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So Saturday, was amazing. For the very first time I met another girl with MRKH. It was great to finally relate to someone in person. It is life changing. I came to the realization the other day that if I had the chance to change my life to be perfect. I wouldn't which sounds silly and crazy, but I wouldn't be who I am today, or have made awesome connections with others. I believe that even though mrkh is something "bad" or a "flaw", That God helps us and gives us good things, turning a bad situation into a good, positive situation!
So many emotions. Tomorrow is a very exciting day. I am meeting up with another girl who has mrkh. This is my first time ever meeting someone in person! I am nervous, and excited. To finally see,and relate to someone in person is amazing. I love the power of social media. I am very glad to finally be meeting another person with mrkh, but at the same time, I feel sad for them, that they have to go through everything. I don't know if that sounds silly, or even makes sense.
It has been a long 3 years and finally I get this amazing chance. But for some people they wait 10+ years before they finally meet someone. So I am thankful and fortunate.
I will post tomorrow on how it went! :)
This past wednesday, my church had an Ash Wednesday service. It was so incredible. Easter comes and goes every year, and it's so easy to go through the motions and take it for granted. But what does it really mean to you? We are so caught up in our schedules that we don't take time to reflect and realize how powerful it really is. We are all sinners and have sinned, but yet God died for us and he didn't have to, and he washed our sins away. A fresh start. How incredible and amazing is that?
So this is my challenge that I'm trying and I challenge you. This easter, don't get caught up in the busy. Take some time to breath, pray, and reflect, thanking God for all he has done.
My background currently on my computer says, cleansed, restored, and transformed. Psalm 51.
Three Years Ago... (reflection)
Three Years ago, at 16 years old, I would receive news that would change my life forever. I Found out that I had MRKH. Let's rewind to the days leading up to that moment... I was on a school trip and it was close to one of the last nights there. All the girls were in a room, in a circle and sharing deep dark secrets. It got to be my turn and I didn't have anything to say. One girl said to me something like, "If nothing bad has happened to you yet, it will sometime." (Random side note, one girl was on her period and was complaining and I kind of laughed, kind of bragging, and said, " I don't have my period yet" not knowing what was about to come)...The day after I arrived home from my trip, my parents sat me down to talk to me. I knew something was wrong because it is usually a bad sign when your parents call you into the room to talk, because it usually means you did something wrong or something bad had happened. Little did I know, It was about me. Sitting on the coach, feeling the tension in the air, watching my parents trying to find the right words, with tears streaming down their faces, they told me I had mrkh. They tried to explain it the best they could and I just wanted the conversation to be over. I was making jokes because I felt uncomfortable, confused, and didn't know what was really going on. So many emotions were running through my head, I wanted to cry, but decided to hold back the tears. I wanted to pretend that I was tough and that the news didn't really affect me, when really it did.As I think back on getting the news, I think about how hard it was to have to go back to school the next day, and having to face peers. I put a smile on my face and acted like nothing was wrong and everything was ok, when really it felt like the end of the world. I lost focus for a while at school. But somehow things started to slowly get better as time went on. I just took it one day at a time.My senior year of high school is really when things improved. I saw a video on youtube of a girl telling her story and immediately I shot her an email. I think she told me about beautiful you and I checked them out but didn't really think about it and what it was. But meeting someone, I no longer felt alone.
As time went on, I decided to look up the beautiful you mrkh foundation again. Through beautiful you, I have met so many other woman with mrkh. Without my mrkh sisters, I don't know where I would be today. They have taught me so much and have helped shape and mold me into the person I am today. I have grown so much as a person in the past year. I accepted mrkh and decided to embrace this "flaw". My confidence grew and I have started to become more open about it. Each and everyday, I became more "comfortable" I guess you could say (if that makes sense). But it is a process and will always be a process.Mrkh may be a roadblock or a bump in the road, but don't let it keep you from living life! I used to think to myself, " I wonder what life would be like, if I didn't have mrkh." I don't think that anymore. This may sound silly, but now I think to myself, " I wonder what life would be like if I didn't have mrkh." I feel like so many good things have come out of having mrkh. Which also sounds silly, But I have made relationships with people from around the world, who I wouldn't of had if I didn't have mrkh. I think my family became closer and I just saw how much we do love and support each other. As much as I can I really try not to get down about it. I know that the future may be a little more difficult than "normal" woman, but I just have to trust, and have faith in God, letting him have control. Which is hard, but it has to be done. Three years ago, I remember clearly the events that led up to the day when my life would change and the day of. It's mind-blowing how much I am a different person, and how I've changed, and how close yet how long ago three years was. We grow up faster, then we would want to and are faced with decisions , but I believe in the end everything will work out in time. It may seem impossible, or unrealistic,there will be more struggles ahead, but everything will be ok...
