Being chronically ill is like being a phone that can’t charge past, like, 30%. You can do a good chunk of stuff when at 30%, but not as much as you’d like to before it has the go on the charger. You know when you’re charging your phone but you need to do something really quick but the charger cord won’t reach so you just take it off for a second, but it’s only at 10% so it’s constantly giving you the notification to put it back on the charger? That’s what it’s like to get up to do anything be it get a drink, go pee, check on sleeping family, whatever, at night. You are constantly being reminded by your body you need to get back to sleep and soon, but you know that you can do this small task at 10%, because you’ve done it at 3% before when you were absolutely desperate, but it doesn’t make it any less nerve-wracking because if your phone’s over heating or you left the brightness all the way up, or you misread the percentage, that 10% can go right to a power down before you get it back on the charger. People understand “I don’t wanna leave the house yet, my phone’s only at 27%” but don’t quite get “I can’t leave the house yet, my body is only at 10%, if I left now I wouldn’t make it back home safe”
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