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It's funny how I've started to hate "good" days.
I felt brilliant yesterday so I was out and about for 5 hours. How stupid of me to think I could actually be a normal human for a day and go out shopping for Christmas and baby stuff. I'm paying for it now of course. I hate good days because they give me a false kind of security that punishes me for my trust the next day.
Ever wonder what other people living with MS go through? Meet Jen O., MS LifeLines’ first video blogger. She’s sharing the good, the bad, and the everything in between of her life with MS. Watch the first episode of “LIFE WITH MS: Jen’s Story” now. More episodes coming soon! MS LifeLines Ambassadors like Jen are sponsored by EMD Serono, Inc.
17th April 2017
I met up with my TC last Monday at the pub for a drink. It was odd. I forgot how much we clicked and how easy it is to talk to him, that we have this same sense of humour so all we did was laugh. And yet, I felt nothing. No butterflies, no sweaty palms, no fidgeting, nothing. I realised P ain't shit, sure he's a great guy but I put him on a pedestal and I'm finally over it. I did it, guys. I did what I thought was impossible. I'm over him.
Ever just exhaust yourself getting dressed and then remember there was no need?
I wish I had known I would end up with MS so I could have learnt to drive years ago or not chosen to live a half hour walk from the town. Another day stuck in the damn house 😐
The stress of being told I need Lemtrada (Chemo) to help fight my MS has knocked me for six. I have the worst 'MS hug' (I've never had that before) and my legs are heavier than ever. My hands are really tingly too which has never been an issue before. My legs felt like that and then went basically numb so that's super worrying.
We are all a product of our own experience and if my new experiences in life are of being ill, stressed and stuck in hospitals then I worry who I'll become.
You might have heard: The holiday season is upon us. Jen O., MS LifeLines’ video blogger, has a few thoughts on keeping stress down and enjoyment up when MS threatens to crash the party. More of Jen’s “LIFE WITH MS” videos can be seen on our YouTube channel now. Come back often to see her latest posts. MS LifeLines Ambassadors like Jen are sponsored by EMD Serono, Inc.
You might be amazed at what you can pick up from listening to someone else living with MS...someone like Jen O., MS LifeLines’ first video blogger. Not sure? Why not take a moment to watch Jen share a few thoughts on why she thinks you might be interested. Watch the second episode of “LIFE WITH MS: Jen’s Story” now. Look for more episodes here and on YouTube coming soon. MS LifeLines Ambassadors like Jen are sponsored by EMD Serono, Inc.
TFW taking a shower is your plan for the entire day and night because it takes 24 hour's to recover 🙄💤
