cripplecute @cripplecute - Tumblr Blog

me: i get back in bed

So, India is dying.

Look, I know a good number of you are from the US and things aren't amazing there either, but my country is literally on the brink of collapse. So I'd love it if we could talk about that for a minute.

If you can't do anything else, please just read and reblog.

mystic-sapphire

The nation's healthcare system has completely collapsed. Hospital Beds are in shortage. The hospitals are unable to provide oxygen to their patients. Medicines are unavailable in hospitals as well as in markets. Vaccines are in short supply. Even infected Healthcare workers are unable to get treatment in the hospitals they are employed at due to shortage of basic Healthcare needs.

Even if beds are available, the hospitals are telling patients to arrange for their own medicines. People have been running around and trying to arrange life saving drugs for their loved ones but to no avail. Doses come to market in hundreds while their demand is in thousands. My own family has been running around trying to procure them for my grandmother who has been admitted to the hospital.

Hospitals have been making frantic S.O.S calls for oxygen but even then they aren't recieveing it. Patients are left gasping for oxygen. Yesterday 25 critical Covid patients lost their lives at a major hospital in our nation's Capital due to shortage of high flow oxygen. The same situation is in many other states and cities. People are being forced to get oxygen on roads. Many hospitals don't have oxygen and are asking their patients to arrange it from alternate sources themselves.

Each day we wake up to a new record high in the number of daily cases and the number of deaths due to Covid-19. Yesterday it was 346,786 new cases and 2,624 deaths. Crematoriums have been burning 24/7 and helpless people are watching their loved ones die.

Does our government have a proper plan to deal with this situation? No they don't.

What has our central government been doing? NOTHING. They have been busy trying to win state elections for their party by conducting maskless rallies of hundreds giving no mind to Covid protocols and social distancing. Rather than trying to boost our Healthcare infrastructure during the past year they have been busy trying to defeat other parties in state elections. OUR GOVERNMENT HAS SUCCESSFULLY MANAGED TO WASTE AN ENTIRE CRUCIAL YEAR WHEN THEY COULD INCREASE OUR NATION'S HEALTHCARE CAPABILITIES. Had they actually done what they were supposed to in terms of healthcare, we would not be in this situation. You can count on them when it comes to conducting press conferences to put opposition parties and their leaders down. BUT YOU CAN'T COUNT ON THEM TO DO THEIR JOBS

We have triple-mutant variant of the virus in our country and our government doesn't have a centralized plan to combat the situation. Our country's government has failed us. Now they are trying to put pressure on state governments to deal with the situation.

This is the worst health-care crisis in the history of our nation and our government is doing nothing.

PLEASE HELP SPREAD THE WORD. IF YOU CAN PLEASE DONATE.

ablesisters-remaking-deactivate

i think tumblr isn’t ready for this take yet but, while solidarity between the mentally ill/neurodivergent and physically disabled communities is important, we face very different kinds of ableism and you really need to stop hijacking posts about issues or positivity related to disability and making it about mental health

ablesisters-remaking-deactivate

like it seems to be a trend especially in online spaces like tumblr/twitter and it’s tiring - someone can make a post about, say, being in constant physical pain and someone will try to make it about depression as if the two are remotely comparable. it just feels bad man. let us talk about our issues or spread uplifting messages about the struggles we face without making it about yourselves

ablesisters-remaking-deactivate

BASICALLY yeah

recoveryform

Don’t believe us? See how spoon theory was taken over by able bodied mentally ill people. Like I appreciate its important to have language for your struggles but comparing low mood apathy for an example to being in so much pain you collapse and cannot physically move? Being insomniac compared to the physical pain not letting you sleep? Being unable to cook because your attention keeps dropping off and you accidentally burn it/cut yourself vs being unable to cook because the pan will suddenly become to heavy as your shoulder spontaneously dislocates or you literally can’t stop your hands trembling to safely cut or put things in the oven ect. Not helpful! Trust me, I am both neurodivergent, depressed and anxious, and have PTSD from pretty extreem physical abuse as a child that lead to some of my physical disabilities too. And none of that is easy, or even easier than being physically disabled. But it is a DIFFERENT kind of difficulty. Taking language away from physically disabled/ill people or watering it down via appropriation is not harmless.

supergiraffes-archive-blog

what you need to do if i have a convulsive seizure

I was just complaining to my friend that my oldest sister didn’t know what to do the last time I had a convulsive seizure, and I ended up injured because of it. And my friend said that actually, they don’t know what to do when they see someone have a convulsive seizure, either.

So I thought I’d explain it to you. I’m not a doctor, and I have no medical training and not everything here will apply to everyone who has convulsive seizures, these are just the things that apply to me, and when in doubt, call an ambulance.

