Faeries Wear Combat Boots

Santiago de Chile | 34 años | no binarie | elle/they/them | sagitario | anime y videojuegos de la vieja escuela | Freddie Mercury es mi copiloto | English-speaking und ein bisschen deutsch

[electroma89]

Me, you & a lit…

70′s playlist

80′s playlist

90′s playlist

2000′s playlist

2010′s playlist

Classical music playlist

J-music playlist

Goth playlist

Chilean Folklore playlist

Halloween playlist

Underrated Queen’s songs playlist

Latinx music playlist

[spiritbodyofdistortedkilling]

FRANKENSTEIN 2025; dir. Guillermo del Toro

[valarinde]

My maker told his tale. Then I will tell you mine. Frankenstein (2025) dir. Guillermo del Toro

[absolutelymessedup]

I saw some people say it isn't a horror movie.

But that's horror for me.

[usermovies]

FRANKENSTEIN

2025, dir. Guillermo del Toro

[the-irreverend]

The moment that made me realize that she was gonna be the best effing character in the whole film.

[hearthouses]

The tide that brought me here now comes to take you away, leaving me stranded. FRANKENSTEIN (2025) dir. Guillermo del Toro

[phantom-threaded]

"Forgive. Forget. The true measure of wisdom." — Frankenstein, dir. Guillermo del Toro (2025)

[bookstofilms]

Forgive me. My son. And if you have it in your heart, forgive yourself into existence. If death is not to be, then consider this, my son. While you are alive, what recourse do you have but to live? Live. Say my name. My father gave me that name, and it meant nothing. Now I ask you to give it back to me… one last time. The way you said it at the beginning. When it meant the world to you.

FRANKENSTEIN (2025) dir. Guillermo Del Toro, adapted from the novel Frankenstein; or, The Modern Prometheus by Mary Shelley

[knightofleo]

Animated scrap metal figures by Guillermo Galetti

[kororobus]

The Blade of Frontiers (with a sturgeon spiky tail)

[lokislittlesigyn]

Hello!

I'm reaching a point of desperation. Asking for some help/advice regarding orthostatic intolerance .. If you know about this or know about people who'd be willing to discuss it, I would be extremely grateful for any help I can get. It's starting to feel hopeless. Shares are appreciated. ;;

I want to make sure I'm understanding something. I'm autistic, so sometimes words don't quite translate to me: a sentence written a specific way may be difficult for me to interpret.

With that in mind, TL;DR: What is the diagnostic criteria for POTS? Is it that you have to have a 30bpm increase from a resting heart rate (or over 120bpm) AT ANY POINT upon standing in a 10 minute period, or SUSTAINED FOR A FULL 10 MINUTES?

Why I'm asking (VERY long under the spoiler):

I've been experiencing worsened symptoms upon standing for the past several years, ever since I got COVID. I've always had some weirdness in my body - of various kinds - but it's never been this severe. (For instance, I've been "cold-natured" and had cold hands and feet and my hands/legs would turn purple when I was young, and I'd get winded when exercising, maybe "uncomfortable feelings" (which I think now is blood pooling?) in my legs, but I wouldn't struggle to the point I am now.) I'm experiencing:

Dizziness and lightheadedness, sometimes feeling like my head is spinning, upon standing. I usually have to stop and wait for my head to feel less dizzy before I can walk, a solid few seconds, then I'm okay Enough to get going.

A severe increase in heart rate upon standing, especially if I was lying down (30-60 bpm from what I've monitored), but it happens if I was only sitting down/squatting too.

Blackened vision bordering on loss of vision, sometimes loss of hearing, upon standing

MUCH more fatigue with general tasks despite the fact I've been consistently exercising, doing HIIT workouts to keep my body conditioned, daily, for the past 4 years!!!

Extreme shortness of breath and dizziness, sometimes to the point of wondering if I'll faint in the shower. (today I took my heart rate while in the shower and it was over 150bpm. I was just standing there. Shaving.) I haven't fainted yet.

Significantly worse symptoms in the morning vs the evening or at night. At night I actually have energy!

Sluggishness, lethargy in the mornings, often leading into the afternoon

Issues with prolonged standing - I have to wear 20-30mmhg compression socks to be able to stand or have long days out, like when I'm selling things for my job or going out for an active day with friends.