To my sisters: To the one's I know and to to the ones I don't know yet, Thank you for everything... remember you are strong enough to handle this, unique, beautiful, warriors, fighters, etc, etc. Never give up, have hope, keep pressing on. think positive because God had has a plan for each and everyone of you. Through him all things are possible. One day all your dreams will come true. It may not be the way we wanted our life to be or the ideal situation, but I believe in you and together, we can get through this. I love you all, and wish I could hug each and everyone of you. I wish I could just take a year or two and do nothing but travel around the world and meet every single person. Know you are not alone, you are courageous , inspiring, and brave!
Looking back on 2013
2013, was an amazing year for me. So many things and big events happened in one year. I graduated high school and went off to college. I met so many people online with mrkh and that was life changing for me. So many good things happened in my life, and I accomplished so much in 2013. It's crazy to think about all the things I learned, and also how many things I learned about myself, matured, grew, and changed into an adult. I hope to have another amazing year. I hope that I can do the same as 2013 like meet new people, setting high goals, dreaming big and accomplishing those things, but double it making 2014 an incredible year. So goodbye 2013, hello 2014!
And this is a great example of why there needs to be more awareness and more education out there for MRKH!!!!
So I typed in mrkh in twitter, just to see what would come up because I was curious. I found this whole conversation, which 1. A great example of there needing to be more of an awareness and 2. I understand these people are high school age and don't know what they are talking about, and don't know what mrkh is, but I found their conversation to be a little frustrating/offensive, I just wish I could scream at them and be like NO you're all wrong haha.
@katiekat1717
1 in 4,500 newborn girls are born with a disorder called MRKH where they do not have a vagina, womb or cervix. In case you wanted to know.
@JimenezNoah19 Nov
@katiekat1717 where do you get this information?!
@katiekat171719 Nov
@JimenezNoah I was looking for a current event & saw an article titled "17 year old finds out she doesn't have a vagina" so I clicked on it😹
Details
@JimenezNoah19 Nov
@katiekat1717 😂😂😂. How does she not know she doesn't have one😂😂
@katiekat171719 Nov
@JimenezNoah Thats what I was thinking... Like how do you not know if you only have one hole and you're supposed to have two..😹
@jssybee12119 Nov
@katiekat1717 @JimenezNoah what an absolute shock. You live your whole life and then one day.. "Hey..that looks kinda different..."
@JimenezNoah19 Nov
@jssybee121 @katiekat1717 😂😂😂😂 I can't stop laughing. I'm just imagining what was going threw her mind when she found out
@JimenezNoah19 Nov
@katiekat1717 how does she pee?!😰
@katiekat171719 Nov
@jssybee121 @JimenezNoah haha I guess she went to the doctor & said she hadn't had her period so he was "btw you don't have a vagina" 😹
@katiekat171719 Nov
@JimenezNoah She has the top hole but she doesn't have a "vaginal canal"!
@katiekat171719 Nov
@JimenezNoah @jssybee121 So she can't have sex unless she gets surgery to get vaginal canal & she probably wouldn't be able to feel anything😳
@jssybee12119 Nov
@katiekat1717 @JimenezNoah oh my god what a sad life she has to live
@JimenezNoah19 Nov
@katiekat1717 😂😂😂😂😂😂😂😂😂😂😂
@katiekat171719 Nov
@jssybee121 @JimenezNoah yeah she was like "I don't wanna get the surgery, it'll help me find the right guy for me." I was like oh honey no
@JimenezNoah19 Nov
@katiekat1717 @jssybee121 😂😂😂 holy crap. I'm eating dinner with my family and they are admin me why I'm laughing. But I can't tell them
@jssybee12119 Nov
@katiekat1717 @JimenezNoah that's gonna be interesting when things start heating up on dates and she's like "sorry I don't have a vagina!
