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mistressmalicer

short king 🙏

#wizardmon #digimon #amazing art

the-jade-palace

Me teaching my friend about the different parts of fishing

the-jade-palace

not-freyja

Can everyone who makes video content do a Deaf bitch a favor? Watch your shit with the captions on and the sound off, and then do another round of editing to fix things including but not limited to:

Captions cover the spot on the screen you put the information I need

The dialogue is captioned but not the song you have playing that the dialogue is responding to

You only captioned the person on the screen, not the person off screen who is also talking

No captioning of critical sound effects (alarms, bells, dogs barking, etc)

Speakers are not labelled at moments where it is not clear on the screen who is talking.

Captions cover the spot on the screen that you put the information I need!

Other d/Deaf people welcome to add.

This post brought to you by the fifth video tutorial I could not follow because the bad, auto-generated captions covered what I was trying to watch today.

orteil42

given the current climate this pride especially i feel i must mention that i love my trans friends, i stand with trans people in the fight against transphobic legislation and those who would enforce it, and this blog is not a good place for you to be if you do not vibe with that

willgrahamscock

something that made me sit down and stare at my wall for an hour

just-your-average-cryptid

point of reference from an able-bodied person: standing in one place for an hour kinda makes my feet/legs hurt. longer than that is when it really hits but it takes an hour to get there.

if you are in pain within minutes or seconds, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

if you are in extreme pain, not just "ugh my feet ache" pain but "i am going to pass out" pain, that is not normal. that is a Symptom. poke your doctor into finding out what it is or connect with disabled and chronic pain groups.

I know some people try to rationalize as "well it's not excruciating compared to my baseline" and I am gently reminding you that the baseline is zero. zero is normal. this ^ is not. be kind to yourself.

junequeer

AN HOUR???????

just-your-average-cryptid

"walking for 15 minutes makes the bones in my calves hurt for 2 hours"

buddy... that's the Symptoms...

alpaca-clouds

... Wait, what?

I mean, I can walk just fine, but standing in one spot for like 15 to 20 minutes will leave me in pain for days.

That is... not normal?

willgrahamscock

I love how everyone is still asking hey so my symptoms are actually symptoms? Even if I feel only x amount of pain after x amount of time? BUDDY THE NORM IS FEELING MILD DISCOMFORT AT MOST AFTER STANDING FOR AN HOUR AND THEY RECOVER WITHIN A FEW HOURS TO A DAY

geekyoldlady

So, I talked to my doctor and she suggested weight loss drugs

So that didn’t help

What do I do now?

findingfeather

I mean ideally get a new doctor.

Meanwhile document the actual effect the pain/etc has on your life. Document how it impacts your ability to cook; your ability to clean; your ability to clean yourself; your ability to sleep; your ability to work; document all attempts to be more active and how the pain interferes with them. If you have to do something other than just go stand in the kitchen for ~1hr to cook a meal, that's something to write down; if you have to choose not to have a shower because it'll hurt, write that down. If the pain prevents you from going for a walk, write that down.

Every single time you make a decision about what you're doing based on the pain, you document that; every time you have to endure the pain for a necessary activity which then impacts what ELSE you can do, write that down too, with a direct connection.

(Warning: this will probably be depressing as all fuck and you will probably hate it. You are almost certainly ignoring the impact of pain on you way more than you think you are, and having to face it will feel bad in the short run. Very bad.)

And then you bring it either to your new doctor or if you MUST, to your current doctor, and you say: this is how the pain currently affects my quality of life. This is what I would be doing if I weren't prevented from doing it because of the pain.

Say that you would like to find the reason for this pain and you would like them to order relevant diagnostic tests. If they refuse, or hem and haw, ask them to document clearly in your records that you requested this and both that they refuse and their reasons for refusing.

If you must deal with the same doctor, document the concerns you have with the weight-loss drugs, and ask your doctor to be explicit about why she thinks that these risks are worth something that does not directly address your actual concerns. Ask why this is their first line treatment for the rest of what you've described, and why they are more concerned with pushing an overprescribed treatment than actually investigating the cause of your pain and addressing it appropriately based on an evidence-based diagnosis.

