Echo

Deaf girl in a hearing world Voicing like a cave talking back

[echosinthedesert]

I’m never around now that we don’t have time for Deaf events (most of us aren’t fluent enough to use it in daily life, we just voice and struggle). YouTube will have to teach them on the bus, we have no hours left outside of that.

[echosinthedesert]

I have a question, mostly for hearing folks. Can you tell identify what a noise is and where it’s coming from as you hear it?

I/we can hear…

What and where it is as it happens

What it is, but not where, as it happens

Where it is, but not what, as it happens

What and where it is with some delay/thought

What it is, but not where, with some delay/thought

Where it is, but not what, with some delay/thought

Neither what nor where it is

Voting ended onDec 10, 2024

I think some of it is dissociation, but I am hard of hearing and have ADHD, so maybe auditory processing problems.

When I notice noise, I tend to stumble onto it like with pain; I notice I’m irritated, then check for why. I can usually only tell it’s noise at first, and only which direction if there’s no distortion (I’m wrong a lot). I could tell there was music after it kept going for a while and might be able to tell which side it’s coming from, but I’d only know a loud sound was an ambulance if I saw it coming and wouldn’t know where it was with my eyes closed except maybe as it passed.

[echosinthedesert]

We have an ear thing that’s making us significantly more hard of hearing in one ear, a body thing across the system. I’m having the time of my life watching them flounder because they can’t hear people talking from that side.

Our hearing has been going verrryyyy slowly as we age (we’re all at least mildly HOH), but this is apparent. Woke up one day and it hurt and now it’s like this. Probably it’s an infection or something that’ll clear up, but it’s kinda nice that they have to communicate like I do now. Welcome to my world, mfs.

[echosinthedesert]

The more I think about it, the more different our internal sign language differs from any other we know. We have way more pronouns, we measure time differently, the cultural connotations mean few signs line up unless they’re loan words, and regional norms for what bodies look like is not a concern when everyone is human. I don’t like calling it a conlang, because it wasn’t really constructed. It’s a mix of what we picked up from hand signals where we grew up and the necessity of communication amongst ourselves over time. There’s enough of us that we have several dialects and a mutually intelligible language —our reshuffling cycles might be enough to count as generational shift, always got new people coming in. I love our language, we literally have a school where we get to teach it now.

[echosinthedesert]

I was talking to another headmate and they said that if I didn’t know ASL I should stop pretending. Girl. Is this America? I’m using our sign language, it’s almost like there’s a reason we call it something else. The vocabulary and non-manual signals are almost entirely different, but the sentence structure is enough alike that it can be hard to tell right away.

[echosinthedesert]

We need housing. We are Deaf, hard of hearing. Phone calls are really difficult without TTY/RTT, but it takes a second to transcribe the other line’s speech. Every time we call the homeless shelter in our area, they hang up on us. Every damn time. If we get past the greeting, we have maybe a minute of their attention. We might get to speak if we announce we’re using transcriptions as soon as they pick up, or they might hang up. My hearing is not the problem here.

[echosinthedesert]

CW for RAMCOA, hallucinations, flashbacks

I get auditory hallucinations. I can’t hear. People cofronting with me can make the connection to our residual hearing better than I can, but that’s not what it is. It sounds like it’s coming from outside. People yelling, screaming, calling our names. Sometimes my own name, but that’s always whispered. It’s mostly PTSD, snippets I or a system member heard before.

I’ve been hearing the angels and demons (also headmates). That’s most of how I communicate with people from those layers. I think it comes from my training, to view programmers as gods and headmates as spirits. I like them better than the flashbacks.

I don’t know what to make of it. I know it’s not external because I physically couldn’t pick it up. I don’t remember if it was always like this, but it feels normal.

Diversity of experience I suppose. Hearing voices as a Deaf girl is strange in concept, but I only want to change the trauma bits. The rest… well, maybe I can teach the others to sign.

[echosinthedesert]

Lately we’ve spoken to two other hard of hearing people. One was Deaf, actively learning ASL and able to communicate both by voicing and signing. The other was not.

It was a huge difference in how we were able to talk. When the other person doesn’t sign, we’re at a standstill. They struggle to voice and we struggle to pick it up — or vice versa, and the conversation dies. When they do have any knowledge of ASL, it’s easy. We can take turns being confused, the half-in-half-out Deafness where neither of us were quite good enough at our dialects to be concise and accurate, but we can go on and on. That conversation ends when we get bored or distracted, not because we can’t hear.

We were talking about that, the HOH person and a CODA. About how audiologists don’t even provide a means to get hearing aids or implants, let alone ASL classes. We get left high and dry to figure out how to deal with hearing loss without showing us Deaf gain. Can’t reintegrate as hearing, can’t get around without.

It’s not our fault we had to teach ourselves to sign. It’s not the non-signing person’s fault they never had the chance. If we ever see an audiologist, maybe we’ll make the recommendation.

[echosinthedesert]

🗝️🏷️ allusions to abuse

I went to the Deaf event. A different Echo than the usual Echo, but an Echo nonetheless. We always introduce ourselves as Echo when we sign.

