grace is tired

grace // they/them // 19 // queer // disabled

[grace-is-tired]

Intro Post :D

Hi, my name is Grace!! Here’s what you need to know about me:

I am nonbinary and use they/them pronouns and I am 19 years old. I am queer. I am disabled in multiple ways. I have a several chronic illness which are the autoimmune disease ankylosing spondylitis and hypermobility spectrum disorder (being investigated for hEDS). I also have suspected mecfs which I am still in the process of going to doctors to investigate. I am also neurodivergent with diagnosed Tourette Syndrome and an unofficial autism diagnosis from my psychologist (still working on getting it official). There are more but those are the ones I feel comfortable naming. I also have a host of mental illnesses that I won’t list here but talk about sometimes. I am a part-time wheelchair user and crutches user.

This blog is mostly chronic illness and disability stuff. Maybe some mental health related stuff too. I try to be positive but I do post a lot of vent content to do with my struggles with chronic illness. Some of the fandoms I like are x-men, twilight, arcane, as well as many others. I am very artistic and I love to do ceramics, sewing, and crocheting.

I don’t have a dni, I’ll just block people that I don’t want interacting with me. I do swear on this blog so if that makes you uncomfortable feel free to block. I don’t talk about anything sexual on this page and if I decided to I’d tag it appropriately. I also put alt text on any photos I post and I try to only reblog images with alt texts or image descriptions. If there isn’t one I’ll add one or tag it undescribed.

I think that’s everything for now! I hope something makes you smile today :) 💐🌟🫧♿️🎨

Last updated 6/18/26

[miinobobeano]

It bothers me so much that the healthcare system relies so much on the patient's ability to advocate for themselves, organize their history, and be so persistent against every medical “professional” who says there’s nothing wrong/they can do. But so many struggle with fatigue, brain fog, and face such ingrained systemic barriers, that the people who need and deserve help and support can’t access it.

I saw something recently that resonated with me: “Access shouldn't depend on who has the energy to fight for it.” And I’ve never agreed with anything more.

[grace-is-tired]

My friend: “Your hair looks really nice right now!”

Me: *don’t touch it don’t touch it it’s fine it’s fine ahhh*

Friend: …??

Me: Runs fingers through hair

[grace-is-tired]

I never considered myself a very athletic person even before I became physically disabled so when I did become physically disabled the fact that participating in sports was no longer an option never really bothered me. Until now. My dad likes to watch sport climbing, specifically bouldering, and lately I’ve gotten in to watching it on my own and watching people who boulder for fun on TikTok. I want to try it so bad. And I could technically try it. But it’s kind of difficult when most mornings it takes me an hour to get out of bed, just to go right back to bed. And that I can’t go out somewhere that requires walking or standing for more that 45 minutes without my wheelchair. If I really wanted to I could try it. But I know I should probably prioritize spending my limited energy on more essential things.

[grace-is-tired]

Sooo….i said fuck it and decided to try bouldering anyway. Only went for an hour with my boyfriend but I am so exhausted. Will check back in in 1-3 days to see how fucked I am.

Also not great that I am terrified of going places I haven’t been before so I was freaking out all morning with anxiety and then when we were leaving I had a slightly awkward interaction with the front desk lady that most people wouldn’t bat an eye at but because of the tism it caused me to freak out further so when we got to the car I burst into tears and uncontrollably sobbed for ten minutes…..yeah

The actual bouldering was fun though although incredibly hard and painful on my hands.

[grace-is-tired]

Status Update: super ultra fucked why do I make these choices

[grace-is-tired]

I never considered myself a very athletic person even before I became physically disabled so when I did become physically disabled the fact that participating in sports was no longer an option never really bothered me. Until now. My dad likes to watch sport climbing, specifically bouldering, and lately I’ve gotten in to watching it on my own and watching people who boulder for fun on TikTok. I want to try it so bad. And I could technically try it. But it’s kind of difficult when most mornings it takes me an hour to get out of bed, just to go right back to bed. And that I can’t go out somewhere that requires walking or standing for more that 45 minutes without my wheelchair. If I really wanted to I could try it. But I know I should probably prioritize spending my limited energy on more essential things.

