Still Got Some Fight Left In Me

- Elderly Teenager - Disabled - - LGBTQ+ Activist - Feminist -Dysautonomia Warrior

[b-ehr]

I find it hard to believe that people can just stand up for any amount of time without it causing them any problems

[ehlersdanlossupport]

[kripplepunkinit]

Refilling pill organizer... Takes forever! But at least it saves me time later and I don't have to depend on my crappy memory to remember! If you're on meds for chronic illness... I'd highly suggest this be one of your top priority purchases

[kripplepunkinit]

Blood Pressure last night? 83/30 with a heart rate of 95... Considering the fact that the only people with a Diastolic Pressure of 35 or less are patients in a coma... I'd say I may have pushed too hard today

[kripplepunkinit]

First of all, I want to with everyone a very happy holidays!!! While for many it’s a time of celebration and joy, for families like mine it’s quickly become darkened by debt and worsening health. From getting my resent diagnosis of Dysautonomia (NCS and POTS) to finally getting some relief after being bedridden for months (in the form of my wheelchair)… To go from specialist to specialist and buying an ever increasing amount of tools needed to just to function… We have quickly found that as bad as my health is hurting us, the money spent on it is equally as crippling.

Over the past 9 months I’ve had to quit my job (Loosing the only other income besides my single mothers pay check)… Drop out of school… Travel thousands of miles for appointments… And buy everything from my wheelchair to compression stockings to a shower vague all out of pocket.

I’ve never been one who’s been able to ask for help. But I feel for the sake of my mom it’s time.

My illnesses include: Postural Orthostatic Tachycardia Syndrome (POTS) Neurocardiogenic Syncope (NCS) Ehlers-Danlos Syndrome (EDS - Type 3) Orthostatic Hypotension Irritable Bowel Syndrome (IBS) Hypoglycemia And more (Undiagnosed)

So if you are able to donate even a dollar, I’d be so eternally grateful! If not could you please share so more people have a chance of seeing this

Thank you all so very much

[kripplepunkinit]

That Dysautonomia Feel: When your new compression stockings appear only big enough for your cat...

[kripplepunkinit]

Heated blankets attract cats apparently... Luckily both the company and the warmth make one of the many days I'm unable to get out of bed just a bit more bearable

[kripplepunkinit]

Gatorade and morning pills... Mmmm yummy breakfast!

[kripplepunkinit]

All my cats love my wheelchair for some odd reason... It's pretty cute though (Even with the demonic looking eye glare in this pic) XD

[kripplepunkinit]

Dressing room selfies... No make up and a VERY shitty hair day... But at least I was able to get out of bed for a change!