[wishkhh]

Migrating back to my home, Tumblr after being on Twitter. I'm a recent college graduate with a Bachelor's degree in English! 🎓 I write Freelance pieces on my disability/advocacy, academic stuff, and culture.

my portfolio is:

@lcraine | Liinks

Lauryn is a recent college graduate. She obtained her Bachelors in English with a Writing Studies Concentration. She writes for fun and as a

[superhoeva]

just a reminder that:

the phrase "say her name" is to used honor and bring attention to the murders of black women by the police or the state.

and the phrase "rest in power" is used to honor and signify the work that a black person has participated in, as far as the fight for social and racial justice.

[superhoeva]

if you read this and get in your feelings… or feel it’s an attack of some kind… or unworthy of being said at this time… i think you should take a second to think about why that is instead of dropping paragraphs and paragraphs.

this language exists for a reason, whether you realize that or not. whether you care or not.

also: if this is hostile to you, i have absolutely no idea how you are going to get through what it’s going to take to put an end to all this shit

[disability-shout-outs]

Shout out to folks with Idiopathic Hypersomnia!

[wishkhh]

I hate how people dont see me as disabled because im so young :/ like ok lets just invalidate my feelings and my doctors tests

[yrfemmehusband]

how many people have family that don’t know about / don’t know the full extent of their disability?

my family knows most of it, and my diagnoses, but i don’t tell them how hard it is day to day usually so it feels like they don’t understand a big part of how hard things are for me.

this is especially hard if you got worse after moving out (which is how most chronic conditions work by the way, they get worse in your 20s usually). most of my family will understand i need accommodations but not the extent of it. and it’s embarrassing, i don’t want them to know.

i think so many more people know someone with a disability than they think, even if they’re very close to them. my family likely doesn’t think of me as disabled because disabled is a bad word to them.

i dunno, just a bit of a ramble. it’s weird when your family thinks of you as the sick one, and doesn’t even really know what that means.

[j33persworld]

this is a post for every cripple who keeps going despite it all —

for every cripple who has to sit through countless doctors appointments and somehow continues to carry on.

for every cripple who is dealing with an unsupportive, ableist, and/or abusive living situation and keeps on existing.

for every cripple who deals with a hateful society that doesn’t even consider them (as a person, friend, consumer, or partner) and wakes up in it every day.

this is for you. keep going.

[wishkhh]

been dealing with brain fog and trying to push through to finish filling out my application for my masters degree

[isitautism]

"You're too young,"

This morning my co-worker was talking about how she can feel the pain in her joints during rainy, humid days. Another coworker said that she doesn't, and her response was "it's because you're too young," and I had to hold myself back from interrupting their conversation. That coworker is only two years younger than me.

So I went over and casually inserted, "I've had chronic back pain since I was 12," to which there wasn't a reply. I realized how much it bothered me because I've been told that very thing all my life. "You're too young to be in pain," they say, as if I'm lying or exaggerating? As if they doubt me? I decided to say something because I want to spread awareness about these invisible illnesses and disabilities. I have been treated unfairly for my invisible illnesses all my life and I want to end that privileged mindset.

[wishkhh]

chronically eepy and that's ok

[wheelie-sick]

I get so sick of the people who tell abled people that "you should care about disabled rights because you'll be disabled one day" because that's not the point. they should care about disabled rights right now because there are disabled people right now. I don't get to wait I don't get to be future disabled I am disabled in the present and I need rights in the present. our rights shouldn't have to benefit others to be worth fighting for

[tsunamiwavesurfing]

feel like ppl are getting meaner and it's weird to see

[talkethtothehandeth]

As much as I agree that people who have EDS shouldn’t talk over people who have worse disabilities than us, and as firmly as I believe that disabled people should let other disabled people speak about their struggles without comparing it to EDS, I need you to know that having EDS, especially my type— the one you find more often than other types, is not just “being bendy”.

I was diagnosed with EDS when I was a baby. I was very lucky, and was able to receive treatment (whether good or bad) quicker than others. However, EDS caused my hip dysplasia, it caused the condition that affected my mobility to the point where I needed three corrective hip surgeries; it was the cause of my bone not forming, I needed a bone donor to aid in correction. I have three long scars on my bikini line where Dr Caroll (from Shriner’s in Utah) cut into me in order to give me a better chance of having less limited mobility.

