#spinal defect

[cpunkwitch]

Hi I need people to remember scoliosis isn't the only back issue that exists

I've had multiple instances where I talked about my back issue, stating a defect in my spine causes me chronic pain, and people respond with "so do you have a form of scoliosis?"

NO. not only does this show how little people understand scoliosis but that scoliosis being the first thing to come to mind means other back problems and spine conditions are not known well enough and we need to fix that.

Start talking about your conditions, talk about your back problems, explain what you experience and listen when people talk about theirs.

Don't let the world continue to be ignorant and assume there's only one condition for you to have, don't let peoples ignorance out you in a box, that happens way too often and the only way we can solve and prevent it is if we don't stop talking about it.

Bringing awareness to things is the only way we can stop having to deal with situations like this where people are ignorant and make assumptions about our bodies based on our age, appearance and their limited knowledge.

And for the able bodied folk, don't talk over us, listen and learn and help us spread awareness. PLEASE

[cpunkwitch]

Oo!! Show us the funky skeleton :D /lh

Here he is!

That's the fucker that causes me the ouchies

The culprit of the aches and pains

[lyn-zieexx]

hi sorry i was moving so erratically i had to shuffle my spine into a comfortable position

[hental-melth]

I'm too young to feel this fucking old.

My 67 year old mother is more physically capable than I am. Excluding special occasions, I spend at least 20 hours a day in bed. My back is killing me.

My dad had the same thing. He made it to 47 before he couldn't take it anymore and relieved himself of the torture of being attached to his body as it failed around him.

This week, I've struggled to sit and play guitar. I almost blacked out from the task of putting groceries away. I can't draw or paint because I can't get comfortable enough to concentrate, even with morphine. I've been laying awake crying for the past two hours, just being pitiful because in this moment it is the most I am capable of. All of my joints ache. My fucking ribs ache. My neck doesn't feel strong enough to hold my head up.

I have a back brace (finally) and had the idea to use it to hold my heating pad against my spine and that's almost helping relieve the pain from my shoulders repeatedly dislocating.

I'll get past it, or through it, or whatever. I'll survive, if you can call this surviving. But Jesus Christ, Dad, I get it. It isn't that I wasn't enough. The pain was just too much. It was just too much. You're a fucking hero for making it to 47.

[cpunkwitch]

i hate waking up with pain in my neck and lower back, takes me a while to actually get out of bed

i took a walk last night and theres knots and soreness worsened all through my back

honestly wish i'd known about the defect in my spine way way earlier so i could know stuff that would help me avoid the constant strain, stress and pain in my body, i'd have already made doing small stretches and exercises part of my routine and my brain would remember to do them every day or so.

no i had to learn 1-2 years ago at my moms chiropractor cuz my back pain was limiting my mobility so painfully the parents finally decided to check why i was in pain and do something about it and even after the xray they still dont act like it was that serious.

"our daughter isnt nonbinary or trans or a boy nor disabled no shes our perfectly 'normal' little princess who does all the chores we dont wanna do around the house"

i want fucking out of here

by bed's not great to sleep on either it doesnt help my insomnia and the pain that keeps me up at night, but we cant afford a new mattress so

had to say goodbye to my dreams of medically transitioning ages ago, now im walking around wishing i even had the confidence to use my cane more in public (once i finish painting it maybe i will idk)

anyway i gotta call the dentist and calls terrify me so wish me luck