Fuck global warming, it’s 52 in February in Michigan! All I needed this morning was my hoodie and it was fucking HOT in the hospital but I was cheeky and didn’t wear a bra today because of my oversized hoodie and man did I regret it, my big naturals need a bra lol I had my annual heart appointment this morning though so I would have had to take it off anyway so I said fuck it entirely. This morning was so stressful, my blood draw was really easy so very thankful for that but the hospital app was down this morning so we didn’t know where to go and the front desk sent us to the main hospital’s PET scan department when I apparently needed to be in the PET scan department in the cardiovascular center. So, I had to walk all over the various buildings to finally get to the right department and was a tad late but thankfully I was the only appointment so it wasn’t a big deal. For fucking once in my life they got the IV in the first try 😭 I almost cried, I’m such a hard stick it usually takes 4-5 attempts to start an IV on me. So, I was very thankful it went in so easily, it burned really badly though, or at least the medication did. They inject you with radioactive dye to make everything show up and then give you medication to simulate exercise all while you’re in an MRI machine to get imaging of the heart. It’s such a weird sensation, you go from half falling asleep to suddenly feeling like your sprinting in seconds, it’s not necessarily unpleasant but it is odd but like I mentioned earlier the medication burned quite a bit going in. The imaging was apparently sufficient even though the drug didn’t do its job as well as it was supposed to because they sent me home in a timely fashion. I got back home and took a very long nap and apparently the girl who wrapped my IV didn’t wrap it tight enough because the dresssing was soaked in blood when I took it off later. It’s bruised but not awfully. All in all things went better than they could have. Downside my labs aren’t good at all. My tacrolimus level is an 8 it’s supposed to be between 4-6, so that’s not good but reasonably easy to fix, they’ll just lower my dose again and repeat labs next week most likely. The really bad thing though is my liver is crazy out of whack again, which really blows. It might be as easily explained as my enzymes are spiked because I just got over the flu but last time it was this high is when I had CMV. I’ll get my results for the CMV test tomorrow. In more news no one cares about but I over share is my parathyroid is very high which is actually good because it finally explains my chronic fatigue and weird appetite lately. Hopefully they can get it under control and my energy levels will return and I might be able to do things again. In small good things my kidneys are stable, they’re stage 3b kidney failure but they’ve also been there for like 7 years so they’re not getting worse, dance party time.
TL:DR: I’m still dying slowly but instead of just my heart and kidneys doing the dirty work now my liver is back on board for murder too.