This isn't a guarantee, but it's part of the process.

findingfeather

…. Also yes, I AM serious that you should be able to be in the kitchen for about an hour, on your feet and doing Cooking Things, without pain and without needing Recovery Time, in order to make yourself dinner and if you CAN’T - if that long results in Pain or Dramatic Fatigue or extended recovery - that is a Symptom. A big symptom.

gregorvorbarra

A while ago, I started keeping a pain journal to log my chronic pain and other things, so that I could take it to my doctor’s appointments. I go into detail about it in this post if anyone is interested. My doctor is fantastic and actually listened to me and bothered to investigate my pain, but the pain journal was still a huge help in communicating my health issues clearly. I highly recommend logging your pain (and anything else you feel might be relevant).

Side note: I found the pain journal experience to be really enjoyable because I got to pull out my colorful pens and my cute stationery supplies and make something pretty every day. I decorated my notebook with stickers. I did have to face the way my pain was impacting me, but I got to do it in a fun and colorful way. It helped a lot.

vaspider

When I stopped being able to stand up without pain, it was because there was a slow-growing tumor crushing my spinal cord.

Don't ignore your fucking symptoms.

zhenya-grey

Fellow disabled people, please stop being ableist to each other. Please.

Disability is not a competition.

Suffering is not a competition.

Many of us will be unhappy with our disabilities.

Show compassion to those grieving what they lost due to acquired or progressing disabilities.

Show compassion to those born too disabled to ever do what they dream of doing.

queer-as-in-fuck-12

drug addicts deserve housing, food, water, and healthcare btw

pissvortex

Thank you for posting your tweets, I do not enjoy going there.

It’s really not a good or productive website to use at all but it’s my biggest foothold into relevancy because I know sometimes JD Vance sees my tweets telling him that his mom traded him for some pocket lint and a perc 20

pissvortex

Nobody is having fun on that website. One of the nazis who posted my address had a group of even more insane nazis post his birth certificate a couple of days later. It’s like the Abyss Watchers on there, just stupid chuds executing each other over and over out of some ritualized algorithm-induced compulsion. But for some reason the Vice President gets mad and starts twitter arguments with people in his replies. And one time the Iranians shot a ballistic missile at a target in Israel because a guy with an anime profile picture told them to. A japanese guy used the auto translate to call me names for calling the new japanese PM “female hitler” and the japanese government made me take my post down because I just responded with an image of the thing they used to kill Shinzo Abe. Cyberstalking and harassment is openly encouraged by the moderators. It’s the world’s public forum in the most despicable and honest sense of the term.

pissvortex

This is what I’m talking about man why is Hunter Biden name searching on twitter and replying to “Pissvortex”

#what a time to be alive

gulistan-blog

㋡🥀

colors of the sky.

#oh dip #that’s gorgeous #amazing art

allthecanadianpolitics

Breanne Kuffner said she’s devastated after the province announced changes to the Assured Income for the Severely Handicapped program.

Breanne Kuffner said she’s devastated after the province announced changes to the Assured Income for the Severely Handicapped (AISH) program. “I am so scared. I have cried so much,” said Kuffner, who has POTS, hypermobile Ehlers–Danlos syndrome, reactive hypoglycemia and endometriosis. She needs an IV every few days. Kuffner said she was excited when the federal government introduced the Canada Disability Benefit earlier this year, which provides $200 a month for low income Canadians with disabilities.

Tagging: @newsfromstolenland, @abpoli

#the federal government was like ‘have 200$ extra a month bc the economy sucks and you’re disabled’#and Alberta was like ‘I’ll take that and another 200$ a month also kthx😊’#so that’s where we’re at #the low income housing suppliment I found is not exempt from taxes anymore so I’m not even getting the full 200$ federally #but AISH is still deducting the full 200$ anyway and I cannot get a hold of anyone to correct it #so I’m doing amazing

allthecanadianpolitics

The premier said her government wants to ensure programs like Assured Income for the Severely Handicapped, or AISH, aren't "overly generous,

The province plans to move AISH recipients to a new program on July 1, which disability advocates say will mean a $200 monthly reduction in income. CBC Calgary asked Smith's office how many people have moved to Alberta to access AISH, but did not receive an answer by press time. Some disability advocates in Alberta are looking for clarity after Premier Danielle Smith said she wants to ensure people aren't moving to the province just to use its social programs. On Thursday, Smith said her government wants to ensure social supports aren't "overly generous" so people don't move to Alberta to take advantage of them. She said the province doesn't want to inadvertently create an incentive for people to move to Alberta to seek out the highest benefit. She argued this was a reason why Alberta included tighter eligibility requirements for seniors' benefits in last week's provincial budget, and why Alberta plans to make changes to its Assured Income for the Severely Handicapped (AISH) program.

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