My Illness Sucks

a place for me to blog about my chronic illness(s) and mental illness(s)

[myillnesssucks]

My Diagnoses- Both Mental & Physical

Borderline Personality Disorder

Major Depression

Anxiety

Adhd

PTSD

Codependency

Body Dysmorphic Disorder

Gender Dysphoria

Anorexia Nervosa

Bulimia Nervosa

Insomnia

Ehlers Danlos Syndrome

Clinical Endometriosis

Polycystic Ovarian Syndrome

Chronic Pain

Excoriation disorder/dermatillomania

Chronic Migraines/ micro seizures

PNES (pseudo non epileptic seizures)

On this blog I will talk about all of these.

I may make jokes, I may ask for advice, I may rant, I may reblog things from other people.

I will never intentionally advocate for something harmful and will attempt to put appropriate tags.

This is however a side blog and I don't always pay the best attention- please communicate with me.

[myalgicencephalomyelitiscfstom]

[mooncrestcollective-moved-deact]

[ID: A thread of 5 tweets by @/dayn_does_comix]

Image 1:

I was at the movies tonight and a very interesting thing happened to me... I was in the bathroom before the movie and an older woman approached me. She asked how long I'd been using a cane, I told her almost 10 years. She paused and then said, “...was it hard?” (1/5)

Image 2:

...and I realized this woman was going through exactly what I went through 8 years ago. So I looked her in the eye and said “yeah. it was so hard. I face planted in a Walmart parking lot before I finally broke down and did it. But it was so worth it.” (2/5)

Image 3:

This woman is 75 and was absolutely terrified of starting to use a cane. So she looked at me, a young person, out and about with my cane, and had her realization. She told me she has severe vertigo, and that sometimes she can't stand up and it's terrifying... (3/5)

Image 4:

...but it's even more terrifying to admit that you need help. so we talked about that fear. we stood in the bathroom at the AMC and we talked about what it feels like to take a leap into vulnerability and the unknown. and I just want to remind anyone who needs to hear it (4/5)

Image 5:

it's okay to be afraid. it's natural not to want to admit to that vulnerability. but it's so worth it!! the freedom youn gain from using mobility aids is so worth it, whether you're 20 or 75. take the leap. (5/5)

[End ID]

[yeomanrand]

I am going through this myself at the moment. I have been given a walker (much to my amusement? The nature of my need means it's more like a sitter most of the time.)

I hate it. I hate the vulnerability of it, I hate having to drag it around in my car, I hate wrestling with it.

It is also, 100% the best decision I have ever made for myself. No matter how much I hate all the stuff my brain keeps telling (lying to) me it represents.

[steadfastpetrel]

the sun mourns in vain for the white-throated rail: a comic about disability and the unwanted able-bodied grief for past selves.

(click below for the image description!)

Keep reading

[fagfromspace-deactivated2023011]

So that post is making me think about how amputees are a group of physically disabled people that abled people want to push to be as abled as possible with every bone in their body. Like we get pushed to used prosthetics so we don't look disabled, even if our amputation is one where a prosthetic is actually more disabling. It's so frustrating and you never see amputees who choose to never use a prosthetic in media. Everyone has a fucking prosthetic and it's pushed to be the norm, even if it makes the amputees life harder. It's wild.

[jimmystrudel]

Positive disabled experiences I've had while in high school:

- when a student teacher said my outfit and wooden cane were giving woodland fairy vibes

- when a guy who I'm barely friends with fought out substitute to call the office for help, explained everything when the VP arrived and held my head and neck stable when I had a lot of seizures in a row

- my french teacher and I laughing really hard in the middle of class after the first time I asked to go lay on a table in the caf to put my shoulder back in

- no one ever questioning my knowledge on the health care system, the treatment/diagnosis of illnesses or accessibility in politics class

- a guy in one of my classes calling me a badass for getting 80s and 90s during my 4 month absence but not for seizing, passing out or dislocation stories

- a girl very loudly scolding her friend for going through a door before me when I had my cane

- getting to take over my kinesiology class for the joint injury part

- a girl I barely talk to telling me my cane and finger splints are the fucking vibe

- all my friends whose diets are exactly what you expect for mentally ill teenagers accepting my salt pills when they are dizzy even though they hate theyl taste

- all my friends checking in on if an event would be accessible for me and while there continuously check in on my energy levels and heart rate

- my friends responding really quickly when I have seizures and helping keep my head on the coats

- the dude in my kin class who during the first seizure he witnessed said "you good bro?" And during my really bad series today said "the fuck is going on back there?" I love your lack of awareness buddy

- me and the drama teacher who is also the first aid staff member becoming besties and talking politics, hockey culture, gossiping about the school board and calling my seizures razzle dazzles

- my friends holding my hands during pots attacks my occasionally brushing my ribs with their feet so I know that they are there

[spellbunned]

I hate that no one talks about just how distressing memory loss from adhd actually is. I always see memes that are like “haha I forgot my phone, I don’t remember where my laptop is, etc”, but no one seems to talk about how it can really fuck you up long term to just, not remember things that are completely mundane to non-adhd’ers. The memory loss is, however, so frustrating to us. I cannot physically count how many meltdowns I have had over the sheer mental frustration and torture of not being able to remember seemingly simple things

[spooniestrong]

A Weird Trick to Get Doctors to Listen to You — Pain News Network

By Crystal Lindell, PNN Columnist There’s a lot of advice out there on how to get a doctor to take you seriously. Most of it is wrong. Lu

This ABSOLUTELY works.

