Dizzy Chick says, "What?"

From the mind of a middle aged, chronically ill, deaf artist who tries to follow the Buddha's teachings.

[dizzywendy]

Really quick update

I forgot to hit Publish, I wrote this a couple of weeks ago…or last week, I don’t remember. I’m still having a little bit of memory issues. So…her it goes. The hospital has acted on my complaint. The staff has had a training session on how to handle patients. Do not assume the patient is in the wrong. Do not ASSUME anything, UNDERSTAND what is happening then react. Never react unless you…

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[dizzywendy]

Muddling along

There’s really not that much to update, but I’ll try and tell you all what’s going on. I added to our complaint about how I was treated in the hospital, I was upset when that wrote me back saying they couldn’t fine my original complaint. At least they wrote me back, perhaps I’m now in touch with people who can make a difference. It’s upsetting that I had to say I felt my disability was ignored…

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[dizzywendy]

Better day, kinda.

I had a better mental day today, physical kicked my but! No flash backs, and was able to really sit down and talk with Stuart. My allergies are out of control! It appears I’m now allergic to my cat. It’s so hard. I’m determined not to re-home him, but I have to find an antihistamine that works! The pharmacist told me about a prescription one, I’m going to ask my doctor. If this doesn’t work…

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[dizzywendy]

I'm afraid.

I’m afraid.

I’m writing this on my phone. It’s late. I should be asleep, or at least trying to sleep. Today has been just a bad day, an emotionally turbulent day. I’m afraid to go to sleep. Reading hasn’t been helping. Are you ever afraid to sleep? I’m afraid he’ll be back.That security guard looming over my bed, saying things I can’t understand.His face contorted into hatred. It was obvious he didn’t…

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[dizzywendy]

Never Again! Ketamine, and hospital bullying

Never Again! Ketamine, and hospital bullying

This Ketamine treatment was nothing like the first one. I will never go though this again….NEVER. I don’t remember anything real from the time they started the infusion until shortly before we left. I hallucinated the entire time, or maybe just lost time…who knows. Yet S tells me that I seemed lucid at\times. I knew there was a chance I could have hallucinations, and dissociate…but this was…

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[dizzywendy]

Feeling heard, and communication frustration.

Feeling heard, and communication frustration.

Often a person with a chronic illness goes from doctor to doctor searching for answers, help, validation. We are often simply looking to be heard. We are often dismissed, and made to feel no one will ever truly listen, and hopefully help. On July 27th I saw the PA from my doctor’s office. She was giving me nerve blocks for my migraines. She went over everything beforehand and asked ME where I…

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[dizzywendy]

Round two anyone?

Not edited, stream of thought: I’ve been away for quite some time, I hope no one has missed me too much. Or maybe I do, I dunno, I kinda like the idea that someone out there missed me….oh that sounds weird, like I think no one cares, I know people care I’m being weird. Speaking of weird… After the amazing results from the Ketamine treatment I had in early may, it ended when I had two falls and…

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[dizzywendy]

My First Ketamine Treatment for Migraine.

My First Ketamine Treatment for Migraine.

The most important thing I can tell you about my ketamine treatment is that it worked! I was in the hospital from Tuesday – Friday,(May 3-6) not as long as I expected after reading about someone else’s experience. She said she’s in about 11 days, I don’t remember if that was just her first time or if she’s in that long every time. I just wonder why she’s in so long. Perhaps they ramp up and…

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[dizzywendy]

Ketamine - hope for my migraine

Ketamine – hope for my migraine

I have hope. I’m going inpatient to have ketamine treatment for my refractory chronic migraine in the near future, just waiting on insurance approval. It takes longer for me to get approval because I have two insurances. (private from hubby’s work and Medicare). Luckily after approval this hospital trip shouldn’t cost much if anything. I’m so very lucky to have this, it breaks my hears so many…

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[dizzywendy]

Yes, you can have a migraine for over 2 years.

Yes, you can have a migraine for over 2 years.

I haven’t been here in a long time, the pain hasn’t allowed it. It was much easier to blog when I was just dealing with Meniere’s, at least I had breaks. Yes, I had migraines then, but not like this. Nothing like this. And I’m not dismissing Meniere’s, it has been hell. I’m so very grateful that it’s soooo much better even the recent spell I had was nothing like before. I rarely have full…

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[dizzywendy]

My heart is sad. Beloved Thich Nhat Hanh has passed.

My heart is sad. Beloved Thich Nhat Hanh has passed.

“This Body Is Not Me….” by Thich Nhat Hahn I got the news yesterday that master Thich Nhat Hana’s died. I’m saddened, but so very grateful that this amazing man lived among us. He changed so many lives. He taught peace all his life. He was exiled from his own country simply because he worked for peace. I always feel at peace when I read his writings. I won’t pretend to know much about him, but…

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[dizzywendy]

Christmas + Chronic Illness + COVID = X

Christmas + Chronic Illness + COVID = X

After being told, erroneously, that this would be my father-in-law’s last Christmas we decided to brave things and try to create as many memories with him as possible. That included having family gatherings. We all got together for Thanksgiving, during which I found out that 3 people in that group are not vaccinated. I tried to be as careful as I could, but I felt the whole day was…

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[dizzywendy]

It still hurts

I’ve started writing this post many times, but it just didn’t come out right. I planed to write a post each day I was in the Diamond Headache Unit. but I was so busy while I was there. Then I tried to write a detailed post saying everything I did there, all the things they do, but it got to be too long, and I got too tired. That’s how I’ve been since I got back, just so very tired. The program…

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[dizzywendy]

Damned statistics

This is a wonderful post about why it’s so important to still be diligent during this time of COVID-19. ‘the problem is that some poor bastard is always going to be the wrong side of the comforting stats’, personally I don’t want to be that person, and I don’t want anyone I love to be either.

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[dizzywendy]

I missed you too much, going to the headache clinic.

I missed you too much, going to the headache clinic.

Okay, so I couldn’t stay away. I don’t know how much I will be posting, but I hope you will bare with me when I’m silent for long stretches. Such is the live with chronic illnesses and pain. If you’d like to know more about what’s been going on with me here’s where I’ve been, sporadically, https://dizzychickblog.wordpress.com/ I have great news! At least I hope it is. Headache guide by W.…

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[dizzywendy]

You're Invited

You’re Invited

I started a new blog called Dizzy Chick. It will basically be a journal of my day to day life with some information posts thrown in. I didn’t feel right just doing journal entries here, and I wanted a fresh start. I hope you’ll join me. https://dizzychickblog.wordpress.com/ I just posted my first post.

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[dizzywendy]

I'm shutting her down

I’m shutting her down

I can’t keep up with this blog any longer. The nerve pain is back. The injections on the 22nd didn’t work. Once again I can’t type. I’ve written so few posts this past year I don’t think it’s worth it. It’s been a good ride, but it’s time. Farewell my friends. I appreciate you being there throughout these many years. Be good to you.

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