#sickbutinvisible

[serenebutterfly]

Feeling this quote particularly hard tonight, as once again I am lying in bed and being ravaged by cruel, and persistent #symptoms. Chronic illness has such a horrible way of stripping away #normality, and stealing our lives as we knew it until we are no longer able to remember it old lives. Or even how our bodies felt before the symptoms of chronic illness completely took over. And then we are left unable to remember what it was not to live with such severe and debilitating symptoms, or what it is to live in a normal, healthy and fully functioning body. #spoonie #chronicillness #chronicpain #chroniclife #chronicillnesswarrior #chronicpainwarrior #fatigue #neurologicaldisorder #MS #FND #functionalnurologicaldisorder #wherethetiredgirlsare #sickgirlsclub #sickbutinvisible https://www.instagram.com/p/B_vbIJhD9V7/?igshid=1lqi6gvuvb107

[sally-rouge]

Priorities, I has 'em!! The flare continues but it turns out it's the kind where I'm stuck in fight-or-flight and can't eat or sleep much (which is why I'm up now) and the only thing that stops me from wanting to throw up or start shrieking with panic is to stay busy!! That's hard when you're running on fumes, but the upshot is that I've done this before and I kinda know how to make the most of what I've got. Here's what I've accomplished: - I spent the afternoon with my westie-bestie for a little bitch sesh. Sometimes all you need in life is for someone to say "wow, that sucks" so you can stop feeling guilty for struggling. We did a whole lotta that for each other today. It helped me refocus where I want/need to be spending my limited energy. - I got the first audio sample of the book I signed on to produce finished and submitted on time, despite the manuscript being delayed almost two full days. - I'm maintaining my Duolingo streak, albeit with weekend freezes. But damn it!! I'm still doing it!! It's the only thing I haven't fucked up in over a year, and some days it feels like the only thing I can do right. - I made lunches and coffee for my family after being too exhausted to do it yesterday. - Aaaaaand I deleted all of my online dating profiles. Because right now I just want to focus on me and what I'm doing and I'm not keen on bringing new people into the mix. Perhaps I'll try again later when I've figured out... I dunno, maybe why I even needed 3 different dating apps in the first place, I guess?? I don't know. I just know that I need to stop spreading myself so thin and dating is one of the few areas I can sacrifice. So... Priorities. I has 'em. . . #priorities #smallvictories #selfcare #symptomflare #chronicillness #chronicpain #voiceover #voiceactress #vox #familyfirst #timeforchange #duolingo #maintaining #hardchoices #prioritizing #sickbutinvisible #sicknotlazy #sicknotweak #knockeddownbutnotout #imafighter #imnotokay #illbeokay #justnotyet #ihopeIcansleepsoon https://www.instagram.com/p/BysEqJigXoh/?igshid=leagin3v7ftn

[sally-rouge]

I am not ok, and I am not ok in a way that I think chronically ill people are often afraid to discuss: heartbreak and the way it can kick symptoms into overdrive. The details don't matter, because the point I want to make is that you need to understand why chronically ill people are often afraid to take chances by putting their heart and/or hopes on the line. Because for us, we don't just feel "a little off"... Stress can, and usually does, make symptoms not just bad, but sometimes as bad as they can get. Everybody gets sick to their stomach when they get back news, sure. But my guts are cramping so hard you can feel it if you put your hand on my abdomen. My heart is beating well over 100bpm even though I've been seated for over an hour and barely moved except to use my phone and take my blood pressure. Speaking of... My blood pressure is spiking high and then dropping rapidly. i'm in an abnormal amount of pain, I'm nauseated, I'm dizzy, it's getting hard to think through all of this... I'm a fucking mess!!! All because I dared to go after something that really made me happy, and it didn't pan out. 🤷 And I have no idea how long I'm gonna feel like shit, either. You would think that once I calmed down and stopped being stressed, the symptoms would do the same, but you would be WRONG, because this is chronic illness. There are no rules, only guidelines, and they're vague at best. Stress = flare, but there is no way to factor for "how long". I took a chance. I don't regret it. I'll do it again because I'm a tenacious idiot who believes she deserves happiness and is willing to squeeze it from the lifeless body of Fate if necessary... But you gotta understand why it's probably gonna be a while before I'm into the idea again. Why it's hard when you wrestle with these kinds of shifting variables and high stakes to be willing to put yourself on the line. I'm risking way more than you realize. . . #chronicillness #chronicpain #stress #symptomflare #sickbutinvisible #butyoudontlooksick #chronicallyill #realtalk #heartbreak #disappointment #imnotokay https://www.instagram.com/p/BypYKFcgNT5/?igshid=1a2r2vp0bb8hg

[kittenskysong2]

This sums up how I feel right now. I am hurting so bad tonight. I am also exhausted but the pain won't let me sleep. #Repost @gutsydating • • • • • • Image credit @spoonie_village 👋🏻🍽 . . . #invisibleillness #sickbutinvisible #youdontlooksick #ittakesguts #chronicblogs #chronicinsta #spoonielife #spoonieinsta #chronicpainwarrior #disabledandcute #invisibleillnessawareness #spooniesunite #ittakesguts #fibrowarrior #chronicfatigue #fibrowarrior #exhausted #chronicpain https://www.instagram.com/p/Buf1_3Cn6mS/?utm_source=ig_tumblr_share&igshid=16n8jyj6stfh

[sally-rouge]

The joys of getting blood drawn when you struggle with low blood pressure... It's been almost 6 hours and I only just got warm again. The color still hasn't fully returned to my lips, but I'm getting there. At least the dizzy spells seem to have abated. More water. More food. More rest. Repeat until no longer feeling like crap. #dysautonomia #POTS #lowbloodpressure #lowbloodvolume #bloodwork #AVampireAttackedMe #ImDownAQuart #chronicillness #invisibleillness #butyoudontlooksick #sickbutinvisible

[thefreakyfairy75]

Sometimes the locals round here show me they do have humour! Didn't realise that to take this pic, I got out of the car leaving the door open and stood in the disabled spot . Took pic, turned around and realised someone was was waiting for me to stop blocking 3 disabled spots to take this pic Lol xx #thefreakyfairy #thrutheeyesofafreak #lifeofanautoimmunewarrior #ibdsuperheroes #sickbutinvisible #noteverydisabilityisvisible

[allonsyfelicity]

Click the link! I made the teddy (yes, I make teddies by hand) and we are raffling it off to anyone, anywhere*. Money made goes toward the campaign to raise IBD awareness.

*Certain people cannot enter. Only campaign managers know who they are.

[thefreakyfairy75]

Oh the confusion in my head! The inner goddess dedicated healthy eater in me is screaming But...... The very forward insomniac in mild discomfort who doesnt give a rats noo noo about diet or facts has won! Yes I won a raffle prize tonight! Yes it's 5.10 am and I've given in! Taking bets on sugar rush expectancy lol #thefreakyfairy #thrutheeyesofafreak #lifeofanautoimmunewarrior #ibdlife #insomniasucks #ibdsuperheroes #sickbutinvisible #ostomylife #midnightmunchies