Wow, this was the eighteenth Week of Vimizim. It started a bit later today because we mentioned to the nurses that I was starting to get itchy sore bit or hive marks on my legs. So the nurse gave me an antihistamine and we had to wait half an hour for that to go down before we could get hooked up to the Vimizim. Once we did though, the antihistamine kicked in within about an hour and I fell asleep. I was so sleepy and right now I can barely keep my eyes open. So afterwards I watched The Princess Bride because I've never seen it before, read the book sure but not seen the movie. And an episode of Quantico (the second in the first series) and then an episode of Iron Fist (the fifth I think). And any writing I did today was really hard because I couldn't process the sleepy quality of the antihistamine quick, still feeling sleepy at the dinner table. It was like trying to walk up a hill in molasses! I'll link the new bit here in a minute. We googled the drug today and worked out that in the United States Biomarin charge $1,068 per vial. So I take ten at a time, so that's $10,680. But it's making me feel better, so it's worth it. The pricing probably differs a bit in the U.K. But the company is a US based one... My younger brother was painting a flag, his school has got through to some boys rugby final so he was painting the name of the school onto the Irish Tricolour. My bedroom is on the ground floor in the same space as the utility, back door and garage door so my bedroom is probably fumey tonight. I feel sick, I've turned the lights on so I can sit up if I need to but hopefully the sickness will pass soon. Eugh I feel like I could be sick. Here's hoping if I am that I can get Dad to come down, I usually crack up if I start vomiting. Sad to hear about Martin McGuinness today, yes he was a leader in the Free Derry part of the IRA for years but he was later a treat politician. He was the SF's negotiator for the 1998 Good Friday Agreement which bought the peace we enjoy here. He was the first Education Minister, showing he was able to fight for anyone regardless of their political or religious background. He was later the Deputy First Minister here for many years. It was interesting because you had so many being completely bitter about his death, which I mean I can understand. But bitter to the point where they were denying his statesman role as a peaceman. Armalite to ballot box indeed. It's interesting thinking about it.