Everything gets worse when I'm menstruating. :))))))

This has had a significant impact on my life. And from what I can gather, it sounds like POTS. I've been pursuing a diagnosis for two years. Doctor after doctor has addressed other concerns: we've done blood tests, heart monitors, ECGs, ultrasounds - my heart is physically healthy. I went to a cardiologist who specializes in POTS, and he looked me in the eye and said "I think you have POTS." MULTIPLE TIMES.

And I do already do what I can with this. I exercise (again! Literally four years of decent exercise! 45 minutes a day! And I recently started walking an hour a day so I get nearly 2 hours of focused activity!!!), I ONLY drink water and plenty of it, and I eat salt on my food. I already do everything.

I'm worried this is affecting my outcomes. Specifically, I'm worried since I've been essentially doing the "treatment" for this type of thing, that my result are better than they would be otherwise.

The tests:

I've actually done the gold standard tilt table test, and apparently I didn't have the numbers necessary to diagnose me with POTS. I was diagnosed with orthostatic intolerance (the heartrate issues) and vasovagal syncope (which is the issue with vision/hearing upon standing, I guess). But given my symptoms, I feel very strongly my body is exhibiting signs of POTS. That's .. a big reason I'm making this post.

My "official" tilt table test results (taken last year) were, to make it brief:

Baseline: 59 bpm

Tilted 30 degrees: 60 bpm

Tilted 45 degrees: 76 bpm, then 64 bpm

Tilted 70 degrees: 78 bpm. It hovered around the high seventies/low eighties for a bit, then at the thirteen minute mark, went to 94.

My heart rate didn't go below 80 for the rest of the test, which was about 20 more minutes. The lowest it got was 82 but it would waver between 85-87 and 94 mostly; the highest it got was 101, when my blood pressure dropped significantly and I had to ask to be laid down so I wouldn't fall down off the table.

The people running the test said they got enough information even though I ended the test early, and every doctor insists the tilt table is the "gold standard" test - the absolute best - for detecting POTS, even though it doesn't EVER take you to 90 degrees? It slowly tilts you up, which allows your body to adjust? And I had to hold myself up, the straps holding me down were just for positioning I guess??? What do you mean this is a better test for something that impacts me when I'm going from lying down to a full 90 degree upright position within seconds?????

I've done two "poor man's tilt table" tests, or standing tests, at home. Below are the numbers. The first time I did it (2023), I didn't know you should take it at intervals for 10 mins, so I only did 5.

BP: 124/69 hr: 72 - laying down (This was after 5 minutes of lying still, not speaking, and actively trying to relax)

BP: 124/80 hr: 139 - first stand up (I stood up "normally," I didn't rush to stand or jump up)

BP: 123/89 hr: 131 - 5 minutes after (I stood still, and made sure to not lock my knees too much)

The second time (2024), the person helping me with the test didn't understand we needed a full 10 minute reading, so we only got up to 8 minutes. Still, these were the results:

Resting: 66 bpm

Standing: 131 bpm

2 mins: 96 bpm

4 mins: 95 bpm

6 mins: 97 bpm

8 mins: 95 bpm

Doctors look at my symptoms and remind me well, we treat POTS ad Orthostatic Intolerance the same. They don't think it matters if I technically have a specific diagnosis or not.

I know this. I have been told this so many times. I want the validation of a diagnosis I fit the criteria for. I want to be able to explain to people what's going on with me. I want, since I'm at the ripe old age of twenty five and can barely shower in the mornings, the bare minimum of having a name for what I have to deal with every single day.

But I'm really worried. I'm worried I've ruined my chances of this being caught by exercising/"treating" it too much, or I'm misunderstanding the diagnostic criteria, or I'm just stupid in general, being overdramatic and should give up because I've been told I have orthostatic intolerance, what does it matter if it's POTS specifically?

But this looks so much like POTS. This sounds so much like POTS. And I am getting the numbers necessary, or else ones a WHOLE lot like them, at home. And that's what's bothering me?

If I wasn't taking standing tests and finding such high bpm increases, which again, seemingly fit the diagnostic criteria, I wouldn't be bothered. But I am.

This past week I went to nurses that work in a specific doctor's office, the doctor who apparently "diagnoses everybody with POTS." I was hopeful they'd listen. They did a standing test in the office.