@katiekat171719 Nov
@JimenezNoah @jssybee121 Oh my 😳 please don't your sister is my link 😳😅😹
@JimenezNoah19 Nov
@katiekat1717 @jssybee121 I know. It would be soooo awkward
@katiekat171719 Nov
@jssybee121 @JimenezNoah "sorry I don't have a vagina" 💁 🏃🏃🏃🏃"Man FDB" Hahahha😹
@jssybee12119 Nov
@katiekat1717 @JimenezNoah 😂😂😂😂😂😂 omfg
@JimenezNoah19 Nov
@jssybee121 @katiekat1717 😂😂😂 daaanng. She's gonna get dumped so fast
@katiekat171719 Nov
@JimenezNoah @jssybee121 Yeah he'd probably be like "Wtf are you a Barbie doll?!" and then kick her out of the car a drive to a strip club👌😹
@katiekat171719 Nov
@JimenezNoah @jssybee121 what if someone we know doesn't have a vagina and there reading this and plotting our deaths.. 😳😹😹😹
@JimenezNoah19 Nov
@katiekat1717 @jssybee121 😂😂😂 when she tells the guys she doesn't have one.
@katiekat171719 Nov
@JimenezNoah @jssybee121 😹😹😹😹👏👏
Later After that whole conversation she tweets:
@katiekat171719 Nov
Wow I'm glad I have a vagina
There Is Beauty in everything
Today as I was walking to class, it is cold and a natural reaction would be to not be very happy especially having to walk in the snow. Surprisingly I was didn't mind it. I was listening to music as I was walking and found my walk to class and back to be peaceful. Admiring the beauty, having time to myself to think, and realizing how beautiful life is and how blessed and thankful I am.
Check this video out. It is amazing and inspirational. a Great message!
The Imperfect World?
Do you ever wonder what this world would be like if there was no "fall"? What if Adam and Eve didn't sin? It's so sad to see bad things happen to good people. I ask God why and I start to feel confused and many different emotions from sadness to disappointment etc. The sad thing is when one makes a bad decision or mistake, consequences come with it. Things change, like family dynamics, and so on. It doesn't just affect one or two people, it affects everyone around them. It affects everyone differently to different degree's but it still affects them.
A ton of thoughts come to mind... You love that person unconditionally through everything, which is crazy. You wonder how will the future play out and all you want is the best and happiness for them. It's tough... You ask the question, what can I as a person do? And the answer is prayer. I am very thankful to have God in my life, I don't know what I would do without him. His love never fails, he forgives, he is always on our side no matter what. It is very powerful and something that is so amazing it is unexplainable. Even though we can not see him, we can talk to him, and give everything to him. The great thing is that this life here on earth is temporary!
Who's going to Boston?
Have an AMAZING and unforgettable time if you are going. I so wish I could go and i'm bummed that I can't go. But someday hopefully I can make it! Hopefully I can go to the Michigan one in May! (fingers crossed)! :) If you go, I would love to hear from you how it was, and what it's like meeting another woman with mrkh. I have never met anyone in person with mrkh but someday I hope I get that chance/opportunity. (it makes me nervous, even thinking about it. Idk why I would be nervous though haha). Oh and if you're going say Hi to Jaclyn for me! :)
English Profile
Jaclyn Schultz is not just an ordinary girl. She is 25 years old and is 6 feet tall, from Wyandotte, Michigan. Jaclyn’s parents are Susan and Don Schultz, and Jaclyn grew up the only child. Jaclyn is a 2006 graduate from Roosevelt High School and a 2010 Graduate from Central Michigan University, with a degree in Public Relations. Jaclyn currently works for a high-class marketing company, Brogan and Partners, as a media strategist (CMU Alum Jaclyn Schultz). Jaclyn is a very busy lady, working full time, while currently working towards her master’s degree at Michigan State University. She lives with the philosophy “Never stop learning and growing as a person” (Jaclyn Schultz) and one day hopes to get her doctorate (Wyandotte). Last year in September, she competed for Miss Michigan in her first ever pageant and WON. For the next year Schultz was on a very rigorous schedule leading up to the national pageant. It took a lot of preparation like healthy eating and exercise everyday leading up to the competition. This past June she went to the national competition to compete for Miss USA. Even though she did not win the Miss USA title, she was a winner in many people’s eyes. Schultz has a lot of determination, courage, and is a hard worker, leader, and difference maker.
Schultz was very active growing up. She played basketball, volleyball, swam, ran track, and played softball. When she was younger she was a Polish dancer for nine years and competed nationally (Wyandotte). In her free time Schultz likes to paint abstract portraits of women on pieces of wood. She enjoys reading, traveling, and learning about different cultures. (Jaclyn Schultz) Schultz’s favorite candy is Reese’s pieces, a childhood memory is playing with chalk, some of her favorite accessories are bracelets, and she has a fear of drowning (2013 Miss USA). She loves rooting for the Detroit sports teams.