Here’s what you do:

Look around. Am I lying in the middle of a busy street or on the railroad tracks, or somewhere else dangerous, like in the bathtub? If yes, drag me to somewhere where I am not in imminent danger of being hit by a truck or drowning.

Am I somewhere safe, but lying near dangerous things like fire or knives or broken glass or pans of boiling water or anything that can hurt me? Move the dangerous things away from me.

My body will be convulsing. That means my head and my arms and my legs are rapidly hitting the ground. Put something soft underneath my head. If there’s a cushion right there, perfect. If not, wad up your coat or shove your shopping bag under my head. If there’s nothing immediately to hand that would take you more than a few seconds to grab, stick your feet underneath my head, it’ll work.

Am I wearing anything around my neck, like a tight collar, or a necktie, or a choker? Loosen it, so my airway is clear.

Don’t restrict my movements - don’t try to hold my arms and legs down. You’ve already moved all the dangerous things away from me, and cushioned my head, so don’t hold me down, unless it is necessary to keep me from doing serious harm.

Don’t put anything in my mouth. A lot of people think you need to stick your fingers or a spoon or something into the person’s mouth to prevent them choking on their tongue. Don’t do this.

Try to make a note of the time the seizure first started. If the seizure lasts for longer than five minutes, call an ambulance.

When the convulsing/jerking has stopped, roll me onto my side. If you know what the recovery position is, put me in the recovery position, if you don’t, just roll me onto my side, and check my airway. If I’m not breathing, or I’m having trouble breathing, call an ambulance.

It seems to be instinctive to help someone get back to their feet as soon as the seizure is over. Don’t do this with me. After a seizure, I’m in something called a post-ictal state. It makes me very, very confused, and lying on the ground or sitting somewhere soft is the safest place for me. If you pull me to my feet while I’m still this confused, I will walk directly into traffic or put my hand on a hot stove because I won’t know where I am, or what’s happening, and often I won’t be able to see at all for a few minutes. Keep me somewhere safe until I’ve fully recovered.

If I have another seizure before I’ve fully recovered from the earlier one, call an ambulance.

If you think I might be hurt, or you’re confused or not sure about what to do, call an ambulance.

That’s all there is to it. Make sure I’m not in immediate physical danger; cushion my head (but don’t restrain it); when the jerking stops, roll me onto my side and check my airway; keep me somewhere safe until I’m fully recovered, and if the seizure lasts a long time, or I have a second one, or you aren’t sure what to do or you think I might be hurt, call an ambulance. That’s it. It’s not hard, and I promise you can do this.

part-time-pessimist

THIS THIS THIS The last time I had a convulsive seizure in public, somebody held my arms down and both shoulders dislocated

romythe

Also it’s a myth that peope can swallow their tongues.

drbibliophile

I am a doctor and I approve this message.

adhd-vibes

adhd moods

*stands up* *sits down* *gets up again* *walks in a circle* *stands up on chair*

apparently, “yesterday” was actually four days ago

apparently, “four days ago” as actually yesterday

I’m not sure if i just walked away in the middle of that conversation or ended it like a normal person because i can’t remember what happened

ok i’ve found my phone, keys, and wallet! …..where is my phone?

wait–did i just completely interrupt this person or was there a pause? i don’t remember

everyone hates me

i know you introduced yourself to me 3 times but i cannot remember your name i am so sorry

*sets 17 alarms* *is still late*

*successfully accomplishes one (1) task or gets someplace on time for once* i am a fraud. clearly i do not have adhd and am just faking for attention :’(

procrastinates to initiate Hyperfocus™️

error: Hyperfocus™️ unavailable because the project is still boring and the time pressure isn’t enough to make it interesting this time

godlessondheimite

there’s a difference between “being canceled” and “facing consequences” but there’s also a fine line between “facing consequences” and “deincentivizing growth and change” and i think that needs to be grappled with more. i’m not saying all mistakes need to be forgiven by everyone, but people who make mistakes are people, and if it becomes clear that not only will they will never be forgiven for their past, but that they will also be continually punished, then it’s a normal human response to grow frustrated and stop trying, and the holier-than-thou response of “well if they were really sorry, they would willingly accept all the punishments we throw their way” is stupid. what does pulling receipts up from 20 years ago do? who do these “gotcha” moments help?

woman-respecter

it also isolates people and makes them more likely to join extremist and reactionary groups. connection and acceptance is a fundamental human need. so if someone feels cast out of their social circles because of something that they are told is irredeemable, they are likely to look for a group that will accept or even encourage that behavior. by holding people to impossible standards, you may be unintentionally radicalizing them

godlessondheimite

So the vast majority of responses has been supportive but I’d still like to clarify (while reblogging @woman-respecter‘s great addition) that I’m referring to people who are actually remorseful and trying to change. I’m not recommending embracing unrepentant Nazis in the hopes that they will change!

