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➖Have a Great Day DisAbled warriors➖ ➖➖➖➖ . . . . . . . . . . . . #spoonie #mctd #lupus #hypopara #natpara #ms #musculardystrophy #MS #parkinsonsdisease #fibro #fibromyalgia #lupus #RA #rheumatoidarthritis #mondaymotivation #disabled #handicapped #spoonielife #spooniesupport #spoonies #als #costochondritis #shingles #erythromelalgia #memes #dankmemes #lol #doctormemes https://www.instagram.com/p/B2MSm0Uj0bf/?igshid=1nufsrxqwux7e
As per the release from Natpara, they are letting people who is serious complications get it, as they said it will be a very tiny amount, this already a rare disease. Only a tiny amount are having complications. All of us are not having complications, cause we have our oral meds we can take. As with all the fighting with me caused I disagreed, this isn't a health crisis, this is the exact opposite of a health crisis. Some were creating panic Over symptoms. That is why I kept saying we have other options. We may not like them but we do. People with other conditions do not have other options or any, and it isn't a health crisis. Some people have diseases and it is no medicine for them to take. It isn't a health crisis. We have people doing chemo, surgery etc that isn't considered a health crisis. Maybe call it a medical priority to find better ways to get treatment for the patient. I have had this disease since 2009, all the writing and posts I have done when It was not managed, no one reached out. But as soon as I disagree with some of you here you come commenting on all my social media, saying things that I never said. I said this isn't a health crisis and some people do not recognize symptoms of low calcium. I also found with calcitriol, it is different brands and they process in the body differently. One brand for me does nothing. Natapara comes with its own risks as well. Be patient and let them work out issues. ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::: #natpara #fda #takeda #shire #qcliqpen #osteosarcoma #parathyroid #hypothyroid #calcitriol #calcium #hypopara #hypoparathyroidism #hypothyroidism #gravesdisease #health #spoonie #thyroidectomy #thyroideyedisease #thyroiddisease #thyroid #medicine (at Nags Head, North Carolina) https://www.instagram.com/p/B3BewJ3DE5K/?igshid=mghszz2sgkvj
I am in a hypoparathyroid group, since I have thyroidectomy in 2009 and my parathyroid glands were removed and or damaged. Due to this we have to take calcium by mouth daily among other minerals. Some have absorption issues etc, it is a shot called Natpars that really decreased the amount of calcium you would take daily and helped people with absorption issues. It was a recall. This disease isn't like diabetes, we do not have ways to check our levels. It is something you have to know with your body. If calcium is low you may have static feeling, tingling in feet, lips, hands, or muscle pain variety of symptoms. Now we have to go back to the pill medication until issue is fixed. But people are not taking enough calcium and blaming natpara. If you are taking calcium and 30 minutes later still experiencing symtoms....take more, that means calcium is still low. Our bodies fluctuates the doctor may say take 2 calcium pills daily. Some days you may need 3 others 4. Then during your period it may change. When you see your doctor you let then know on somedays I take this amount and etc. I have had the entire body seize up after my surgery I was not told what I had etc, my levels dropped so low, I couldnt talk etc. Every muscle was like hard like rocks. Why do this to yourself on purpose, when we have what we need for right now until it is fixed. I feel bad for the ones with the absorption issues with them they will have a harder time processing calcium. ::::::::::::::::::::::::::::::::::::::::::::::::::::: #natpara #natpararecall #recall #lowcalcium #hypopara #thyroid #fda #thyroidcancer #thyroidproblems #thyroidectomy #gravesdiease #hypoparathyroidism #senators #health #musclepain #musclespasms #doctors #diabetes #medicine #calcitriol #raredisease #invisibleillness #inviisabledisease #gains #musclemonday #abcnews #nbcnews #theshaderoom #thetea (at Raleigh, North Carolina) https://www.instagram.com/p/B2excBOFbB0/?igshid=1r5ehj60s53vj
Play Date
Several parents had told him in recent years how tiring they found playing with their children. He listened to fellow Dad’s groan about coming home from a long day at work to requests for stories and games when they wanted to just relax with a beer, to Moms talking about how thankful they were for ‘Dora the Explorer’ so they could just get a break from their kids.
Nat always found that kind of strange. Not that he was one of those parents who ban TV in its entirety, he could see the use - when he actually had to get some work done during the day he might leave Kitty with a cartoon, so he could phone a client, but - well, he liked playing with his kids.
He loved arts and crafts, he loved watching their minds work, he had fun teaching them games and telling them stories. That to him was the fun stuff, surely the point of having children! It was the discipline stuff he found difficult - the things he had expected Marina to handle.
Which might be why this playdate had turned the den - which more closely resembled a playroom than it did a family room in truth - into a chaos scene. He didn’t mind. The tables was still strewn with pipe cleaners from when they’d gotten home and made entire families of bizarre chicken like creatures before they decamped to the floor. That is where they were now, Alex and Zach surrounded by a sea of lego bricks as they built ‘spaceland’ and discussed the aliens, Nat himself helping by building a sip to take them there and watching Sara mother Kitty - an activity he could recognise Kitty was getting too tired to tolerate. She was her mother all over - he saw Marina every time they looked at their daughter and had no doubt she would grow up to be a firecracker who was utterly certain of her own mind and knew how to wrap him around her little finger.
Hearing the doorbell ring he stood up, scooping up his daughter from their visitor’s lap.
“Stay with the astronauts Sara - me and Kitty will go see whose at the door” he told her with a smile, shifting his daughter onto his hip as he went to answer, offering a smile to the woman he stood there.
This is potentially big. Gonna be hard to get it paid for, though...
A Drug Approved to Control Low Blood Calcium Levels in Patients with control low blood calcium levels in patients with Hypoparathyroidism
FDA Approves Natpara to control low blood calcium levels in patients with hypoparathyroidism
January 23, 2015
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The U.S. Food and Drug Administration approved Natpara (parathyroid horomone) to control hypocalcemia (low blood calcium levels) in patients with hypoparathyroidism, a rare disease that affects approximately 60,000 people in the United States.
Hypopar…
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