Brenda The Writer

a half nun in search of humor

[dankmemeuniversity]

[brendathewriter]

Ack! Get out of my head!! 😆

[brendathewriter]

....And then the wires to the TENS unit pads fell into the toilet at appointment #3 of 4 for the day...

#why I'm late for my appointment

#please don't 3 strikes me

#Complexspoonie

#why I carry an 18lb supplies bag

[brendathewriter]

This little guy is just too cute to put away just because it's not winter anymore!

God, please let the green tea help me wake up!

[brendathewriter]

Just another day I had planned to do all kinds of things, but woke up with more fatigue than usual and abdominal cramping,.. so I've gotten almost nothing done today except watching a few episodes of repeats of NCIS...

[allthatispeculiar]

[asher312]

Plot twist

Lost the main pathway

Stress~

[brendathewriter]

This is what DMH funded Community Mental Health agencies are like in New Hampshire. Yeah it's a beautiful forest of recovery if you can survive the gatekeeping and get inside!

[brendathewriter]

Born January 5, 2025

Height 18"

Weight 6lbs

(Laya Bél means "She is beautiful" in Haitian Creole)

[brendathewriter]

Business Insider: Gen Z is flocking to the one social media platform millennials didn't ruin.

Wow, I've been here long enough I'm cool again? 😆

Gen Z is flocking to the one social media platform millennials didn't ruin

Sick of Musk and Zuckerberg, Zoomers have found a new place to network: Tumblr.

[brendathewriter]

#MusicIsLife

#MusicTherapy

Assorted shots from the Open Mic Benefit to end human trafficking at Freedom Care, just a short walk from the University of NH campus in Durham, NH USA

[brendathewriter]

1/29/25

Today is Wednesday, January 29th of the Year 2025, although I suspect that history will remember it as Day 10. I also hope that someday saying “It was on Day 10” will be enough to cause American hearts to recall how close we came to losing our great nation, and pause and say a prayer of gratitude for heroes and saints that will be studied in schools. But I also know that there is still a chance…

View On WordPress

[brendathewriter]

It's my 9 year anniversary on Tumblr 🥳

Glad we made it this far. Never imagined being around this long, to be honest.

[spooniestrong]

[Text id:

"“Do I want to take pain medications? The simple answer is no. Just like I don’t want to take any of the medications I am prescribed. But equally I know that those same drugs keep me functioning. That without them I would not be able to write this post, or stand, or walk the few steps to my toilet. Similarly, adequate pain control gives me the ability to drive 3 hours to the city for my medical appointments and to sit on the couch with my family without tears. But access is complex. And there is a pervasive idea of the drug-seeker, seen in every patient who has chronic pain. That those who simply don’t get over pain and require ongoing pharmaceutical management are weak. Friends who have used pain clinics tell stories of dismissal and blame. That they are not trying hard enough when they don’t recover, when I know the lengths they have gone to to try and alleviate their pain. And compassionate pain doctors who become the exception not the rule.”

- "When ‘Suck it Up’ Becomes the Only Pain Treatment You Are Offered" (via chronic-illness-support ) ]

[brendathewriter]

Amen. Pain control is so important yet so unavailable to so many of us complex spoonies!

[brendathewriter]

Wheelchair Woes

Broken cement & cobblestone sidewalks aren't very #spoonie friendly, so my nice cool 14 mile ride in the early morning landed me instead at the local ER for a sick Permobile wheelchair.

Using the chapel/meditation room as a repair bay because in order to reconnect the one battery connector that had gotten bumped loose, I had to practically take the entire tear apart. This will not surprise any other wheelchair users as power wheelchairs and notorious for being difficult to maintain and repair.

What amused me was realizing that there is a heavier duty fully Steel bracket holding on my luggage rack which is just big enough and mind to hold five cans of beer.

As opposed to a whole bunch of the parts on the wheelchair, including said luggage rack, that are made of plastic that vibrates like crazy if you're not on a completely smooth roadway.

*sigh*

Priorities, I guess. Gotta be able to travel with your alcohol, right?

😂😂😂

[brendathewriter]

The progression of my taste in music to deal with stress changed over time....from blues to jazz to rock to rap to country to techno to viking folk to heavy to metal to, of course, dark wave was a direct reflection of the crumbling of the society of end stage American capitalism....

[brendathewriter]

Out Of Spoons

Spoon Depletion

https://www.tumblr.com/fibro-memes/741144825549701120?source=share You know you are tired when you don’t even have the energy to screenshot the cute graphic to link it to the tumbler you found it at. Can I mention how great it is that Tumblr survived the pandemic and is just as bizarre as it’s ever been?

View On WordPress

[brendathewriter]

Yeah one of the ways you can keep an eye on the more dysfunctional parts of America without completely dipping into the cesspool that is Trump's truth Channel is by staying on Twitter.

Granted, it's another cesspool thanks to Elon, but it does provide me with massive amounts of hysterically funny things to write about. Of course trolls and thoughts abound and this one had a single tweet tagging a bunch of us with the single word "engage".

It's been a long painful couple of weeks, and my ...shall we say unusual sense of warped humor erupted...

Yup, I projectile tumblr'd all over Elon's sandbox.

And it felt awesome!

[brendathewriter]

The Bipartisan Misstep

ABC News: House passes bipartisan tax bill that would expand child tax credit “It includes new low-income housing tax credits..” Hello?! Sorry, but somehow I feel this is going to be far short of what is needed in the US housing crisis. The section 8 wait-list in New Hampshire is 7 to 10 years, and in Strafford County in 2023 only 1 new development (Easter Seals in Rochester) had any new…

View On WordPress

[brendathewriter]

I experience a big difference between fatigue tiredness and lassitude.

Tiredness is that mild sensation that your batteries are running low, that yawn interrupts your afternoon on a busy day, or that feeling of being semi asleep when you first wake up if you haven't been able to get enough rest.

Fatigue is deeper and stronger. When you're tired you may yawn, or feel a need to stretch, or feel a little bit laggy like you are walking a little bit in slow motion. Fatigue on the other hand is feeling like you are expending a huge amount of effort keep doing whatever you're doing, to be yawning and to have eyes drooping and to have that headache that tells you you are beyond tired. When I experience fatigue, I'll frequently say out loud that all I want is to lay down and take a short nap.

The unique kind of fatigue from fibromyalgia is usually easiest to describe to able-bodied people by having them call the last time they were coming down with the flu and how no matter how much sleep you got you just kept getting sicker. Fibromyalgia fatigue to me comes in waves and it can be so distracting to fight against it, and keep doing the things that I want or need to do. It is possible to push through fibromyalgia fatigue, but no one who has lived with that disease would ever recommend it because it saps as much of your mental energy, your cognitive abilities, and your mental health abilities t as does your body physically.

Lassitude, especially as I define it in regards to multiple sclerosis, is truly evil and heartbreaking. When lassitude hits, it is like a wall of a fatigue so profound that your knees begin to buckle, your eyes start closing, and it literally takes every ounce of energy you have left in your body to force yourself to stay awake even for a few more seconds. When lassitude hits, I usually must rely on my wheelchair or whatever surface I'm resting on to support me because it almost always makes me weak as well as exhausted.