Jessiejay

I'm a pretty free going girl from melbourne, australia. My blog is about me, my life and my struggles with my wild concoction of strange and amazing things my life throws at me, including but not excluding illness,hospitals, surgeries etc etc etc. The list goes on! But I try to keep going and it's because of my amazing support network that I'm still here I'm a fighter and it shows. My motto is "if you don't laugh, you cry" and we cry along the way but it's made me a better person and led me to who I know. So please enjoy, I hope u find some reassuring words in this blog and can relate to some of my struggles. Feel free to contact me or ask me to write about certain topics as it's hard to find the inspiration sometimes!!! If you're interested, I've started a business selling organic products. Click here to help fund my medical treatment or also look up my FB fighting army: www.facebook.com/jessarmyfightingtheodds Or my model page and portfolio: www.facebook.com/missjessiefate http://m.modelmayhem.com/3594110

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It's been a long journey, over two years. I have studied through admissions, learning to live independently, surgeries and quite a few other challenges. I persisted though, I had to do it no matter what. My final deadline for completion was 31 Dec, but due to Christmas I had to be done by 22 December. I sat my final assessment the day before I went in to hospital a couple of weeks ago I sat my assessment. I was sure that I wouldn't get the pass grade at least the first time. Well a couple of days I got a call from my assessor and not only did I pass but I scored 92.73%! So I'm officially finished with my Diploma of Medical Documentation training 😄 Thanks to everyone who helped get me through this, who were patient and understanding that catch ups were limited due to my course. I'm looking forward to sitting back and relaxing for a bit before the next chapter begins. #finallydone #diplomaofmedicaldocumentation #hardworkpaysoff #nextchapterbegins #timetorelaxandunwind

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Such an amazing time yesterday with some of the #Usawaolaves team doing my second #colourrun2017 Completely drained today but so worth it. Thank you to all the other ladies as well as our adopted male member for the day for pushing me around and helping me do this again. 💕😊💪

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I can't explain how breathe taking it was to see this wall, to see al the names of supporters, couples, and other folk who also say "yes". It's something that helps remind you that your not alone you are all working through this difficult time together, and I'm glad I have such amazing friends to do it with. As we stood there in front of a seemingly simple but incredibly powerful wall people walked and drove past and gave a supportive smile, or understanding nod. I even somehow managed to acquire a complete strangers dog during the photo but I was totally ok with that. The next few days will be tough for many of us, so please send a message, take your friend out for coffee, check in and say hi especially on Wednesday. Whether or not this vote is in our favour it should never have come to this and it's a long road ahead. Many people we love and care for are hurting and sometimes we find that someone we love may not be as supportive of this as we thought they would be and that can really really hurt. To all my friends out there, I'm here, I'll listen, I love you and I'm thinking of you. #postalvote #ourriggtsourchoice #samesexmarriagesurvey #yeswall #weallneedlove #rainbowfamily (at Seddon Deadly Sins Cafe)

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Lmao couldn't help but laugh like crazy when I saw this. #wheelchairproblems #flyinghigh #smoothsailing #familyguyfeels

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Not exactly where I'd planned on spending the night. Seems I've got a newfound allergy, unsure what I've reacted to but being closely observed to make sure I don't stop breathing cos apparently that's important. Ambos may have told me off a little as well as Sami for worrying about Riley first 😳currently waiting to find out what the go is or how things progress. Also hoping I can find out what actually set it off cos we are all scratching our heads right now but definitely showing physical signs so I'm not just being paranoid. I glad they've so far not attempted to cannulate and that ambos managed to hold off on adrenalin in the ambulance cos we don't know how my POTS would handle it, medics did say if it came to a choice between me breathing and my POTS being unhappy they would go with breathing, I'm glad I had good medics as it made the hard decision and feeling of defeat as my long streak broke. Better rest for now and wait to see what's next. #pots #newfoundallergy #emergencyroom #anotherdayanotherchallenge #desperatelyneedsleep #fingerscrossed (at Sunshine Emergency)

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When you try to study for the first time in days but your dog has other plans 😂 #doglife #studyfail #ifeellikeimbeingwatched

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When your mum asks you to label her pool supplies for her hydro exercises for while she is on holiday...she thought it was a simple task. Well I don't think it quite turned out how she expected 😂Well their unique! #creativeminds #cheekydaughter #gottafindfunsomewhere #bestnoodlesaround #whatsinaname

