[spoonful116]

Getting diagnosed with a chronic condition is easy! Just follow these steps:

Have symptoms

Schedule doctor visit

Wait indefinitely

Repeat

[chelseaisdisabled]

is ableism from other disabled people a thing?

[chelseaisdisabled]

i saw a video of a new wheelchair that can climb stairs but it looks very uncomfortable for the users so i just said i wish instead of doing all this things were just accessible to everyone and someone had the audacity to say “disabled people are such whiners” like right how dare we ask to access spaces we need to be in

[crippled-peeper]

“If I had a broken spine people would take me seriously!!!” no they wouldn’t. they would glare at you in public and stare at you and ask you invasive questions and harass you. they would call you a faker. they would scream at you.

shut the actual fuck up you lying ableist fucking assholes !!!! YOU DONT KNOW WHAT THIS IS LIKE LMAO

[yearofthefishes]

they absolutely do not. my life got drastically worse when i broke my spine. doctors looked at me in the eyes and said "you have no spinal fractures" despite clear and undeniable evidence of them on an MRI. i had a near death experience from 10/10 pain and i still wasnt believed and was denied the medical care i needed. it was horrible and traumatizing.

please respect our autonomy and our experiences by not co-opting them and speaking for us, as if you have experienced it when you certainly have it. it feels just like when the doctors and nurses would roll their eyes at my pain ratings. its disbelieving my lived experience, which is ableist, and not ok.

[chelseaisdisabled]

Yep. I literally couldn’t walk at all and the doctor that did the nerve conduction study on me and found damaged nerves just shrugged her shoulders and said well you’re not paralyzed hehe and sent me home with absolutely no fucking help. When I visited a different neurologist she spent 15 minutes with me and told me, “just walk” like omg I can’t believe I didn’t think of that. Idk why I’ve been sitting in this wheelchair the whole time!! Genius

[theecrybaby]

The ableist comments on kickstarter campaigns got me in my feelings tonight

[fallenstarcat]

“well it’s good your tests came back normal!”

no. it’s not.

a normal test result doesn’t mean i don’t have symptoms anymore. it just means we’re no closer to an explanation.

i’m still struggling. my symptoms are still getting worse. we just don’t know why, also meaning they don’t take me seriously.

a normal test result is not a a happy thing when disabled.

[snorlax-and-co]

Chronic illness: the whack-a-mole game you never win. As soon as one symptom improves another one pops up.

[disabled-dionysus]

[so-over-ableism]

[ID: a tweet by @/graphickat that says “When people say “they never use their disability as an excuse” it makes me furious.

Stating my reality is not an excuse. My body has physical limitations that are not negotiable.

When I tell you I can’t do something, it’s not an excuse. It’s not a matter of positivity. It’s truth.

end ID]

[cripinpain]

you ever do an activity and go “i’m gonna regret doing this” while doing it, knowing you’ll have a flare up next day

[thesecretlifeofmecfs]

Pain severity scale for chronic pain patients!

I always struggle with naming my pain #. After going through a couple occasions of 10/10 pain, I compare everything else to it. Even if my pain is very distressing there's this strange resistance/guilt to ever naming my pain above a 3 or 4.

[accessories-not-included]

White square with the words, "Oh, you have an incurable illness? You should try...?" Beneath these words are two photos side by side. One of the left is a drawn diagram of a person attempting to insert earplugs into their ear. The one on the right is the same diagram of the person fully inserting the ear plug into their ear.

[chelseaisdisabled]

sometimes it feels so hard to try to love my body when all it does is hurt me

[spongebob-autisticquestions]

[vidapuppen]

What was the worst physical pain of your life?

Accident/Injury

Surgical

Medication Reaction

Body Created Something (gallstone, kidney stone, appendicitis, etc)

Labor

Other (please say what in tags)

Voting ended onMar 17, 2023

[chelseaisdisabled]

i went out with my partner yesterday and i just thought about how many sometimes small things us disabled people have to deal with ALL THE TIME. like we're just sitting and eating you'd think that's such a nice, easy, relaxing thing but just for me to lean forward to put food into my mouth had me in pain every bite. such a simple thing as eating and i still can't relax. there's so much we deal with all the time

[wishful-seeker]

I think the biggest misconception abled people have about disabled people's pain is that it feels like normal pain everyone has felt before, and that you can get used to it and grow a tolerance like normal pain.

ITS NOT LIKE THAT

Here's an example, when I was 12 I got a daith piercing in my ear, It was the worst pain I had ever felt. I felt like someone was trying to crush my skull.

Then I became disabled, And that became the worst pain I ever felt. My joints felt like they were literally on fire almost constantly for over 3 years. It NEVER felt less painful.

Last year I had to get my daith repierced, it felt like a tiny pinch.

The constant chronic pain I feel has increased my tolerance for normal pain, but you cannot increase tolerance for chronic pain. It is always excruciating at worst, very uncomfortable at best, the pain never hurts less. You just learn how to accept it and strengthen your mind enough to think past the pain. YOU CANNOT GET USED TO CHRONIC PAIN. That's why we can't "push through it", or "toughen up". It's not normal pain, your brain is literally confused and forces you to feel pain because it thinks you're extremely injured.

Imagine burning your arm on something reeaaally hot, now imagine the burning sensation you feel is inside your muscles and joints and not on the surface on your skin, now imagine feeling that 24/7 and you can't get rid of it. That's what I'm dealing with man. Do you abled people get it now??

[disabled-dyke]

able bodied people will decide you’re not disabled over *checks notes* the shoes you wear

[chelseaisdisabled]

im not kidding i was told i cant be disabled bc i bought a bathing suit