I lost a lot of my ASL since the last time I was around. I’m still proficient with our signed dialect, helpful as that is interacting in community (it’s not). I found a few people learning, one HOH like us. They gave me resources to get hearing aids through Medicaid, and a phone number to practice together.

That’s another aspect of Deafness in systems; we have varying levels of residual hearing. Usually, the person with the least of whatever we’re going in for is slapped up front. It’s a holdover from when we had to lie to doctors, I think. So, we’re collectively at least mildly hard of hearing. I’m not sure what switching physically does to our hearing, so maybe all we can do is accommodate the body and work to make ASL more systemwide.

It’d be good to see an audiologist either way. I’m between worlds right now, not hearing enough to be hearing but not fluent enough to be properly Deaf. If we can get hearing aids, we can at least interact with the hearing world until we qualify for an interpreter — cause they’re so easy to get (they’re not). I’m better at voicing than the usual Echo, but that’s not the same as having communication. As having language.

As slowly as I’m learning (“slowly, slooowwly, like a turtle” as my neighbor put it), I will get it. I’m not the Echo that got to go to ASL class, the one semester we took it. We both started with mostly the dialect, though. Maybe we can practice amongst ourselves. If not… I always have that phone number.

[echosinthedesert]

I went to Pride! It’s the first time I ever got to go, and the music was so loud I could feel it. I always default to trying to sign, but it’s been a struggle with our cane. Mostly I’m stuck with one hand, and I only fully sign when I can sit or I really can’t understand. I wonder if anybody would sign back, if I did make more of an effort with it.

Mostly I did the Deaf nod (smile and nod), repeat important information, maybe give our body name if I’m following the script well enough. It was still fun. I kinda like places where nobody can hear, I feel like I have the advantage for once. We had facepaint and flags and all the little things we left when we left the dorms.

There’s a Deaf event tomorrow, maybe people will talk about Pride. I hope we can make it.

[echosinthedesert]

I’m wearing headphones. They aren’t good enough go at repeating noises to function as hearing aids, so I pretend to listen to music. I put on a playlist, sometimes I blast it to try and listen, but mostly I do it out of habit. I can hear words at half volume (like have awareness that there are words), but it’s so much noise that I can’t make sense of. Yep. There’s sound.

[echosinthedesert]

Why I’m Echo

🗝️🏷️ RAMCOA (trafficking and scripting)

Growing up, I didn’t know why they called me Echo. I’ve always been hard of hearing, repeating what little I heard so people would listen. My family hated how I slurred my words and spent too long guessing what they had said to me. I echo. I read the Narcissus myth in grade school. I remember thinking that’s where the word came from, but I didn’t realize then just how much that story mattered to me.

I was raised with the story of Echo and Narcissus as the narrative of my life. I was a confidante to the women of my church. They told me I was so smart, so good with words despite barely speaking. My mother was an English teacher, and I loved to read.

They took me to the school where they worked one summer, had me clean up the classrooms. Eventually, they left me at a table to do homework, sent another woman to watch me. She helped me with my math while the other woman went on ‘lunch break’ — apparently sleeping with that woman’s husband. At the time, I hardly knew what was happening. They were all so mad.

It wasn’t a coincidence, I don’t think. They did something similar in my church group, then again at a ‘house party’. Every time, I was the distraction. My homework, my writing, my ‘services’. As punishment each time, they took away my books. Those books were my door to language, used to bring them everywhere, and they ripped them apart and hid them.

While all this was going on, my church group was doing something similar to another boy. They made him hunt with the men, never let him look in the mirror, set up all these confessions towards him and trained him to be cruel to the people confessing. We were bonded together like that. They made me go confess my love to this stranger boy, who was fairly pretty, and made him hurt me. They kept us together often, even though we didn’t like each other, and we fought like cats and dogs.

For a while, I was sure he was dead. They told me he offed himself because of me (he was so stressed and angry, I really did believe them). I didn’t see him for a while. It was an ordeal figuring out how to get him back to himself, after finding out he wasn’t gone forever.

We get along better now, with years between that shit show and now. We get that so much of our lives were staged by the adults around us, and we think we know why they did it — not the logic of why they thought it was a good idea, but what they were trying to get out of it ig. We weren’t the only kids they did this to, and we’ve both played minor roles in other kids’ training.

Narcissus and I are alters in a system. All of my trigger words and all of his are linked up according to how we were trained. That’s not the point of my blog, but the context is important.

The people who orchestrated it all are outside humans, still alive for the most part, and all the events happened in external reality with the exception of Narcissus and I having actual separate bodies (they just had someone else stand nearby so we thought the person we were talking to was physically present).

It’s been a journey piecing together where our stories fit together and placing it back in reality. We’re not the only alters like this in our system, and we’re not the only system this happened to. The perps are still doing this, but we’re getting safe and trying to stop them from doing this to others.

So. My name is Echo, like the Greek myth, and I’m just a Deaf girl. This is my blog about being Deaf and living with the fucked up childhood I had because of it. I’m one of three Echos who came out of that fiasco, using this blog with every other ASL native alter in the system. The worst is passed, and I’m excited to make a life for myself in the present. Nice to meet you!