#medullaryspongekidney

[msaliscia]

Everyone has their own unique stripes. I’m wearing stripes for #RareDiseaseDay . I have hashimoto's Encephalopathy, #narcolepsy, #EhlersDanlosSyndrome & #medullaryspongekidney all rare diseases! #ShowYourStripes #HESAonline #AutoimmuneEncephilitis #HashimotosEncephalopathy #Dazzle4Rare #GCEA #WorldEncephilitisDay #medicalresearch #raredisease #chronicillness #patientadvocacy #neuropsychiatry #neuroscience #togetherstronger https://www.instagram.com/p/B9KsoyoBi6-/?igshid=wpxbb2nwyldn

[capturedbyktphoto-blog]

When you are recovering from surgery, chocolate is the best medicine! #kidneystonessuck #medullaryspongekidney #renalneurolysis #surgerylife #recoveryfromsurgery #europeanchocolate #chocolateismedicinetoo #mercibeaucoup

[survivingasawoman]

I'm not one to ever post politics and such, but this is a huge step for our country. As someone with a very rare chronic and detrimental illness, I was elated to read this, as my current treatment is not working for me. "President Barack Obama is asking Congress for $215 million to fund what he calls a precision medicine initiative that would aim to move away from one-size-fits-all treatments and instead tailor them to an individual’s genetic makeup, the White House announced Friday." #progress #medullaryspongekidney #chronicpain #chronickidneydisease