[grace-is-tired]

Sooo….i said fuck it and decided to try bouldering anyway. Only went for an hour with my boyfriend but I am so exhausted. Will check back in in 1-3 days to see how fucked I am.

Also not great that I am terrified of going places I haven’t been before so I was freaking out all morning with anxiety and then when we were leaving I had a slightly awkward interaction with the front desk lady that most people wouldn’t bat an eye at but because of the tism it caused me to freak out further so when we got to the car I burst into tears and uncontrollably sobbed for ten minutes…..yeah

The actual bouldering was fun though although incredibly hard and painful on my hands.

[grace-is-tired]

I’m telling bro how profoundly my multiple physical, neurological, and mental disabilities have impacted my life and he deadass responds “yeah I had a mild vitamin d deficiency a couple years so I totally get it”

AAAAHHHHHH

[rylandgraces]

[the most low energy you have ever seen me] we’re about to go crazy mode

[grace-is-tired]

I never considered myself a very athletic person even before I became physically disabled so when I did become physically disabled the fact that participating in sports was no longer an option never really bothered me. Until now. My dad likes to watch sport climbing, specifically bouldering, and lately I’ve gotten in to watching it on my own and watching people who boulder for fun on TikTok. I want to try it so bad. And I could technically try it. But it’s kind of difficult when most mornings it takes me an hour to get out of bed, just to go right back to bed. And that I can’t go out somewhere that requires walking or standing for more that 45 minutes without my wheelchair. If I really wanted to I could try it. But I know I should probably prioritize spending my limited energy on more essential things.

[local-lesbian-tree-demon]

they should invent a body that feels normal to be inside of

[eternallysluggish]

Reminder that seeing a disabled person participate in a task once does NOT mean it is easy and straightforward for them and that making assumptions (and loudly voicing said assumptions) based on that is incredible unhelpful

You don't see the preparations made in advance to be able to tolerate the event.

You don't see the discomfort or pain they're experiencing during the event.

You don't see the rest after the event.

You don't see the crash or flare up that the event may cause.

You haven't considered that their disability could be dynamic. Sure, they may have managed an event however if their condition is dynamic there aren't any garentees they can handle it multiple times, equally there are no garentees they'll be able to handle it in the future.

[eptck]

you have to be kinder to people with memory issues.

you have to be kinder to people who are slow processors.

you have to be kinder to people who don't understand your jokes.

you have to be kinder to people who forget important dates.

you have to be kinder to people with cognitive decline.

you have to be kinder to people who were always this way, too.

you have to be kind. you have to be kind.

[alliezweihander]

"if you forgot then it obviously wasn't important to you" is an ableist thing to say and i'm tired of pretending it's not

[alliezweihander]

I've forgotten *my own birthday* before. There are several years of my life just straight up missing. In the past I've forgotten silly little frivolous things like NAMES OF LOVED ONES or WHERE MY HOUSE IS. But obviously none of that was important. Fucking awful, ableist thing to say.

[grace-is-tired]

I’m constantly going through a cycle where I’ll think to myself that I don’t care about doctors and if they believe me and help me because it’s so much effort to get them to understand what living is like for me everyday and how sick I really am and thennn I’ll remember wait I need doctor for ongoing treatment and to get a custom wheelchair and for my medication that makes my pain a tiny but better. And then I resign myself to sit in a bajillion phone trees to make appointments at all the different offices I’m supposed to go to.

[vacuumedsootsprite]

i genuinely feel like i am wading through a pool of wet concrete every day

[grace-is-tired]

The duality of me as a person is that I am both fluttershy and pinkie pie at the same time

[grace-is-tired]

I had a dream last night where I went on a run. I felt so happy and my body felt light and energetic. Even in the dream after I stopped running I was confused how I was able to run and be okay. Now I’m awake and I’m just kind of sad. Like oh right, I can’t run cause my whole body is aching and stiff and every cell feels deprived of energy. Oh right, I’m disabled and I’m not going to get better.

[freakoutgirl]

sorry for being annoying [remembers that practicing gratitude instead of shame is better for my mental health and my relationships] thank you for letting me be annoying with you