The Insane Cripple Your Mom Warned You About

They/Hir - Polyfragmented System - This is a Madpunk and Cripplepunk blog

[insane-cripplepunk]

Hello everyone! This is May of the Song System (the system that runs this blog). Just some information about our blog under the cut.

DNI: Against Self Diagnosis, Believe In PD Abuse, If Your Weird About hEDS/HSD

We have Hsd and Chronic pain because of that, we have APD and ADHD. We are DIC. We also have orthostatic hypotension and chronic knee pain.

This blog will mainly be run by May who will tag her posts as "May - She/Her". If we don't tag it in that format, assume we forgot or we didn't know who was fronting when we made it.

If you want to talk to someone specific, tag the name of who you want to talk to. If you do not and use pronouns that aren't they/hir, we will assume it is a troll.

[bitchautism]

the online identity and gimmick-ifying of autism is so odd. I'm diagnosed with autism and yet I barely identify with any stuff I see about it anymore. It feels like autism is being rebranded as the Silly Guy Disorder that gives you smart and beautiful hyperspecific interests. it's not that I mind silly jokes or being lighthearted about being autistic- but when the entire social movement is based around marketing us this way, I just can't help but feel isolated from it. it feels like I'm not the right kind of autistic. I'm not marketable and digestible to common audiences, and therefore I am discarded by the movement in the name of progress and acceptance. it feels foul.

[8irdies]

neuropunk!

[enbaluka-tokyo-drift]

[rebel-hunk-enjoyer]

The worst-sounding piece of advice I've ever been given that does actually work is to frame your health concerns as coming from someone close to you, whom you do not believe. Tell your doctor that you've been having pain and your mom/friend/partner thinks it might be an ovarian cyst, but you don't think so because the pain is much more intense and it has to be something else. This gives your doctor an unseen third party to fight instead of you. They can't just tell this third party, who isn't present, that you pulled a muscle, they now need to prove to this third party that it is not an ovarian cyst.

At which point they will find an ovarian cyst, but they now get whatever fucked up satisfaction they derive out of proving you wrong, because you didn't believe it could a cyst at all, but guess what? They did find a cyst! It's such a good thing you didn't listen to your intuition and came to them to verify your lay diagnosis from that third party! Bonus? Doctor doesn't have to feel like they look stupid in front of a patient, which is really what all this is about. Not your health, why would you think your medical diagnosis is about your health? It's obviously about a doctor's potential ego.

And apparently this works. Apparently you just need to be able to always play 4D chess with your medical professionals in order to find an avenue of advocating for yourself and getting you medical needs met. Isn't that great?

I hate it here, actually.

[lifeafterpsychiatry]

It's always "stop harming yourself or we'll have to lock you up!!!" and never "what do you need to change to want to harm yourself less and how can we help you make some of these changes?" and that's why we're not getting anywhere

[lifeafterpsychiatry]

If you're comfortable accusing anyone of faking disability, you're not a real ally to disabled people

[lifeafterpsychiatry]

The thing is, proving that you're "actually disabled" is a losing game which is rigged against you

[hidden-phenomena]

Op disabled reblogs but I wanted this

[asexual-amanita]

As summer is approaching, I’d like to remind everyone that you are not entitled to ask someone to cover up their scars, self inflicted or not. I don’t care if they’re big, I don’t care if they’re noticeable, or purple, or all over their body, or what. You can’t police people’s bodies.

[asexual-amanita]

This also goes for my friends with feeding tubes, ostomy bags, central lines and urinary catheters. People are allowed exist in bodies that stray from the expected norm.

[this-is-audism]

audism is the fact that in the US cops are only legally obligated to provide an interpreter after a Deaf person is detained. this results in many Deaf people being murdered by the state for not understanding instructions at things as simple as traffic stops.

many cops make no effort to use alternative communication with Deaf people even after we have identified ourselves as Deaf.

audism is also the fact that our signing is considered threatening and something that warrants murder. audism is the fact that our signing is labeled as gang signs and is used to justify murdering us. (and, for the record, actual gang signs also don't justify murder)

audism is the way Deaf people are accused of lying to "get out of things" when we identify ourselves as Deaf.... which is then used to deny us accommodations like interpreters or written communication.

audism is the fact that multiple Deaf people (mostly unhoused) have been murdered in my city alone in the last 5 years under the premises of "refusing to follow instructions" and "threatening hand gestures" and "gang signs." audism is the fact that Deaf people (and especially multiply marginalized Deaf people such as Black Deaf people) disproportionately experience police brutality even when it isn't lethal.

