#mslife

[mymagicmustache]

Shoutout to my pharmacy for running out of the one thing keeping me from becoming a sentient couch stain. No meds = no energy. No energy = brain soup. No plan = anxiety party, and guess who RSVP’d first? That’s right, Fear. She brought snacks.

Thinking is a luxury now. I go to do one thing, forget why, stand in place like an unplugged Roomba, and somehow end up eating cereal at 3pm wondering if this is my villain origin story or just another Wednesday.

Physically? I’m cooked. Emotionally? I'm scared—not in the dramatic horror movie way. More like, “what if this doesn’t get better” scared. The kind of fear you carry in your spine while smiling at strangers.

Still here though. Still drawing. Still sarcastic. Still wearing this invisible crown like it means something.

[childrenofankhseries]

#me #menow #ms #mslife #msthuglife #msfightclub #msfairyfightclub #darkfantasyauthor #momlife www.childrenofankh.com (at Alberni Valley) https://www.instagram.com/p/CTilU-nloB1/?utm_medium=tumblr

[msroundtable]

Shout out to my dad and brother for installing a second handrail (left) and replacing the right to match! These stairs are steep, and the top is the master bedroom, so this is a game changer! Happy Sunday!🍂🧡 . . #ms #stairs #pleasedontfall #multiplesclerosis #mslife #disabilitymodifications #autoimmunedisease #familyhelp #gamechanger #roundtable https://www.instagram.com/p/CVbICqKv_3L/?utm_medium=tumblr

[1001poorlifechoices]

In search of pages with funny Multiple Sclerosis shit because humor is how I handle the disaster that is my life. 🤙🏻

[eloisavaldes]

I guess it just became easier to remain isolated, with time. I can't remember when exactly I stepped into this loneliness of sorts bubble. I recall being at odds with being, and feeling isolated, somewhere around 2011/12, and even tried to get out of it. And I did, in a way. That's how I made some of my current friends, in Porto and elsewhere. And how I met my partner, too. When I came back to Coimbra I got into the habit of getting myself more out there, by going to some classes, and even after I was diagnosed with Multiple Sclerosis, a few weeks later I was shooting 📸 at a cosplay event, and then meeting lots of new people thanks to Pokémon Go! I was finally feeling like my old self, the Eloísa pre-isolation times, that I knew. And I was happy about it. What changed? When? I'm not sure if I truly wanna know anymore, but if I had to take a guess I'd say my loss of mobility and need for more physiotherapy than before was at play here. Hmmm... Yeah, maybe that whole year without PT didn't help, but stillllll... Can I point it as the sole cause for me currently feeling at ease with my isolation? Well, it's not 100%, and this year I'm having visits over at home, and I have friends, still... So maybe it's just a new form of dealing with things that makes me feel like I'm isolated, but not really being so, and thus me feeling so much at ease with it, maybe? 😅 Am I making any sense to you!? I mean, sure, I'd like to be able to go places more, and more easily. But at the same time, when I have friends coming over here instead that makes me more at ease with not getting out so much. Minus the REALLY ODD times I miss going out at night 🎶🍻 🕺🏻, I'm mostly just fine and dandy being at home, as long as I have my Wi-Fi and snacks... 🤷🏻‍♂️ When did that happen? Was it last year, after I missed WebSummit? Could that be the trigger for how I am, now? A psychological response of adjustment to my current mobility status? Is this making sense to my #MS sisters? __ #Blog #MSwarriors #MSlife #msawareness #FuckMS #MSwarrior #IhaveMS #thisiswhatmslookslike #personal #isolation #isolated #selfie https://www.instagram.com/p/B0urzehAU8A/?igshid=qp1fda5ewhj3

[superdave40]

Don’t take this for granted! This is the first I have been able to sit outside in the evening in years!! Every place we have lived has been to hot for me to actually be outside in the summer. #fuckms #mslife #heatintolerance #daveagainstms #mssucks #multiplesclerosis #summer #summer2017 #backyardlife #relaxing #chillin #yyc #yycbeauty (at Rocky Ridge Drive)

[eloisavaldes]

It has been some really rough months health-wise since the heat started in May. I had two MS mini-relapses this Summer, and a whole lot of exacerbations in-between. #Tecfidera is helping me. I have this feeling that if it wasn't for Tecfidera those would be major relapses like 2 years ago. Anyway, this post isn't about MultipleSclerosis, despite the fact that I'm giving you an update on a part of my life. I came here today to say thank you to my friends who've been supporting me, either through donations or other ways, like listening to my rants, asking if I need anything; still asking me out for a drink, etc. It all counts! Thank you! ♥ I also want to thank my friend @ricardjorg who sent me this awesome game that I'll write about later on my blog! 🤗

[deaenx]

My family is full of delightful weirdos, and I’m slowly piecing together what kind of "neurospicy" we each are. I’ve realized I probably have ADHD. This, mixed with MS, is just, wow, I might forget to wear my clothes one day and won't even feel the cold. My husband has a deep obsession with guns and maintaining them, he can go on an on about them. And struggles a bit with understanding other people’s emotions. I got used to it, but try to remind him sometimes. Our kid is super extroverted—definitely the chatty type—but we’re still figuring out what her spice might be.

Now, picture this eclectic mix of personalities waking up together, only for all of us to dive into a chorus of echolalia - we are random noise generators. It's like Blob Opera here, but it's Chipi Chipi, Mary on a Cheeki Breeki...