One day Schultz told her parents that she had entered the statewide pageant to compete for Miss Michigan. (Wyandotte) Schultz had determination, looking for a challenge. “I just went in with a fun attitude and came out with a crown,” she said. (CMU Alum Jaclyn Schultz). She competed with 70 other women in three categories, which are interview, swimsuit, and evening gown. Schultz’s goal was to just get top 15. She accomplished and surpassed that goal. She reached the top two, her name was called and she ended up winning. “As soon as the diamond-studded crown was placed on her head, Schultz said she was speechless. I was overflowed with emotions,” she said. “I couldn’t believe it” (CMU Alum Jaclyn Schultz). Winning brought many emotions and in a Facebook interview Schultz said, “I think it was the first time in my life I've ever cried ‘tears of joy.’ I was just so shocked, since it was my first pageant I NEVER expected to win. I hadn’t even thought about winning, or even read what the winner actually won since I didn't think it would happen. I remember feeling very blessed, SHOCKED, happy. Looking at my parents in the audience like ‘OMG WHAT JUST HAPPENED!?’ is that an emotion? Ha” (Schultz). “The young woman who had entered her first pageant was now representing her state, something that soon dawned on her. Schultz said that while she was proud to represent her hometown in the statewide pageant, as the newly crowned Miss Michigan she now had to represent the entire state” (Wyandotte).
Schultz’s life was never perfect though. At age 15, she learned that she was not like most other girls but was made differently. Schultz was diagnosed with MRKH Syndrome. This syndrome affects around 1 out of 4,500 to 5,000 births and about 75,000 women have this syndrome around the United States. MRKH stands for Mayer-Rokitansky-Kuster-Hauser Syndrome, the last names of the four doctors that discovered the syndrome. MRKH is congenital and present at birth, but a girl does not usually find out until her adolescent years. A person like Schultz is 100% girl with XX chromosomes, but is unable to carry her own child, due to an incomplete reproductive tract, but can still have children through surrogacy or adoption (Information and Resources).
“It’s not uncommon for pageant winners to support a particular cause, but for Schultz the cause she hopes to further is intensely personal and wasn’t the easiest for her to share” (Wyandotte). Schultz showed the world that she had courage, speaking out about something not heard of by most people. By winning the title of Miss Michigan, Schultz used her platform and became the spokesperson, using her voice for this syndrome and raising awareness, by partnering up with the Beautiful You MRKH Foundation. She also partnered up with Bethany Adoption Agency and Pink Ribbon Girls. In a Facebook interview Schultz discusses how she got involved in the organizations. “I emailed someone at my doctor’s office at the University of Michigan and they referred me to Amy and Christina at the Beautiful You - I emailed them and told them that I had won and I wanted to partner with them. My state director got me involved with the Pink Ribbon Girls, and I went to college with a girl who works at Bethany so she got a hold of me and asked if I would be interested” (Schultz).
Schultz doesn’t let MRKH bring her down. She is a great role model and a positive asset, being a leader for young girls going through this. Instead of letting MRKH define who she is and being negative, she chose to be positive, turning her weakness into strength. (Wyandotte) Finding out she was different from other girls wasn’t the easiest for her. But in an interview she says that she “realized that being different was a good thing, and that MRKH is what makes her unique. Through all my accomplishments I never let having MRKH, or any other struggle in my life bring me down, or keep me down. I just get mad at whatever or whoever tries to bring me down and then rise above it, conquer it and then smile and say, ‘eat your heart out’ ” (The Empowerment of the Silent Sisterhood). Schultz “realized that by not talking about MRKH, it almost appeared that she was ashamed or trying to hide it from others” (Wyandotte). In a Facebook interview, Schultz said, “I decided to speak out about MRKH because I knew that by having this platform, I could hopefully make girls feel less alone like I did. Also to spread awareness among the general population” (Schultz).
With struggle comes reward. Winning Miss Michigan has brought her a lot of rewards. In an interview Schultz says, “I think everything happens for a reason and when I won I knew in my heart what I needed to do. It wasn’t easy at first to see interviews about such a personal part of my life, but when I started getting feedback and support from the MRKH community on a global scale, it made it worth it. Struggles only make you stronger” (Mader). Schultz has learned to embrace who she is and her “flaws.” She says, “I was blessed with a supportive family and as I got older I decided that being different was a beautiful thing and I just learned to embrace it” (Mader).