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The moment we have all waited 4 years for. With your help, generosity and mad trivia skills I finally have my Power Pack. This device turns my manual chair in to a powered chair. When I was first scripted for a wheelchair it was meant to be electric but due to transport and cost it wasn't an option. This device allows me to be independent, travel easier, wheel further, and cause less strain and damage to my body and joints. This is a huge moment and one that will never be forgotten. Thank you all for your generosity I will treasure and remember the hope and love you all constantly remind me of and express. Together we are stronger 💕💪 #newwheel #nostoppingmenow #poweredup #smartdrive #powerpack #woohooo #looknohands

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Just a little hyped up 🤣 had to take it off him after this as it was late and the banging was surely going to cause my neighbours some grief. My little man really needs to play soccer lol I think he is part cat as he loves using his paws for all types of things. Played fetch and indoor training all day and was still super energetic by 9pm. Well hopefully time for sleep now for us both! #excitedpuppy #footsies #doggiesoccer #somuchenergy

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Loving my new wheelchair cosy which is currently doubling as a blanket at day onco. First weekday since discharge and I have 4 appts as well as trying to get used to self propelling again after a blissful 3 week break. It's tough I'm already sore, exhausted and have a smashing headache but gotta keep rolling on. #bundlebeanwheelchaircosy #appointmentchaos #makingupforlosttime #soldieringon #FLAMINGOS! (at St Vincent's Private Hospital Melbourne)

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I have quite a few journeys lying around at home and often either forget I have them or do not have the time to properly sit down and work on them. I am glad that I have brought this in for my admission and look forward to working on it (and the others) as time goes on. #happinessjournal #writeyourselfhappy #justkeepswimming #caringforme #journallingandgoals (at Delmont Private Hospital)

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Well we made it through the day! Not just that but horrible roadworks traffic, Disney on ice changeover crowds, AFL crowds and just an overall busy Melbourne...oh and the rain that decided to pelt down as we unloaded and tried to find our way to the YDAS office. Riley did so well I am one proud mumma bear, he was loved by all and got to see one of his AD friends Lisa💕🐾 Thanks to everyone at YDAS for giving me this incredible opportunity and for helping make the day run as smoothly and easily as possible. Met so many amazing people and a little sad that I'm too old to be a part of such an incredible team. #ydas #ndis #triptomelbourne #assistancedog #speakingup #advocacy

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First outing was a success! I am so proud of my lil boy, he sat and focused on me, a couple of little startles when particularly loud trolleys came by, he only lost focus a couple of times wanting to say hi to people but quickly focused back on me. One of our trainers from obedience school happened to come by and he looooves the trainers but she came and stood up straight near me, hands behind back and didn't acknowledge him at all and he soon refocused and sat for treats. The massive Coles truck even came by which he was unsure about but again refocused. I'm so happy that this first outing went well. I know it will still be a roller coaster with on days and off days but that first leap has been taken and sometimes that can be the hardest. I've had his best for a little while now and hadn't taken that step so I'm glad I finally got out there. Thank you all for your support it means home world to me💕#assistancedog #minddogaustralia

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Being a good little study bee 🐝 and doing a webinar for my Diploma. Best way to study, bed, computer, selfies (lol so focused), multitasking to the max! #spooniestudent #diplomamedicaldocumentation #gettingthereslowly

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Big play dates with his golden retriever "cousin" leave him suuuuper sleepy. Such cuteness, I had to try not to laugh to hard because I needed to take of photo of this. I fall more and more in love with you every day, such cuteness! #softpuppysleepypuppy #itsahardlife #babyboy #puppylove #heartmelts #cousinplaydates #adit

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Thanks again @go.get.me for such an incredible prize pack, Riley is in love and has no idea what to play with first. So many incredible goodies and yummy treats. #dogloversexpo2017 #puppylove #prizepack #go.get.me

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So great to see an ad on Instagram talking about how Instagram and other social media forums are helping create a positive supportive network for those living with some form of illness or condition. At the end they flash up a few hashtags (maybe around 6?) and one of those is #edswarrior how amazing to think that out of all the hashtags and illnesses around that that was one they decided to feature. Our hoof beats are being heard fellow zebras💕 #zebrastrong #eds #hearus #fightthestigma #togetherwearestronger #thanksinstagram