The Crohnie Journal @crohnie25 - Tumblr Blog

The Office

Watching The Office all over again for the 10th time. I know it so well that I can basically recite every word. It never gets old :D

subtubitles

When you run out of pain meds

#crohns #theoffice

theecrohniegrace

Stop the stigma of having an ostomy.

They are not gross. They are not smelly. They are life saving. And thousands of people young and old have them.

dandelionsanddalloways

FUCKING THIS. If there had been any visibility, any conversation about this when I was a kid and had one, I probably wouldn’t have been suicidal by the time I was 10. Having one of these saved my life at 7 years old after 2 months in the ICU, but I hated myself for years because I felt so different and unworthy. There is no shame in anything that saves your life/improves your quality of life. Thank you, thank you, thank you for posting this. It is so important.

theecrohniegrace

Thank you for showing again just how important ostomies are raising awareness. :)

supersammy23

I know I’ll have another one one day. It’s kinda inevitable with my intestine issues. That and TPN. seeing pictures of people with them makes me feel less scared of it happening.

theecrohniegrace

I love my ostomy it’s made my life a lot better <3

crohnie25

I agree completely. I hated it so much when I first had it and felt insecure about how it looked with my clothes. Even though I'm happy it's off, it was one of the most important and less painful years I've ever had. I'm really thankful to experience something special.

Doctor: wow, you know so much about your disease and medications

disabilityhealth

When I feel suspiciously good in the morning

[Gif of Admiral Ackbar from Star Wars saying, “It’s a trap!”]

whatsuprubberduck

when you accidentally run out of your meds...

the-truth-talks

me: it’s a long story

person: i have time!

imadeanewblog

When a flare hits you hard

girls-who

girls who suffer chronic pain, like or reblog this post

princesconsuela

When you feel a flare-up creeping up on you

#crohns #crohn's problems

fibromyalgiamademedoit

crohnie25

I'm always prepared to wear yoga pants for pajamas. That way, I can just throw on a jacket and get out :)

egglessnest

Got a date with an ostomy bag.

I got the call this afternoon, I’m getting my ostomy and losing my butthole Feb 4th 2016. Feeling a lot of feelings. For many reasons, I will not miss my butthole. The poor dear is full of hemorrhoids, scars, fistulas, setons, skin tags and woe. It has leaked consistently for the past 10 years, it makes my crack red and raw. Any gastroenterologist, gynecologist, or surgeon who has seen my bum has clucked their tongue and given me useless information about how to soothe the raw skin that suffers from the leaky tap that is my anus.

The soon to be studied/burned rectum is scarred and thickened from a decade and a half of inflammation.

The intestine above and below my diseased j-pouch (which has been soothed every now and again) has been permanently inflamed since my troublesome anastomosis in January 1998. No sterroid foam, no antibiotic, no immuno-inhibitor has been able to keep inflammation at bay once I’ve stopped using them. Yet another TNF blocker has run out of steam. It is time to give these guts a viking funeral and give me a barbie bum.

I am feeling a lot of feelings, but trying to remember every time that my Crohn’s has gotten in the way of life, every time my burning butt has gotten in the way of my sex life, every time I have to go to the toilet just to fart because my butthole couldn’t be trusted to just expel air.

But I will miss my abdomen as it is. And I will feel weird missing an exit that most people have. I am not comforted by the fact that my great-uncle also lost his butthole back in in ‘97. (HE WAS AN OCTOGENARIAN FOR GOODNESS SAKES!) And I am fearful about how long the healing will take.

But good riddance to bad rectums.