This past September, Schultz passed off her crown, but continues to be a voice and work with the Beautiful You MRKH Foundation. Recently, Schultz gained national recognition for using her voice toward an unheard of, not spoken about syndrome. She is an inspiration to many. Without her bringing a voice to this syndrome; many people would still be left in the dark. Schultz is one of the kindest, caring, very genuine, most thoughtful person anyone could meet. She is a role model to so many girls, young and old. Being Miss Michigan has opened so many doors up for her. In one week, Schultz will be going to Boston to be a guest speaker at a conference. She is taking the world by storm and each and every day she continues to make a change, making the world smaller for women with MRKH. Schultz showed the world what true beauty looks like.
Works Cited
"CMU Alum Jaclyn Schultz Crowned Miss Michigan USA." Central Michigan Life. N.p., n.d. Web. 03 Oct. 2013. <http://www.cm-life.com/2012/10/04/cmu-alumna-crowned-miss-michigan-usa/>.
"Information and Resources." Beautifulyoumrkh. N.p., n.d. Web. 13 Oct. 2013. <http://www.beautifulyoumrkh.org/Info.html>.
"Jaclyn Schultz." MISS UNIVERSE. N.p., n.d. Web. 03 Oct. 2013. <http://www.missuniverse.com/members/profile/656270>.
Mader, Brenna. "Cool New Music: Jonny Lang | Fight For My Soul Featuring Breaking In." Wander Lust and Glitter Dust. N.p., n.d. Web. 03 Oct. 2013. <http://www.wanderlustandglitterdust.com/page/3/>.
"2013 MISS USA - JACLYN SCHULTZ - MICHIGAN." YouTube. YouTube, 04 June 2013. Web. 04 Oct. 2013. <http://www.youtube.com/watch?v=KWYiy9VvLKI>.
Schultz, Jaclyn. Online interview. 4 Oct. 2013.
"The Empowerment of the Silent Sisterhood." The Empowerment of the Silent Sisterhood. N.p., n.d. Web. 03 Oct. 2013. <http://beautifulyoumrkh.wordpress.com/>.
"Wyandotte: Downriver's Jaclyn Schultz to Represent Michigan at Miss USA Competition on Sunday (SLIDESHOW & VIDEO) - Thenewsherald.com." The News Herald. N.p., n.d. Web. 03 Oct. 2013. <http://www.thenewsherald.com/articles/2013/06/12/news/doc51b786647dade584756678.txt>.
So very true! check out more quotes: http://bit.ly/18DirvJ
Everybody Check This Blog out if you haven't already! It's great and you get to hear/read what other Mrkh sisters say! It is encouraging and inspiring. It is so great if you are feeling lost, or struggling, but even if you are not, This blog is totally Worth your Time, and it's done by the AMAZING beautifulyoumrkh foundation! :)
Courage
Having courage is hard. Somedays it's like yea lets do this and other day's it like no. I hate speaking and saying answers in class, because I don't want to say the wrong thing, even if I am right. In Eng. Class we are reading this book called The Unlikely Disciple. It's like a christian book. The teacher is asking questions and I have an answer but am afraid to say my opinion and what I believe in.
I don't want to be judged, but yet, as a christian it is our mission to be a light for God. That is one thing that I struggle with and then I question myself. How am I really truly living for God? I come out of class like "man, I should've taken a risk and answer".
?
Today I feel kind of lost. In my child development class we are learning about pregnancy. At first the teacher was talking about tests you can take when you're pregnant to test the baby's genes and they sounded painful, but at that moment I forgot all about mrkh and was thinking to myself Idk if I would want to do those tests. Then I remembered, but at the moment it was great to forget and have that "fantasy of carrying a child". When I remembered then I start to feel confused a little and many questions pop up. Like if I chose a surrogate and wanted to get testing done for some reason, how would that work out?
Then periods and all that jazz is talked about and it made me realize how uneducated I am about all that stuff. When the teacher was talking about that stuff she said, "I always like to look at the guys faces" because they feel awkward. well... I kind of felt like a guy sitting in that room haha. All the girls are smiling like "yea I know this stuff and what it's like" and then there's me "pretend to know what's going on".
Everything is interesting though. Like when you are a baby the mesoderm stage during pregnancy helps form reproductive parts and 7 wks. into pregnancy is when the reproductive parts start to form. But also when I sit in that class so many questions start to pop up... Sitting through that class it was like "welcome to adulthood". It made me realize that I will have more of these occurrences happen to me as I get older. But even if I feel weird or awkward I just have to remind myself " hey stay positive", etc. etc. :)