[lifeafterpsychiatry]

And I'm not saying disability has to be the focal point of everyone's activism - there are countless causes which are just as worthy of dedicated attention - but if disabled people are not a part of your analysis and activism in any capacity, that IS bad, because there are disabled people in every demographic, and anyone can become disabled at any point.

[penny-anna]

endlessly frustrating that whenever anyone is like 'i wish i could complain about X without people trying to give me unsolicited advice' swarms of people are always like 'clearly you have not heard *my* unsolicited advice!' and it's always like yes I have. Didn't help.

[penny-anna]

Bringing this back to say if you see a post where someone is explicitly like 'i am just venting and not seeking advice' and you respond 'i know you don't want advice but-' I am blasting you with my orbital laser.

[imjunebitch]

actually fucking disgusting that glasses cost any money like if you actually think about it for more than a few seconds it is so unconscionably inhumane. this goes for things like insulin and mobility aids and hearing aids too ofc but fuck man, fucking glasses? the thing you need to fucking see? its genuinely sickening and inhumanly evil that those cost ANYTHING.

[thecryptidcalls]

Saw someone on here who is intersex tearing down AFAB intersex individuals and claiming they're not really intersex. That they're just trying to be special for not being a "perfect woman" in our society (most likely targeting intersex individuals with PCOS).

I doubt I'll reach that person but for anyone who might have seen it or heard similar, this is extremely harmful to the intersex community, misogynistic, and just plain intersexist.

This is dividing the community and giving us less access to each other. Especially if you currently live in the US right now, us having community is so fucking important. Letting AFAB intersex people connect to the intersex community is so fucking important.

Its also extremely misogynistic. You're assuming you know AFAB individuals bodies and experiences better than they do. If you were not AFAB you do not get to dictate what experiences someone who was AFAB goes through.

It also is intersexist in that its asking an intersex individual to disclose their AGAB or anatomy to be deemed as "intersex enough". Which is also bio-essentialist, something the intersex community is actively trying to step away from. AGAB doesn't fucking matter. If someone is intersex, they are intersex.

If you were AFAB and intersex, know that you are intersex enough. You belong here, in our community. And nothing is going to change that. You are loved 🤍

Personally, I say fuck AGABs in the first place

[aesungaia]

[sapphling]

one thing that sucks in tandem wrt being fat and/or being physically disabled is a lifetime of being the downer no fun allowed friend just because of your body being the way that it is. can't fit on that amusement park ride can't keep up walking pace with the group can't navigate rough terrain with a mobility device etc. you try to even lightheartedly poke fun at the ada violations in a space or the seating you won't even try to sit on because it's clearly got a capacity of ~100lb and no matter what you get the weary wish-you'd-stayed-home stare right back

[sapphling]

all of which is to say like I Get It, you hate narcs, taking things slow makes you feel like an old person, whatever, but if you can stand to show your fat and/or disabled friends a little bit of grace and patience irl it will make a lot more difference than any number of disability awareness month or body positivity infographics you could share. what sucks even more than having to sit things out or make extra effort to seek accomodations for things is silently forcing yourself through discomfort or pain and refusing to seek those very necessary accomodations because in the moment it's worth avoiding the sneering, rolled eyes, and visible contempt of people you care about

[bebsi-cola]

there's something about how people talk about ableism online that feels somewhat divorced from the reality that ableism is a form of violent oppression that gets disabled people killed, assaulted, and brutalised in real life. that it causes medical neglect, abuse, and structural inequality. that disabled people are, on the whole disenfranchised. and it's not like verbal interpersonal ableism "doesn't matter" in the face of the "real stuff" because all forms of ableism contribute towards dehumanising and isolating disabled people, which in turn makes them more vulnerable to the violence i mentioned. but it's like, do you guys remember the violence exists? that it's not just people being upset over words "for no reason"? there's a glaring reason right in front of us if you bother to look