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Redditch Advertiser coverage of Spoken Word Event

The advertiser have covered the event here. http://Advertiser

Awareness, promote awareness.

http://breakfasttree.com/autism-spoken-word-event-at-the-artrix

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Autism Spoken Word Event at the Artrix

Voices: Autism in Spokenword

Featuring Janine Booth, Tom Bowes aka ‘Autistic Genius’ and Bernadette Louise

An evening of poetry and spoken word including performances by those who are on and support people on the Autism Spectrum.

Performance Poet Janine Booth describes herself as “a Marxist, trade unionist, socialist-feminist, author, poet, speaker, tutor, former RMT Executive member, supporter…

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A piece to camera, desperate venting blog re NHS CP Fallout / Artrix Show

So i have been totally freaking out at the extent of the work and the emotional fall-out of having the artrix show Accused: An Autism Mother.

I had no choice but to vent, so i did something so unusual in my desperation, that i actually filmed a kind of blog piece. Eek.

I look dreadful, and i even get a bit teary, so that is how desperate i was to vent somehow, that vanity didn’t even set in…now…

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Get our voices heard: Fundraising

Dear all

I am on an Autism mission. I am crowdfunding for a Creative Public Engagement project. I am compiling the stories and the battles that need to be shared and desperately need to be heard by the public and by the Professionals. To do this i need a few things…fuel, coffee, printing, time and space. I need to maintain a presence, online and in person…and i need buy people tea, cake and the…

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ASD, Parenting & Self Preservation.

(via Get our voices heard: Fundraising)

Giving a shit about my kids wellbeing. Their future.

I think mothers forget that the children they see as seperate entities were once their own bodies. Being formed, carried and nurtured inside themselves. The nurturing, surely, should not end once the baby has exited the cervix, or once it's old enough to maintain its own body temperature, or once it can feed itself, go to the toilet itself or speak itself. Where is the line drawn between bodily function, nurture, instinct, education and love. At what point do we as mothers pass the batton of responsibilty to the next person? An ignorant grandparent, underqualified ill-equiped nursery, an over populated classroom? Who wrote the rule to say, this is what you have to do, this is what is best for your child, this is why "you're wrong and i'm right"? At what point did these people become priveledged enough to comment, let alone, look after your most precious possesion? At what point do they know what is best? At what point did they carry your child? So how can they policise on wellbeing, nurturing, education, when all they are interested in is gaining a few extra paye pounds, tax-whoring governments run by people who have never seen a nursery in their lives. More people absolving themselves from any major responsibilty, sharing the load between others (be it whinging amongst family members or passing the buck professional to professional). At what point did you say, i'll listen to what they say, i'll except it as true, i'll take anything they say as correct, obviously because they are in a position of power or weakly vague authority? At what point do you hold these people accountable if anything happens to your child once they're in their care? And who would you blame if something bad happened to your, precious, child? You already care less as they are already separated from you? from your womb, from your arms, from your home, from your thoughts? Even from your lives, forever? Trust strangers that much with your children, do you? No wonder the world is in disarray, an ugly un-caring place. Children are less child-like, growing up with less personality and far less people skills then ever before. Don't blame tv, mobile phones, social networking, computer consoles...technology in general. Blame yourselves for dumping your kids. Because someone else says so. It's ok. You've passed the batton of responsibilty. Your baby will be mid-thirties one day, in your lifetime. Is it so long ago that you carried them inside you, that they no longer matter? It's not your responsibilty. A mother to a baby, child, but not a teenager or an adult? Then you can't call yourself a parent, can you? I'll always be a parent. I will protect my children, every single day of my life, using every ounce of flesh, drop of blood and the last breath in my body. All theirs, for as long as i can survive life. My children. I am theirs. I am mommy. I am the breakfast tree.

#parenthood #childcare #mother #sahm #mothersathomematter #asd #policies

Prickish behaviour. It's time to reallocate brain space.

I find it amazing, that in this short life, people are so blinded by their own selfish need to feel important/special/useful/worthy, that the real shit that is in important gets ignored. Those that do in fact need help/support/love/kind words/respite/again, love, they don't get any of it. The people that struggle every single day with the increasing difficulties they continue to live through, they continue to put a brave face on. Every single day. But it's those kind of people who don't ask for your approval, it's those people whose life as they know it could be crumbling down around them and no one, truly, no one cares enough to ask and help. And actually listen. Well the news is, if you don't genuinely care enough, to well, care, then these people genuinely don't want your vague intentions.

#autism #sensory #asd #spd #family

This thing in a blog i saw on Twitter 'special needs' or what, families know nothing.

Firstly, the umbrella term ‘Special Needs’ disturbs me somewhat. I know our children are special, they have needs. All children are and do. But my son is ‘extra’. He needs extra care and constant attention. It is a need, it is i suppose special. But the term is crap. It has so much stigma attached to it. It’s old fashioned. We’ve discussed this at home, and find the term actually quite offensive. It lumps all kids with additional care requirements in to one big catagory. ‘Special Needs’ does not in the slightest bit begin to acknowledge the issues my son has, and what we deal with every day. The term often conjures up images of severely disabled children, with difficulties that are visual, obvious, therefore understood. This is not the case with my son, as with many children in his position. He has not got any physical disability to speak of, yet his mind effects him physically. It’s all out of control at times. He acts like a maniac, like a naughty boy, like a child without discipline. This is just one aspect of how his unseen mind does become a physical burden to him. He tires but can not stop. ‘Relax’ is something alien to him and sleep is a battle we struggled with incredibly, we fought and thankfully for the time-being, we won. This also is his mind affecting him physically. As too is the nail cutting issue, pooing issue and eating issue. All aspects of my boys mind that we have no mental control over, but it affects him physically.

None of which are seen, acknowledged or understood by people who do and/or don’t know us as a family.

It’s the people who do know us that hurt us the most when it comes to my son.

So the term Special Needs just doesn ‘t cut it. And my son has got very specific needs, extra care needs and most of all additional love, understanding, patience requirements if anything.

So back to this blog i saw retweeted by sensory processing twitter:

http://www.friendshipcircle.org/blog/2012/07/26/10-hurtful-comments-from-relatives-about-your-special-needs-child/

Only two of these were true in our case, i’ll go in to more detail here soon when i complete this blog entry, right now i have got something else to do. Can’t take this much time to indulge in my own whittering or ranting when we have boys to look after…one of them with ‘special needs’ and one who is a tiny baby who has to be guarded to the max for brotherly love can be damaging if left in the hands of a ‘special’ two year old.

New blog, first post, perhaps i'll commit to this one.

I was going to try and start this writing malarky as it’s something i’m told i’m ok at. The only access to any kind of computer software being my phone, and only access to actual people being online, this seemes like the best solution. I can’t get out my laptop, couldn’t dare own a desktop. My son has some issues. It means i’m stuck reaching out from my heavy-as-fck iphone 4, that is encased in a bullet proof case for fear of breakage (of course it is in fact transformed in to a weapon). My son likes to bash things and smash things, well, it’s not that he likes to. He needs to. As well as many more things he HAS to do, i need to keep my eyes on him at all times. I’ve now got to cut short this first blog, as he’s sitting below me, by the arm of the sofa, where i cannot see him. I know he has something in his mouth he shouldn’t. But because he needs to bite and chew, i can not tell him off. It’s a fcking nightmare because he’ll eventually choke on something. Hence the bye bye for now so i can watch him closely. I know he’s done something he shouldn’t because it has been quiet for a couple minutes.

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