It’s Ehlers-Danlos awareness month and I am very aware right now
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It’s Ehlers-Danlos awareness month and I am very aware right now
— BLINKIE SET #4 . . . PRONE
Do you ever just. Go on walks even though it's a little difficult? I'm very hypermobile currently recovering from two injuries but it looked nice outside so I just went on a little stroll anyway. I'll probably be sore later but it was worth it to not be cooped up inside all day, you know?
And it's not one of those "don't let disability hold you back" things, I think it's more of a "this hurts but I'm doing it out of spite because I want to" situation lol
Anyways I saw the ducks at the pond and I saw some very cute grandparents with their kids so I do not regret my decision :)
having chronic pain is like sometimes i’m dissociating from every feeling in my body because i have to ignore my limbs to cope and sometimes im so hyperaware that i can tell the exact amount of degrees my shoulder is hyperextended
I fucking hate my body sometimes. ESPECIALLY my joints. Like what do you mean I have to wake up multiple times a night to have to put my clavicle and shoulders AND hips back where they’re supposed to be???? Why am I a shitty off brand Lego thing that won’t stay together?????? I hate it so much. I just want to not hurt and for my body to work right but apparently that’s just too much to ask :(
I kinda want to play fight/wrestle with someone, but I know my hip will probably pop out once or twice.
But like, I’m still down…
sometimes my internalized ableism beats my ass but then I remember that I literally got a permanent spinal injury and a shoulder subluxation from sleeping wrong
“Your MRI looks normal”
For many women with EDS and hypermobility, this sentence is both confusing and invalidating.
Because the pain is real. The instability is real. The functional limitations are real.
So why does imaging often look normal?
Most imaging — X-rays, MRIs, CT scans — is designed to detect:
• Arthritis • Fractures • Large tears • Structural damage
But hypermobility pain usually isn’t caused by these issues.
The real driver is often ligament laxity.
Loose ligaments allow joints to move excessively. This creates micro-instability, muscle guarding, nerve irritation, and fatigue.
These subtle functional problems rarely show up on static imaging
Many providers rely heavily on imaging and spend less time on detailed physical exams. When imaging is normal, symptoms may be dismissed.
But instability is a clinical diagnosis — one made through history, movement assessment, and hands-on examination.
A normal MRI doesn’t mean nothing is wrong. It often means the problem is dynamic, not structural.
If you’ve ever felt unseen because your scans looked “fine,” this post is for you.