#hyperflexibility

[uccelletto-di-kokuyo]

The hardest part of keeping up with my physical therapy stretches for my shoulder is, without a doubt, remembering to keep my shoulder relaxed. That thing wants to tighten up because of the strain/pressure of maintaining a slow stretch. But it needs to stay relaxed.

At least the stretches do help. My shoulder has been really bad so it's going to take a lot of consistency and time to fix it but it will get there. At least it isn't causing blinding pain anymore. It's more back to the "very annoying shoulder tic" now that causes a lot of discomfort.

[connieaaa]

I was helping my friend's 8 year old with writing- both mom and I suspect hEDS- she was getting frustrated because it's hard to hold a pencil because her thumb keeps folding backwards. We try a few adaptive pencil holds but they all feel too weird for her and she switches to knitting, but after several minutes her hands are tired and cramping.

Me: Your hands are getting tired because the muscles have to work harder.

Less than 10 minutes later I am drawing and getting frustrated because my hand is tired and cramping.

Me: Ugh, why does my hand hurt and tire out so quickly.

*headdesk*

Me: oh yeah, I forgot that I have a muscular disorder and my hand also "works harder"

[lizardposting]

Who wants to hear my fascinating scientific explanation about how fox’s disability actually benefits them when using odm gear/fighting in the air but negatively impacts them on the ground

[shadowsfascination]

Bend like water. Don't crack like ice

[themechanicsnightmare]

This is a callout post for my joints

Stop hurting and function properly you fucks

[jennibeultimate]

Noemi Peschel in training 2019

“Success isn't always about greatness. It's about consistency. Consistent hard work leads to success. Greatness will come.”

[forever5hines]

when you sneeze and your shoulder dislocates 🙄 #hyperflexibility

[nefertsukia]

Chronic pain, chronic illness, autoimmune disease. Just great.

Waiting for my genetic consult to check my cancer risk, too. Not looking forward to that but I'd rather know.

Doctor asked me how I broke my ankle. No, it wasn't a big fall. I told everyone it was out of embarrassment, but truthfully it was a small thing and instead of spraining my ankle like a normal person, mine broke.

Why me?