#autoimmune illness

[sunrisethoughts02]

I think something we should talk about more in the chronic illness, mental health, and disability communities is the feelings of fear wrapped around high spoons days. It really is okay to feel nervous when you’re feeling good (even for just an hour). It doesn’t mean you’re broken or wrongs m. It’s okay to take your time learning what routines serve you best at different energy and pain levels. it’s okay to learn not to push yourself too far. It’s okay to acknowledge feelings of anxiety or fear or bittersweetness over really good moments. It’s okay 💜

[valcaira]

Stress increases the probability of a severe rheuma flare. School is incredibly stressful for me. Missing school stresses me out. I hate it here. What the fuck man

[softshirringsound]

Remember

You don't need to feel bad about having psoriasis patches! Think of them as dragon or mermaid scales! Or some other fantastic creature with scales! Or self grown body armor! You're a dragon warrior with mermaid tendencies! Create your own story based on where the patches form if it makes you feel better about them. But please for the love of God DON'T ITCH THEM

[diabetes-thyroid-girl]

So if anyone has read my little bio bit you’ll have seen my joke about waiting to see which autoimmune illness hits me at 32. Well I didn’t bloody make it to 32! I’ve just been diagnosed with Pernicious Anemia at 30. I can’t belive I have yet another autoimmune illness. Everyone around me is telling me how it isn’t as bad as the other two I already have (Type 1 diabetes & Hypothyroidism). They just don’t understand how it feels to have your body turn against you for a third time. This sucks BIG time! Anyone else going through the same thing or similar?

[valcaira]

gods i hate how straight up hostile the german school system is towards disabled people... attendance is highly overrated and extremely exhausting to keep up with :/

[all-my-secrets-in-a-pickle-jar]

ok you know what I am officially sick of? - all these “inspirational” stories and anecdotes about disabled or chronically ill people still kicking ass and taking names.. like the one story that keeps going across my dash about the woman with breast cancer but she “didn’t let it stop her” .. well guess fucking what. It’s okay if a sickness stops you: sometimes it happens. It’s okay if you can’t get out of bed because of your illness: you’re still amazing. We don’t often hear enough about people whose superpower is surviving, but that’s what a lot of us have to do .. just focus on surviving. We take each day as it comes and sometimes, just taking a walk around the block is a big fucking deal. Don’t underestimate someone else’s struggle. Don’t expect a person to live up to anyone else’s ideals. Just stop. If someone needs to take a break, let them. If someone needs to cancel plans because of their illness or disability, let them. Stop giving them crap and comparing them to other people who have more spoons.

[softshirringsound]

My arthritis? Probably as bad as it has ever been since I've started treating it with biologics and chemo. My sedimentation rate? Fuckin 2. My highest value was 5 and lowest was 1 in the 2ish years I've been getting it done 🙃

[softshirringsound]

The day after Remicade is the woooorst you guys.

I feel so weak and achy and just like uncomfortable in my body. There were 3 Social Events we were invited to today that all had to be turned down because I got out of breath and woozy making a bagel this morning. I really hope it starts helping me because these infusions blow and I really don't want to start over with a new drug.