October is Dysautonomia Awareness month, so I am going to bore you all with a little bit of information about it, because you have probably never heard of it, and it is important for those fighting that their disease be known.
I have Postural Orthostatic Tachycardia Syndrome, or POTS, a form of dysautonomia. It is characterized by an array of debilitating symptoms due to the malfunction, or failing, of the Autonomic Nervous System, and the body’s inability to adjust to gravity (So clearly we should all pick up and move to the moon, haha). In short, anything a healthy body is able to do automatically, such as: digestion, oxygenation, regulation of blood flow and the heart, breathing, and so on, our bodies struggle to do. So little is known about this illness that most of the time when I meet a new doctor, or end up in the emergency room, I have to explain to the doctors what it is. POTS is never diagnosed without another disease, for it is a syndrome caused by the body’s inability to fight off another disease. There is no cure, and little to no treatment, but barely any research is being done. The only way to subside the symptoms is to control what is causing it, if that is even possible because POTS is often caused by other rare diseases. In addition, POTS patients are chemical resistant so limited medications can be taken without severe reactions. Instead POTS continues to break the body down, and before long the patient has a list of diseases to cope with; I have 7, a pretty severe case.
Getting sick changed my life and a cure would be amazing, but it all starts out with just a little bit of awareness. Though POTS is rarely a patients biggest health problem, it makes living a normal day-to-day life very difficult to say the least. If you read this far, thank you, sorry for the super long post. I hope this will help shed some light on all my hospital stays, or if you have ever witnessed one of my countless fainting or seizure episodes (Sorry about that— not my best moments).
Life isn’t always easy, but it is a beautful fight that I will surely win. I definitely could not do it without the help of my wonderful family and friends. If you have any questions feel free to ask, and Happy October!
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