My heart rate started around 70 when resting. (there's multiple reasons it was higher than what my "actual" resting rate is, but I won't explain that; this post is too long already) I stood up and it went to around 125. And then within a few minutes, it went down to 80 or 90, I wasn't checking exact numbers.

They couldn't diagnose me based on those numbers.

i can't shake the feeling if i'd been able to relax fully, or had just gotten my body to unwind, i might have had a resting rate of 60 - closer to the baseline when i was allowed to rest before the tilt table - and could've gotten diagnosed.

i feel like a failure.

Advice, information, all is appreciated. If anyone understands the diagnostic criteria, or has a similar story, I'd really love to hear. Thank you.

[everybuddiewantssome]

Tagged by @buckstattoos to share a random photo from my gallery. You get an apple from the volunteer work banquet a few weeks back

Tagging @donttelltheelff @aintgonnatakethis @jimothystu @eddiestach87 @lostinthelxghts @buckybarnesss @morrison-the-ii and @howiehamlin show me your photos this is a threat (it is not theres absolutely no pressure just like to be a menace sometimes k bye 💜)

[sapphicsports]

:o here is a photo pls don’t hurt me. this was my best friend after I rescued an abandoned baby mouse 😭

tagging @make-me-imagine @lifeofpriya @lam-ila @peachesandghosts and @onewhositswithbluejays

[make-me-imagine]

Heres a photos of the sunrise yesterday!

Tagging (no pressure): @spuffyfan394, @gaitwae, @magravenwrites, and open tag

[gaitwae]

You all get a krill. @mousedetective @ask-the-almighty-google @loki-hargreeves @moumouton4

[moumouton4]

Thanks for the tag lovely 🥰💙💚

My sister with that Snap filter 😭💀

@electroma89 @lucywrites02 @tired-teacher-blog @kiyokawatanabe

[electroma89]

Thank you for the tag and letting me see that picture because what 🤣🤣😭

I was feeling fancy yesterday so I had white wine in my red glass with my lunch

@naterson @lokislittlesigyn @cozy-the-overlord @arklayraven

[reikacchan]

don't give up

[mornington-the-crescent]

[plutorichh]

If it requires fake smiling I probably won’t go

[alice-is-annoyed-deactivated202]

i have to do it for work, i won’t do it anywhere else

[amateur]

[chocolb8-deactivated20191011]

🐘🐘🐘

[axeofsuns]

new tag game, because I can

Pick a random object in my room

Makeup box, it's been taped together 7 times and it doesn't even fit everything

hot pink water bottle I knocked someone out with once, full of strawberry soda

my favorite boots, theres a blood stain, it's not my blood

5 clothes hangers hanging from my door to hold my necklaces

Vile full of Mysterious Blue Liquid (food dye in a lipgloss tube)

Large collection of dead candles I refuse to toss out

My bed, it's just one mattress and it's currently up against the wall

Dice box. It's a box full of dice.

Voting ended onAug 27, 2024

no pressure tags:

@red-velvet-0w0 @nyxisagod @lynx-brynjar @encryptidarchivist @justbugsnstuff

@justanotherenbyhere +Anyone else

[anticidic]

thanks for the tag!!

Pick a random object in my room

$2 bill I got from work

Retainer that I keep forgetting to put on at night before sleep

Eyebrow pencil that I'm mad has been discontinued

Packet of pills I have no other way to describe this

Navel piercing that I didn't properly put away for some reason

5+ bags of tips just lying around instead of me putting the money away

Samsung watch that I really need to charge

Voting ended onAug 28, 2024

@ohhcinnybuns @gayfrogswithhats @aaabatteryy @i-eat-mold @aaabatteryy

[i-eat-mold]

dude this is so fun thanks for the tag!!! i love my room honestly

Pick a random object from my room

my walls(1)

collection of vertebrae of different sizes!! i love vertebrae

a series of a dozen bags, plates, jars and piles of seashells because im autisti

deformed plushie of totoro i tried to make with no previous skillset (toroto)

framed contract between my brother and i on a bet that will be resolved in 2yrs

dead bumblebee on a glass box (was dead when i found him)

jar full of cash, none of it in the currency of my country.

caps of liquor bottles i finish do NOT judge

square Gregory House doll made of paper (ugly)

Voting ended onAug 28, 2024

1. there is a handwritten diagram drawn across several of them with the biological taxonomy of Gastropoda aka snails (+500 names in different families, superfamilies and orders)

this was actually so fun because i love this room and its full of autistic little things

tagging! anyone who wants to join and @evilkaeya @chenechen @chrixyty @rechocochrry

[chenechen]

Thanks for the tag!

