#very important#unfortunately with dementia there's a point where they stop walking#it shows up in the shuffling gait as well as difficult with turning or initiating steps or even a simple weightshift#and as it progresses in the advanced stages you see difficulty with food textures (dysphagia) and decreased appetite#this is one of the reasons why advanced directives are important#what life sustaining measure are wanted is a very individual decision#and that can change#pallitive care is important#hospice is a program not a place#though there are hospice facilities#and keeping the person in the center of that care is vital - and has to be actively advocated for#everyone deserves dignity in care#it's hard seeing a person be slowly erased#I come in to the picture so late in the game that I only know them as they are now#and see only what they need now - I don't carry decades of who they were and how much they used to do#and it's important to support and guide family members who are juggling all these care needs#and be respectful about what they can handle as far as assisting in caring for that family member with dementia#home care is important#adult day care is important#memory care is important#longterm care is important#everyone always deserves dignity in care#everyone deserves dignity in end of life care#Youtube