I have used this for many years. Definitely b do it.

[genderqueerpond]

This article was super long-winded so I screenshat the important part

[spacelazarwolf]

the fact we’re responsible for getting doctors to “lower their defenses” in order to literally just do their jobs is ✨INFURIATING✨

[softtoy1998]

Physically disabled people speaking up about their daily life and experiences are not trying to say they have it worse than able bodied ppl with mental illnesses or ND jfc.

We have different barriers which need to be addressed instead of pretending we are on equal terms with those without physical disabilities. We have different experiences than those who arent physically disabled and we shouldnt have to shut up or say "but yes your struggles are valid too uwu" just to placate people who think the world has to revolve around them and their issues

[geeses]

Excuse me while I put on my exosuit

[lumberjackloverboy-moved]

for my fellow psychotics who struggle with thinking someone is in their house, a method I’ve found that really works are these guys:

i put them on my front door and anytime it opens they ring. that way if i think someone has broken in or i see someone who isn’t there i can think back to if the bells have rung, and if they haven’t i can assure myself it’s not real. obviously it’s not fool proof, like if you are prone to auditory hallucinations, but it has really helped me calm down in time to avoid major psychotic breaks. it’s a real lifesaver

nonpsychotics encouraged to rb

[endlessdreamerxoxo]

So there is apparently a Tik tok trend for an airport life hack where able-bodied people are requesting wheelchairs to get through TSA and customs faster.

As someone in their twenties who can walk but still needs a wheelchair in an airport because I can't walk long distances or fast with my disability, this trend is very frustrating. I can't tell you how many times I've gotten dirty looks from elderly people or been made to wait for a wheelchair because people assume that I'm fine when I'm sitting down and not moving. Idk. There are a group of disabled persons called ambulatory users who rely on mobility aids while still being able to walk on good days. They are often stigmatized by people's assumptions. Please don’t this! You are making it harder for people who are invalidated on a daily basis for not being "correctly disabled"

[prettyasapic]

Every person need to be taught disability history

Not the “oh Einstein was probably autistic” or the sanitized Helen Keller story. but this history disabled people have made and has been made for us.

Teach them about Carrie Buck, who was sterilized against her will, sued in 1927, and lost because “Three generations of imbeciles [were] enough.” (A decision which still has not been reversed)

Teach them about Judith Heumann and her associates, who in 1977, held the longest sit in a government building for the enactment of 504 protection passed three years earlier.

Teach them about all the Baby Does, newborns in 1980s who were born disabled and who doctors and parents left to die without treatment, who’s deaths lead to the passing of The Baby Doe amendment to the child abuse law in 1984.

Teach them about the deaf students at Gallaudet University, a liberal arts school for the deaf, who in 1988, protested the appointment of yet another hearing president and successfully elected I. King Jordan as their first deaf president.

Teach them about Jim Sinclair, who at the 1993 international Autism Conference stood and said “don’t mourn for us. We are alive. We are real. And we’re here waiting for you.”

Teach about the disability activists who laid down in front of buses for accessible transit in 1978, crawled up the steps of congress in 1990 for the ADA, and fight against police brutality, poverty, restricted access to medical care, and abuse today.

Teach about us.

[valtsv]

looked up my symptoms on webmd and it turns out i have an ancient ancestral curse that has been passed down my bloodline for generations

[sic-semper-hominibus]

[psychoticallytrans]

This blog will always be in support of people with subclinical or undefined disabilities.

As we see with the recent narrowing of the diagnosis of autism, as well as how the definition of EDS was narrowed, the diagnosis criteria for disabilities is not purely scientific, and often carries motivations that are closely tied to ableism. If someone is subclinical for a disability but is suffering from or limited by it, that will be respected here.

The second is more personally motivated. We never found out what my father's most disabling disability was, but by the end of his life, he couldn't be touched without experiencing pain. The fact that I can't put a name to his disability does not mean that he was not disabled.

Not knowing how to name your disability is isolating and frustrating. But here, you are part of the disabled community.

I hope that you get the care and accommodations that you need, even without a diagnosis to put force behind it.

[monster42069-deactivated2024071]

Doctors and RNs have the worst martyr complexes out of people in positions of authority.

[ooppo]

Idk why but as a kid I used to get hysterically upset everytime I would imagine a gif of a rotating cow because I could never stop the cow from rotating no matter how hard I tried and I would be crying and no one knew why

[ooppo]

[ooppo]

[ooppo]

[ooppo]

[headless-horsepossum]

My uncle is autistic so he has sensory sensitivities, and he's largely nonverbal so he can't tell you what those sensitivities Are, so what he does is, if you give him a shirt that is a bad texture, he goes and gets his scissors and he cuts it into tiny little pieces so no one can ever ask him to wear it ever again, and the thing is is that he is so totally right

[headless-horsepossum]

This post is okay to rb and also if you are neurodivergent when you are In A Situation you are advised to think "is this when uncle matt would go and get the scissors" and if the answer is yes then it is time to put your foot down