Living Without Limits

Embracing Life, One Unconventional Step at a Time

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Confronting Educational Barriers: My Journey to Self-Advocacy

My journey with congenital heart disease impacted every aspect of my life, including my education. As early as elementary school, I began to realize that my health condition was causing me to fall behind in class. Unfortunately, rather than providing support and understanding, my school and classmates only made things harder for me. This lack of empathy and assistance followed me throughout my…

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Embracing the Invisible: Navigating Life with a Chronic Illness

Have you ever faced a challenge that seemed insurmountable? For me, living with a congenital heart condition has been the challenge. I was born with a hole in my heart, underdeveloped arteries, and a missing pulmonary valve. As a child, I was diagnosed with tetralogy of Fallot—a fancy term for my heart condition. My first surgery, a Waterston shunt, took place before I started kindergarten. At…

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Embracing Life: Overcoming Health Challenges and Finding Joy at 55

Growing up, I never dreamed of being anything other than healthy. For me, nothing else mattered more. I always hated being asked “What do you want to be when you grow up?” or “Are you dating anyone?” Those were normal questions for my friends, just like weddings, kids, and careers. But for me, the dream of being healthy seemed realistic. After all, each surgery I had made me feel better, and…

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