#interstitial cystitis

[chronicallydragons]

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

[desultory-suggestions]

Sending love to everyone who has health issues or chronic pain in parts of your body that aren’t usually socially acceptable to talk about. It’s frustrating to feel like you can never explain your pain to someone because it’s TMI and to feel like you have to hide it. Your pain is nothing to be ashamed of. I see you, and I’m sending you support and strength.

[lifethroughfingertips]

Being disabled means our average day could be someone else’s breaking point

[thatboneyfella]

if you have a chronic illness or disability i need you to hear this- this will be long.

you're allowed to feel sad/depressed/down, you're allowed to grieve your life and/or yourself, you're allowed to want it to be over.

you're allowed to have happy moments, you're allowed to enjoy your life and/or aspects of it, you're allowed to smile and just because you feel happy doesn't mean your pain is less.

good days are good and bad days are bad, and it's okay if you have no good days, and it's okay if you have mostly good days. it's okay if you're not diagnosed, it's okay if you are, and it's okay if you have lots of diagnoses. any of this doesn't make you any less valid.

no one gets to tell you that what you're feeling is not what you are feeling, just because you portray a picture of yourself to be something differently.

fuck being 'strong' and 'brave', you're surviving and every minute that you do is a minute of your life that's yours and only yours to choose how you live, don't let other's opinions on how they think a chronically ill/disabled person should live govern or influence your life. it's yours.

love you all, my dears

[borderlineandconfusedsworld]

when my health started to go downhill, a lot of people stopped hanging around me & talking to me as much because i became “boring” & “sad”.

i never had the energy to beg for them to stay in my life because all my energy was focused on trying to get better & fighting for answers.

now, it’s 3 years later & they still don’t talk to me, they still don’t hangout with me.

i’m so alone that it’s starting to feel all consuming.

i finally got somewhat better, but i don’t feel like it because the loneliness drags me down.

i hate this feeling. i hate having no one to talk to, so i’m gonna start “talking” on here.

[zeitgeistpolls]

😳 anon its funny you mention that because im about to go in for my laparoscopic surgery next week. i have endo and le dreaded interstitital cystitis. the former is triggered by estrogen, the latter by progesterone. therefore my body is constantly at war with itself.

do you have endometriosis and/or/PCOS/and/or/interstitial cystitis 🙋🏼‍♀️

yes, endo

yes, PCOS

yes, interstitial cystitis

yes, two of these (comment below)

yes, all three (my god i’m so sorry)

suspected but unconfirmed (scary!)

no (lucky you!)

Voting ended onSep 26, 2025

[complainer-experter]

Chronic pain sucks but having it in an area thats deemed 'inappropriate' to mention is so annoying! Like I wanted my bladder and vulva to hurt?!

[witxhykaite]

High pain night. Send more weed