EDS isn’t just me being able to play bendy straw with my hands, it isn’t just me having to deal with “fake dislocations, it’s subluxations so it’s not that bad”. It caused my scoliosis, it caused my arthritis from my joints going out of place so often. I was diagnosed with osteoarthritis as a child, but as I got older, my arthritis spread to more places. I have burning nerve pain that makes me want to die, I have partial paralysis whenever my body decides to attack me spontaneously, I have dystonia, I have hearing loss, allergic reactions, and pain in every joint in my entire body. From head to toe, all of my joints, all of my muscles.

EDS is something that has severely impacted and negatively effected my entire body. It took everything from me, it took my already limited mobility, it took my peace, it took my mental health, it took my most beloved hobby ever— riding horses. I cannot sit to play piano, use my hands for my guitar, sit in a chair for more than 30 minutes without my back muscles screaming.

I took 14 pills every single day with multiple prescriptions because of what EDS has caused. I am undiagnosed with something that nearly killed me last year, everyone was preparing for me to die, and it has been dismissed by anxiety or an eating disorder, it is caused by my disease. EDS will affect me for the rest of my life.

EDS isn’t “just” being hyper mobile. This isn’t just a small disease that people go through, it is life altering and life compromising and life threatening from all of the comorbidities that come along with it; it is debilitating, it is isolating, it is pain that cannot be treated with even IV morphine, it is a constant, unrelenting acid rain condition just as many other physical disabilities.

People who have EDS shouldn’t try to play the Sick Olympics, we shouldn’t go to someone’s page and say “I’M JUST AS SICK AND DISABLED AS YOU ARE”. We should take the time to listen to people who have it worse, because so often they get ignored by abled people, they don’t need other disabled people to say that their conditions aren’t worse just because we have it bad. So many people are definitely more disabled than I am, and that absolutely does not erase my struggles.

Every physical disability affects the body in different ways, and every physical disability isn’t necessarily comparable to others. My degenerative arthritis isn’t the same as someone’s ankylosing spondylitis. My joints are fucked and my mobility has been significantly decreased as my disease has progressed. I am not going to compare my knees that will need to be replaced to someone whose spine is literally fusing together. Even though it’s a form of arthritis, it isn’t the same as mine and it isn’t my place to pretend it is.

But someone saying “it’s just hyper mobility” is perpetuating a harmful narrative, because people already don’t believe us, our stuff doesn’t show in labs and it only shows during further and extensive testing that many doctors don’t want to pursue because we’re “faking” or “being over dramatic”, because it isn’t “that bad”, it’s just bendy joints, it’s not debilitating./s It isn’t just being bendy, it is so much more and doesn’t need to be dismissed solely because it isn’t the same or as severe as someone else’s condition. Even if someone does have it worse, it doesn’t mean that EDS isn’t bad, and just because someone has EDS, it doesn’t mean it’s always comparable and needs to be shouted to the world on people’s posts about a completely different situation.

[gameover03909987-deactivated202]

New post because the last one got way too long but here’s the link for my previous post

Thank you helping me see my mom and my kids. You will never understand how appreciative I am.

I now need help getting back home in time for welcome day at my college so I can get my ID, books and tour the campus

It seems the cost to get back to Cincinnati is high than when I went the opposite way. This is the last big bill I have this month(fingers crossed)

Also because my landlord failed my annual inspection for section 8, he had to replace things like my fire detectors and now they want me to pay $75 for it 🙃

But I’m perfectly fine paying that when I get my disability at the end of the month. They’ll get it when they get it lol

Thank y’all for reading and reblogging 🧡🧡🧡

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[wishkhh]

School is coming back up again 😭 as someone with sleepy b*tch diease I somehow made it through college. So heres how I "mostly" survived graduating with idiopathic hypersomnia

5 Ways I Survived College With Daytime Sleepiness

College can be a challenge for those who live with EDS.

[wishkhh]

Hi! I’d love to be added to the discord server whenever you have a chance! 🥰

Def! sorry late response, but here's the link: https://discord.gg/k9ZbRHXqwU

[wishkhh]

also finally put tumblr back on my main tablet so ill be on here more. using desktop is not my vibe :(

[wishkhh]

been working recently so sorry if im late responding to any messages about being added to the narcolepsy/idiopathic hypersomnia discord server!