Pick a random object from my room

My alpaca plushie

My kitty plushie

Computer

Slippers

Plants

My allowance under my pillow

Voting ended onAug 28, 2024

@evil-be-i @gardenlilgnome @slonechnik @windwolf0097 @izaneko

Anyone one who want to join is welcome!

[emperorwhoemperorstheworld]

Pick a random object from my room

black cat plushie

girraffe plushie

all 4 of my bsd:BEAST manga

jjk official character guide

notes for my fanfic

fountain pen ink

Voting ended onAug 29, 2024

@decayingdarlings @stavroginova @madhya-raatri @inupiant @hangezoehq

[madhya-raatri]

thanks for the tag, naturally i took the BEAST manga

pick something from my boring ass hostel room

my laptop

the curtains (they're the college's)

the desk (it's the college's and pretty good)

mobile phone stand from the company i interned at

waiwai noodles (the only worthwhile thing in this bitch)

clothes hanging rope

water cooler (small) (second hand) (good) (it's outside my room tho)

my poetry notebook

colour pens

laptop cleaning gel

my roommate (please) (i want a single room so bad)

Voting ended onAug 29, 2024

no pressure tags: @vivid-vices @deerandwalnuts and anyone else that wants to!!!

[vivid-vices]

thanks for the tag!! (and the poetry notebook)

pick something from my room

my cat who is asleep in a patch of sunlight

one of my 15 stuffed animals (but not chrollo)

dark era dazai nendoroid

ceramic fairy in a glass jar that a kid made me

a candle. i've got like 10 of em

tarot cards

little mushroom man my roommate felted for me

archery trophy i bought at a thrift store that says "you tried your best"

Voting ended onAug 29, 2024

no pressure tags: @un-perro-vago @techni-kolor @butchdazai and anyone else who wants to

[un-perro-vago]

Thank you for tagging me Ellie

I picked the dark era Dazai nendoroid bc my ada Dazai got fucking decapitated

Pick a random object from my room

Old bootleg Pikachu plushie

A very innocent poke ball (it's a weed grinder)

Bird-shaped candleholder

A mural with 33 keychains from different parts of the world (1/3 are from Chile)

A play station 1, chipped to put pirated games on it :^)

Nendoroid of Chuuya with his decapitated bf Dazai

The four books of the Raven Circle (in spanish)

My journal with my most disastrous thoughts (...also in spanish)

A shoebox, but it's full of can tabs

little bag full of little googly eyes

Voting ended onSep 5, 2024

I tag any mutual, but here is my pick (sin presión!)

@f--e-u-e-r-t-r-u-n-k-e--n @naivara

[montanario-campanioso-deactivat]

Gracias por el taggeo!!! Las figuras de BSD eran demasiado tentadoras, pero tuve que llevarme la bolsa con ojitos. Además que no tengo espacio en el mueble.

Pick a random object from my room

Fish-shaped pouch filled with DnD dice.

A copy of Guy Debord's The Society of the Spectacle, full of notes.

A cardboard box full of migraine pills and nail polish of different colors.

A copy of Leúcade magazine. I stole it by peeling it off a wall.

A Club Universidad de Chile Home 2009 Football Shirt

A cinnamon scented candle. Half used, we lit it during the last blackout in Stgo

Voting ended onSep 16, 2024

@shotofstress, @lvpercalia, @electroma89, jueguen también! (Si quieren!)

[electroma89]

I'm back over here after so long! Thank you for the tag 🥰 (estoy hablando en inglés porque la mayoría de mis mutuals aquí hablan ese idioma, no porque tenga la realidad alterada 🤣)

Pick a random object from my room

My childhood Disney figurine collection

My plastic skull

My Sailor Moon soda cans

My Freddie Mercury plushie

My PC monitor connected to nothing

Voting ended onOct 9, 2024

I tag my (hopefully still) mutuals 😭 @naterson @lokislittlesigyn @lucywrites02 @cozy-the-overlord @moumouton4 @gaitwae @scribeofmorpheus (I don't remember the other users but if you see this and we used to talk consider yourself tagged 😭😭😭)