I’m referring to dredged up jokes from 10 years ago, when edgelord humor was at its peak, that has been accompanied by changed behavior; careless or outdated wording about sensitive topics; perspectives that needed to be unlearned.

My point is that everyone’s threshold for acceptable behavior is different; however, it seems that when someone does something wrong, the only acceptable recourse is to never have done the wrong thing in the first place. This is not sustainable. (Obviously people who are directly wronged by someone’s actions have a different relationship to the harm than, say, someone who found out about it trending on Twitter.

I saw someone in the notes say “This excludes celebrities,” which is also incredibly misguided. It’s mostly celebrities who are getting this treatment and it’s mostly celebrities who have the platform to show growth and change. You see articles about celebrities getting canceled, the behaviors that caused the cancelation, and the responses to said behavior and cancellation; you don’t (as often) see articles about your high school bully or your annoying coworker getting canceled, their public apologies, and their path to forgiveness.

And at the end of the day, if you simply don’t like a person, that’s fine, there are lots of people I don’t like and never will, with or without moral justification, and I, personally, am trying to lean into “without moral justification” because morality is being used as a competition. Who can critique an apology the best? Who can unpack all the layers of outrage and act the most indignant? Who can dig up the worst tweets from the longest time ago? Who can escalate the inciting incident to the highest extreme?

Anyway some notes mention the distinction that you’re not obligated to forgive a person but do you need to actively impede their ability to change? And I think that’s a good question to ask: Do I truly believe this behavior is so heinous that it indicates a person is incapable of changing; if they are given an opportunity to move forward from this incident, are they actually likely to cause harm; are my standards reachable and where are my standards coming from; and am I personally just delighting in another person’s failure, or am I actually helping by contributing to this conversation?

catsbeaversandducks

S C R E M

Photo via Lee Henstock

indiacohen-deactivated20231214

There seems to be an overwhelming idea that if you have an ongoing debilitating pain disorder, that there is an obligation to somehow fight on despite it. I have fibromyalgia and it simply doesn’t work like that. If you push yourself harder than your body feels capable there is a knock on effect that can leave you unable to get out of bed for days. I believe that this ‘fight’ exists in the lexicon because of the pressure applied by non chronic pain sufferers to justify an invisible illness. There seems to be some expectation that you should prove to them that you have undertaken some Herculean effort to justify your exhaustion, pain and inability to ‘do’.

Well I say don’t do it. If non sufferers want an opinion on it, it is their responsibility to educate themselves, not yours to satisfy their sense of entitlement.

youngchronicpain

I don’t think able bodied people realize how lucky they are to live in a world surrounded by people they can relate to. They can talk to friends and family that have likely gone through similar things and actually get help. When I have a problem I don’t even go to other people anymore because I know they will 1) misunderstand me and 2) I will have to spend a ton of time and energy explaining myself- only to have them give advice that is way off base.

agnes-is-ari

Literally it’s so exhausting to have to figure out everything your own, ableds don’t understand how alienating it is to never be able to discuss problems with friends when you’re going through them. It’s only when you’ve already solved a problem that you can speak without getting shitty advice you didn’t ask for, and even then you’ll just get confused and mildly horrified looks.

lifewithchronicpain

I told my mom I was exhausted a little while ago and she said something like “don’t know how you get tired after doing nothing” and I didn’t respond because I was too fucking tired, but like nobody understands how my body is never doing nothing. It’s constantly sending off alarms, preparing for the worst, and fighting to remain at homeostasis. Never mind I have to take drowsiness inducing drugs, but yeah can’t see why doing nothing would make me so exhausted. 🤷‍♀️

pomsephone

Reasons a person who regularly uses a mobility aid might not be using them at any given time:

It is broken and they don’t have a choice

They have conducted a risk/benefit analysis and realized it would be more work to bring it (non-accessible venue, not going too far, no extra baggage to carry)

They cannot transport it properly

They are with a trusted person who can help them if they need it

A unique, short-term injury prevents mobility aid use

They Ubered or drove in and got to cut the commute

They started a new medication that allows them more freedom

They are scared of how people may judge them for their physical attributes (overweight, “looking healthy”)

They are with someone that restricts access to their mobility aid, or makes them feel unsafe using it

They are going to an interview and don’t want to disclose their disability

Their physical therapy regimen requires some unassisted exercise and this was the only suitable time

They are having a “good” day

and I cannot stress this enough

They are having a bad day and don’t care if they get hurt because honestly mobility aids are exhausting not only because they require work to use most of the time, but because there is a constant emotional, mental, and physical impact from using it. Sometimes, even if they know it’s not the best decision to make, they’d rather not have people stare at them and give unwanted advice or commentary on their every decision. So maybe just leave them alone, because it’s none of your business anyway.

tiktoksthataregood-ish

carrionthird

"Stop scrolling and please help me spread the word, because if I've landed on your page you're most likely either a black woman or someone who cares about black women and the simple phrase I'm about to share could help save a black woman's life.

