i just rbed a post about something similar but. i need my white disabled to folks to be more aware of the privileges they have when navigating the healthcare system. every bit of medical ableism one can experience can be made even worse by being a poc. some of us can't threaten to report a doctor to the ethics board, or refuse care from healthcare workers who aren't masking, without jeopardizing our access to care in general or even our physical safety. we are more likely to be seen as drug seeking, or marked as noncompliant, or experience medical abuse and neglect. that's not to say these things don't happen to white disabled people, but i just think it's important to recognize how dangerous receiving medical care can be for disabled poc specifically. please keep this in mind when giving advice on navigating healthcare.
with all due respect, no it doesn't. this post is specifically about the challenges people of color experience in the healthcare system. yes queer people also experience discrimination at the hands of medical professionals, but that's not what this post is about. they're very different challenges. I'd appreciate it if white folks didn't try to derail conversations about and for people of color.
People like to pretend I will "get better" so they do not have to think about the deadly lie they are living. Abandoning disabled and high-risk people to preventable death is eugenics.
To clarify, this is NOT just an American issue -- think of the "pan" in pandemic.
The MSKCC Library
The People's CDC (weekly weather reports on COVID in the U.S.)
Image IDs available in Alt Text and written out below:
Image ID begins. A black and white cartoon comic titled Pandemic Year 4. This is panel 1. A boy with short hair — Joey, the author of the comic — is holding a Christmas wreath and handing it to his boyfriend, a boy with long hair and a beard, who is standing in a window while decorating. The text reads: This year, my boyfriend and I got fresh pine wreaths from the farmer’s market — our fist big Christmas decorations together!
Panel 2. A hand holds pine needles. Cartoon stink clouds radiate off of the pine needles. The text reads: I break pine needles between my fingers and it smells hideous. Pain shoots through my head.
Panel 3. Joey stands in front of a table on which there are various foods. He looks disgusted and is covering his nose and mouth with his hands. The text reads: This is how I have lived since my February 2020 COVID infection. COVID caused brain and nerve damage, making everything smell and taste like rot. The condition is called parosmia, and it has no cure. Eating is a nightmare.
Panel 4. Joey’s boyfriend, a taller boy with long hair and a beard, puts his hand on Joey’s shoulder. They are shown from behind and are both wearing backpacks and winter coats. The text reads: Last week, my boyfriend walked me home from work midday after I had a near-fainting episode. I wear a heart monitor full-time. Doctors say I’m “too young”.
Panel 5. Joey is shown from behind, sitting sadly and gazing out a window. The text reads: I’ve literally been isolated from the rest of the world for four years. One COVID infection destroyed my life, and I can’t risk another. How can I get you to understand? After becoming disabled by COVID at 19 years old, I have been completely shut off from the outside world.
Panel 6. Joey stands in between two maskless and anonymous figures. Joey looks uncomfortable and is crossing his arms and gazing at them. He is wearing a respirator mask and goggles. The figure on the right is holding a bag labeled “food Joey can’t eat”. The text reads: “Friends” and family who have seen the depth of my suffering for four years have stopped masking and can’t be bothered to care. Family Christmas meant that I had to reiterate daily that I would not and physically could not eat at restaurants.
Panel 7. A drawing of an open laptop, next to which lays an N95 mask. On the laptop, a headline from the Washington Post is displayed. The headline reads: Covid kills nearly 10,000 in a month as holidays fuel spread, WHO says. The comic text reads: This winter has been the 2nd highest peak of the pandemic, with at least 10,000 Americans dying of COVID in December. Playing pretend at “normalcy” is profoundly violent and deadly. Under the comic frame, a citation reads: The Washington Post, January 11, 2024. This is an undercount, as there is no more COVID tracking in the U.S.
Panel 8. A drawing of Joey gesturing at an educational chalk board with a pointer. He is wearing a respirator mask, goggles, and a sweater vest. The text reads: COVID is a virus that causes long-term damage to your organs and nervous system. It’s also a Biosafety Level 3 pathogen, like tuberculosis, meaning that is can be lethal upon inhalation and requires special and serious PPE in Laboratories. The Memorial Sloan Kettering Cancer Center has a digital library of research on COVID impacts. https://libguides.mskcc.org/CovidImpacts/Home
Panel 9. An anonymous figure behind an oration desk is trying to cover a pile of bones behind them. On the pile of bones is a flag that says: Just keep buying and working! The text reads: You are being led to enact violence on your community members by a government who is sacrificing you on the altar of capital. You should be terrified.
Panel 10. A drawing of Joey’s head from the side. he is wearing a respirator mask. The text reads: There is no neutrality in a mass-death and mass-disabling pandemic. Wear a mask or forever be complicit. The comic is dated February 3, 2024. Image ID ends.
I feel like nobody talks about the generational trauma of having a disabled parent who projects their internalized ableism onto their similarly disabled child.
Like just because you’re “worse off” than me doesn’t mean I don’t deserve accomodations!!!
Self destructive behavior pertaining to disability isn’t talking about enough
Forcing yourself to do activities that you know will hurt your body is bad!
Making yourself not use your mobility aid when you know you need it is bad!
Not taking your medicine because you want to get worse or just don’t care anymore is bad!!!!!
I think that mental illness can definitely manifest differently for disabled people. It’s not rlly talked about because this all stuff that ableds see as inspiring or us pushing through. It is just harmful behavior.
Since every single disabled person is or has been mentally ill this stuff is just seen as normal.
