#stillsdisease

[mamas-still-doing-it-all]

So I’ve been fighting a flare for the past week, last Sunday I didnt even get out of bed... because I knew I had to go to work the next day so I was saving my energy and I was so drained- but today I feel great... it’s so important to give yourself the time to heal.

Mamas-still-doing-it-all

[spoonie-living]

[Image description: Instagram post by kirbir: a photo of a sunburned person with short hair mugging for the camera. A (capped, unopened) syringe is poking out from between their breasts as they mug for the camera. The text reads: “Ever get sick of waiting for a shot to get closer to room temperature? Just use your boobs to warm it up! Between boobs or under boobs are great spots. What are some of your illness hacks?” followed by a number of relevant hashtags. Comments praise the poster and suggest tummy rolls and underboob, mentioning using this trick for insulin and kineret.]

[Original post]

Here’s a clever little trick for getting your shots to body temperature! There are plenty of warm spots around the body (armpits, under the knees, and between the thighs, for example). This may not be a surprise to veteran syringe-users, but newbies will likely appreciate the advice.

Kirstie’s Instagram is a great follow for social justice and chronic illness life. You may also enjoy her personal blog, Not Standing Still’s Disease, as well as her newest blog and community, Chronic Sex (chronic_self_love on Instagram).

[graysongoal]

Someone did the cutest drawings of T and me for my new Healthline article - In Sickness and in Health: Making Love Last While Living with Chronic Illness 💜 you can find the link on notstandinstillsdisease.com or http://www.healthline.com/health/chronic-illness-relationships 💙 #rheum #SJIA #systemicjuvenilearthritis #juvenilearthritis #juvenileidiopathicarthritis #jia #stillsdisease #fibro #spoonie #arthritis #arthritissucks #effarthritis #chroniclife #chronicpain #chronicillness #chronicsex #notstandingstillsdisease

[mamas-still-doing-it-all]

As someone who has had stills since I was a child I often know my body better then a doctor. I know when I need to go to the hospital, I know when I'm really in trouble. But for those who are new to having Stills, I just want to say that Stills is manageable. It's more of a mind over matter thing. Paying attention when the dragon is ready to strike and handling it. I have seen so many negative posts on this page that I have stayed off of it for almost a year. And I have been off all meds and mostly symptom free during since I stopped reading the posts. I know being sick sucks. I know all of us have wanted to give up at one point or another. But, feeling in control. Having knowledge of what stills is. Knowing the warning signs of when your body is really in trouble and looking at stills as more of a nuisance then a prison sentence is a must. For those of you who do know me... you know that I've gotten the brunt from stills. Every problem you could have including my heart stopping has has happened to me. And yet I'm Med free and working 50+ hours a week. It was when I decided that I was in control that I was. You have to eliminate the stress, you have to be extremely selfish and you have to put yourself first. I'm not suggesting that any of you try what I did. But I was at a point t where I would rather be dead then take the meds. And what I did worked for me. Just wanted to share.

mamas-still-doing-if-all

[mamas-still-doing-it-all]

Whenever I'm feeling like no one cares, I look in the mirror and see someone who cares very much. Its a reminder that I'm enough.

Mamas-still-doing-it-all

[graysongoal]

When you get the sweetest gifts from @haspell 😍😎🙌🏻💙 #rheummates #rheum #stillsdisease #fibro #spoonie #arthritis #arthritissucks #effarthritis #chroniclife #chronicpain #chronicillness #notstandingstillsdisease

[graysongoal]

The only way I'm currently surviving: my Axon Optics, ThermaCare, talking with pals, and remembering that in less than 200 hours I'll be in Mexico with my BFF Katy. Right now, I'm just living for Mexico. #chronicneckpain #axonoptics #thermacare #rheum #SJIA #systemicjuvenilearthritis #juvenilearthritis #juvenileidiopathicarthritis #jia #stillsdisease #fibro #spoonie #arthritis #arthritissucks #effarthritis #chroniclife #chronicpain #chronicillness #chronicsex #notstandingstillsdisease

[vikashkumar7544]

🔥 Still’s Disease – The Fire Inside That’s Often Missed

It spikes fevers, leaves rashes, and causes joint destruction. Yet it’s misdiagnosed every day.

Our new 2025 guide walks through the history, symptoms, and treatment of this rare but serious disease. 📖 https://revisiontown.com/stills-disease-symptoms-causes-diagnosis-treatment-2025-guide/