Doctors are to black women what police officers are to black men. That may seem controversial but I believe it to be true and I speak from personal experience.

If you've seen this TikTok you know that a 2016 study showed that 50% of medical students and residents thought that black people couldn't feel pain the same as white people.

And we learned from this video that because of a 1999 study, to this day, there's a black correction factor for the creatinin levels in black people's kidneys, meaning we're less likely to recieve a kidney transplant if needed.

So if you go to a doctor, feel you aren't getting proper treatment or they refuse the treatment you've requested, say to them the following:

I will need you to document on record that you are refusing the treatment (or medicine) I've requested, and the reason you are doing so."

dovewithscales

This works. I have used it in other situations. If medical staff have to document and take responsibility and be on the hook legally for doing shady shit they behave much differently.

If you weren’t already going to spread this advice because black women are at risk, then spread it because it’s applicable to everyone else as well, including you reading this.

But particularly women, and especially black women.

crps-chronicpain-ptsd

Daily affirmation

You are not unreliable - your health is.

Chronic pain problems •

creek-cryptid-deluxe

Oh look, it's me.

More people need to understand this. My hips & knees are in constant stabbing pain. Unless I physically cannot put weight on them, I will still be doing stuff because life continues & shit needs to get done.

Actually, realistically, even if my leg won't bear weight, I find a way around it to get shit done.

This is part of why I think most pain scales are absurd. I found one at my pain management office that doesn't base the rating on physical activity, but on how much it invades your thoughts. They understand that I (and a lot of chronic pain patients) can physically function with high pain levels because we have to.

So the question for the scale becomes, is the pain just background noise? Does it intrude into active thoughts? Is the intrusion only when you do certain stuff, at random times, or constantly? Is it making it harder to focus than normal? Making it a bit tough to articulate in conversations? Is it overwhelming all other thoughts?

These are the types of questions that should be asked when dealing with a chronic pain patient in any setting. Doctors, nurses, and emergency room staff should be taught this & adjust their line of questioning if dealing with a patient who has a chronic pain condition.

Additionally, it should be specified as to if they are questioning a specific or new pain or if they are questioning overall day to day pain. If I go into my doctor with a migraine, obviously my answers will be specifically about the migraine. When I go to my monthly pain appointment, we are talking about my condition over the last month and then specifically my condition that day.

When you have sustained high levels of pain, you develop coping skills to deal with it because it's unacceptable to just lay down crying all the time. This is also poorly understood.

Example: I went to the ER because I had suspected that a fall had resulted in some sort of fracture or tear in my hip. It was more swollen than a fall usually caused, was discolored, & while I could put a bit of weight on it while heavily leaning on my cane, doing so for more than 5 minutes made me vomit. I was told that wasn't possible because if it was broken at all or even slightly out of place, I'd be sobbing & not putting any weight on it. I reminded them that I have vEDS with very unstable hips & that I'd broken every bone in the top of my foot multiple times without even knowing until I came in because of swelling, walking on it for a day or two beforehand. They looked skeptical. So I slid my other hip & my shoulder out of socket, ever so slightly but still noticeably. They still looked skeptical but said they'd do xrays.

Later a different nurse came in & asked how I managed a small hip fracture at my age. She remarked upon how well I handled the pain & asked if I had a chronic issue. I explained & she nodded, saying "yep. That'll do it."

We need more education about chronic pain. The impact it has on our bodies, our ability to cope, our ability to function, and our cognitive health/function. More studies need to be done about the short term and long term impact. Because having been in some level of pain for as long as I can remember, I assure you that there certainly is an impact. (RIP my photographic memory)

hauntedhearse

I made this meme to represent how it feels dealing with chronic illness. ∞

librarycards

[id: meme in which a mama possum clings to a log with 6 baby possums on her back. the mama possum is labeled “me” and the 6 babies are labeled “my health conditions”]

brainweirdkohai

someone: hey how are you

me: moderate to severe

positivepatton

I don’t know who needs to hear this but you’re neither lazy nor useless, fatigue is a symptom of your illness(es) and it’s completely reasonable that a fatigued person would struggle with the things you’re struggling with

thefibrodiaries

disabled people buying cute mobility aids, pill boxes, joint braces, etc. are NOT just buying them as a fashion accessory. we need that shit and if we have the option to buy an aid that is pretty as well as practical to make us feel a little better about needing them in the first place then we have every right to use them without being judged for it.

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