#fibro stuff

[chronically-izzzzle]

These cordless heating pads from Amazon have been a LIFESAVER! $20 bucks (so not super cheap) but you can wear them to sleep or I wear them to class and OMG I do not know how I have functioned without them! The slightly upgraded model has a vibration mode that is super helpful for circulation and if you have issues with IBS too! ❤️❤️❤️

[one-real-wrimonkey]

The fun thing about a disability with lots of different symptoms is that I haven’t experienced them all yet and every now and again life hits me with a new achievement unlocked sign.

[fleetofshippyships]

killing time on tumblr trying to decide whether I should stick to trying to fix my sleeping schedule tonight and go to bed soon or say fuck it and stay up and try to write

it is a Bad Pain Day today and I know from the pain in my legs (it’s fucking raining 😒 I was wondering why my joints were that bad last night that I couldn’t sleep and whether it was about to rain and then it started raining around 3am so there we go) that I will not sleep again tonight so.....but do I have the spoons to write....

I sure af do not feeling like going to bed and lying awake with nothing to keep my mind off the pain that’s for sure

[fleetofshippyships-archive]

me: “I can’t do this today, I’m in too much pain/fatigue. I’d rather do it another day on my own.”

her: “You’re always in pain/fatigue, what’s the difference? Why do you have to make such a fuss about everything? Always has to be when it suits you. You’re so selfish. How would you possibly manage without my help? We are doing this now.”

me:

Wow, how would I possibly manage??? I’d do it when I’m able to do it, on my own and in no way affecting anyone else. 

I can’t even argue this. If over a year of repeated ‘yes I’m in pain on ‘good’ days, but it’s significantly less and less obstructive than on ‘bad’ days. Yes, I have a lot of bad days, that doesn’t mean I should do things that will make me feel worse rather than wait for a better day if they’re not urgent’ conversations has made no impact...it’s a lost cause.

The whole 'you're always in pain so you may as well do it anyway' mentality is the fucking worst.

[nonbinarypartypoison]

I feel like mental health proffessionals don’t realy consider that their patients could have other health problems that impact on their lives 

Like I had group therapy the other day and one of the things the nurse said was “the most important thing is to take care of your physical health, you’ll never be happy if you’re in pain all the time”

And I get where she was coming from but, I am in pain all the time. That’s my life and there’s nothing I can do about it, and that just wasn’t something I needed to hear

[fleetofshippyships]

sitting here 4hrs after taking painkillers for my migraine that did absolutely nothing, cos I didn’t react to my aura fast enough dammit it’s hard to know when my sensitivity to light/sound is pre-migraine or just fibro, and it’s hard to know when impacted vision is pre-migraine or just fatigue affecting the muscles of my eyes and fucking with my vision (yeah, that actually happens and it’s a bitch), and I can take more painkillers now but they won’t do anything, and I know they won’t do anything and yet...I feel like I gotta take them anyway...

pain that doesn’t respond to painkillers is kind of a mindfuck

or maybe this is just all that conditioning that if you’re in pain you take a pill and it goes away and if you say it didn’t do anything you just get told ‘but at least it took the edge off’ like you didn’t just say it did nothing and get guilted into taking painkillers that do nothing cos otherwise you’re an idiot and kinda to blame for your own pain cos maybe if you just took a painkiller you’d be fine and damn all your experience to the contrary

...and I’m still probably gonna take another painkiller because what if it actually works this time and I feel so awful I gotta try, right?

WRONG

and yet I already know I’m gonna do it anyway 😩

[fleetofshippyships-archive]

I hate when an abled person tries to get me to do something that will increase my pain/fatigue and when I say ‘no, that will cause me pain I don’t want to do it’ because the benefit of it does not outweigh the pain, they turn around with an attitude like ‘you’re always in pain. you did this thing last week that’s almost the same thing, so you can do this too, stop being selfish and rude’

Like, fuck off, the only person who gets to decide when I will do something that will cause me more pain is me, no one else. And every week is a different situation, every day is a different situation, you can’t base shit on what I did yesterday let alone a week ago. 

Just because I’m always in pain doesn’t mean I should do things I don’t want to do that I know for sure will cause me more pain, what kind of fucked up logic is that?

If it was someone who wasn’t always in pain you wouldn’t push for them to do it if it caused them pain, why does the existence of chronic pain suddenly make a pain-causing event acceptable to push on someone? That’s fucking bullshit.

[fleetofshippyships-archive]

xx-thedarklord-xx replied to your post “Damn, I’ve thought up several different fic ideas today that I wanna...”

is spoons a saying or metaphor that I'm unaware of? shks the visual was interesting

@xx-thedarklord-xx​ spoons refers to energy. It’s from the spoon theory, a way of visualising/explaining energy levels of people with chronic illnesses/disabilities.