🌻

they/she, intersex, MSN autism

[disabiliana]

about me

🌻

call me aeliana

I am 22 years old

I like Pokemon and Minecraft

I am intersex and trans

I have autism (MSN, early-diagnosed)

I am physically disabled and have chronic pain

🐝

pfp credit (bananahkim picrew)

[2003-playground]

It really really frustrates me when some people, disabled or not, say "well I can do [x thing] because I was forced to" in response to someone saying they can't do something.

"Well I had to eat whatever was for dinner or else I would have starved."

Me too! And I became severely malnourished because I could not eat what was put in front of me.

"My parents hit me if I didn't get good grades so I had to."

Mine too! Except I could not get good grades in a mainstream class no matter how hard I tried or what was at stake.

"I have to mask because I need to keep my job."

Me too! Except I can't even pass an interview because of my limited ability to mask.

"I can't have meltdowns around other people or else I'll be bullied/abused/mocked."

Same here! But I can't hold in my meltdowns.

You need to understand that some people will never be able to do the things you can, no matter how hard they're pushed or what the consequences are for not doing it. I'm really sorry that you were forced to talk, but someone else being unable to speak does not mean that they could if there was enough pressure. Stop assuming that everyone who doesn't mask/speak/etc. grew up in a safe and supportive environment. There are people who would (and do!) die because they're neglected and can't learn to just do things themselves.

I really don't want to be the "other people have it worse" guy or come across like I don't think people are allowed to complain about something just because it's less extreme than someone else's situation, but some of you need to have more compassion for people who are not like you. Just be kind. And if someone says they can't do something, don't assume that it's because they were coddled or whatever.

[post-human-oddity]

"if you had to you would" is a lie that kills people

[disabiliana]

AAC users deserve to get to say fuck.

AAC users deserve affordable AAC devices.

AAC users deserve access to a good voice.

AAC users deserve knowledgeable doctors.

AAC users deserve self-advocacy.

[disabiliana]

a lot of people assume, that having a special interest means you know a lot about your special interest. i don't know a lot, because i have trouble learning new things. i think about my special interests all of the time and have trouble talking about other things or switching topics. i would like to know a lot more about my special interests. but my brain doesn't like to work that way. when i try to learn new things, i often forget or it doesnt make sense to me and it needs to be explained over and over. did you know that Cubone and Marowak are ground-type Pokemon? i didnt. my partner had to explain and to them it made a lot of sense, they said "well yeah, they use bones, which come from the ground". but even though Pokemon has been my special interest ever since i was really really little, i had no idea. i was really surprised.

[disabiliana]

i have not posted in a long time. just wanted to say, i have been rewatching Pokemon with my partner and i got a Pokemon coloring book and that makes me really happy. and my partner puts my colorings up on the fridge and it makes me feel really good about it. :)

[wheelie-sick]

I don't really care if someone uses the term "autism awareness" instead of "autism acceptance" and I honestly think both are important

a lot of people, including myself in the past, say that people are now aware of autism and we just need acceptance but I disagree.

me and my mom were having a conversation a while back and she was talking about the fact that people know the word "autism" but don't know what autism actually looks like. when my mom was raising me people were very aware that autism existed but would constantly chastise her about how she was being a bad parent when my autism was visible. multiple people suggested that my "behavior problems" could be solved with a belt.

those people knew about autism but they didn't see my autism. my autism was visible but they saw it as "behavior problems" and "defiance" and "disruption" not autism. they didn't know what autism actually entails.

being any level of visibly autistic will put you in this situation even today. people might be aware of autism but not aware enough of autism to know that the way I'm acting is just autism.

we do need autism awareness. people need to know what autism actually looks like. people need to know more than just the word.

[disabiliana]

trying to use verbal terms like 'semiverbal' to describe me feels funny to me sometimes when i think about it. because i am plenty VERBAL, just... in a different way than most people and sometimes i need help to be understood. i make a lot of noises and i do speak, my words just often don't come out right, i stutter and words get confused or i say them wrong or they are in the wrong order or wrong context (like saying "doing" when i meant to say "done"). sometimes i just communicate in noises rather than words.

i am both verbal and speak A LOT, but my speech doesn't always make sense to people or i need to repeat what i said to be understood. sometimes when i am stuttering a lot over a word or can't say the word very well and am struggling my partner helps me fill in the gap. or people just give me more time to say it. occasionally i have verbal shutdowns and need to use asl or write what i want to say, but most of the time i am NOISY. it just looks different from most people. i have speech issues and sometimes i don't make sense. but i am making sound the whole time, even if it doesn't make sense, so it is a form of verbality.

my speech issues can be very frustrating for me and means i may need help to be understood, but it is still verbal. it just isn't the same as most people's verbal. so saying i am semi or partially verbal feels a bit funny, i am very verbal i just don't always have super understandable SPEECH. to me verbal and speech and communication are 3 different things. i can make noises and that is verbal but is not speech, i can communicate many different ways that are not speech.

maybe i take it too literally, it just is a bit funny to me.

[zebulontheplanet]

Hi, I hope you are well. I was wondering if you could help me figure out if I am LSN (Low Support Needs) or MSN (Middle Support Needs)? I understand if not, but it would be really appreciated, my psychologist is not qualified to make that assessment. I can explain more if you're okay with it :) Thanks either way.

Hey anon! I can’t tell you if you’re medium or low support needs. I’m simply a stranger on the internet! I don’t know you, your journey, your life, nothing.

What I can tell you is what I know so hopefully it can help you figure it out. Here’s what I know!

Low support needs = Needs help with just IADLs and can live independently to semi independently

Medium support needs = Needs help with IADLs and some bADLs and can live semi independently or not independently

High support needs = Needs help with IADLs and bADLs across the board. Can not live independently.

IADLs = shopping, communication (phone calls, emails, paperwork), cooking, paying bills, managing chores and house work

bADLs = feeding, dressing, bathing/grooming, walking, transferring, toileting.

Hope this helps you! Have a lovely day. If you have any further questions then let me know!

[disabiliana]

shout out to dressing sticks, they are very useful!! mine helps me to be a little bit more independent and i like that.