded that I’m not allowed to be alone for more than 10-15 minutes, 30, with negotiation, (to clarify, I mean like alone in the house). Maybe I would be allowed to be alone if I had a seizure dog, but I don’t have seizures often enough. With every seizure, I’m reminded of how epilepsy has interfered so much with school, whether it’s been actually having seizures at school, having to be out of school for an EEG, or my super slow cognitive functioning caused by my epilepsy. With every seizure, I’m reminded of those embarrassing times absence seizures interfered with a performance, (which is probably why I’m afraid to perform now), or even just in conversation and sometimes I didn’t know it. With every seizure, I’m reminded of the fact that I have epilepsy, but not many people know about this struggle so, so many people have to face in many different ways, and therefore there’s less of a cumulative fight to help people like me. I only found out what epilepsy was when I was diagnosed with it.

I WAS having a good day. But then I was reminded.

[numbepilepticlife]

Dear Epilepsy,

Sometimes it’s too dangerous for me to walk, but I don’t want to get a wheelchair. I feel like I’m somehow faking if I get one, even though it would keep me significantly safer than just walking.

My family can’t always catch me when I fall, and it’s not their fault. It shouldn’t be their job to do so anyway.

I know it’s something I need to think about, but I still feel like I’m ‘faking’ because I can walk.

Sincerely,

I’m too young and anxious to think about this shit.

[epilepsy-and-me]