No, your event is not a 'safe space' for queer kids if disabled queer kids cannot access or attend it safely.
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No, your event is not a 'safe space' for queer kids if disabled queer kids cannot access or attend it safely.
“Non-epileptic seizures aren’t real seizures.”
Non-epileptic seizures are seizures in the sense that they generally match the symptoms of epileptic seizures, rather than in the sense that they come from the same neurological problem. In this context the word “seizure” is used to describe purely outward symptoms, rather than the uncontrolled electrical discharge associated with epileptic brain activity. In my experience, my seizures match quite closely with the symptoms of epileptic absence and tonic-clonic seizures. No, it’s not the same as epilepsy, but they’re still seizures in a certain sense of the word.
Also a note that not all non-epileptic seizures are psychogenic or associated with stress or trauma, ok bye.
FND and PNES
I see a lot of people with FND and NEAD (or NES) clarify that not all cases of FND or NES are caused by trauma or stress. That is very true and so important to talk about.
But I just want to say that if your FND and/or PNES are caused by stress or trauma, that doesn't make you any less disabled and it doesn't make your symptoms any less real.
Trauma does unbelievable things to the body and so does stress. Trauma is stored in the body, so it is unsurprising that for some people that is where symptom show up. It doesn't make you any lesser than someone with other causes for their FND or seizures.
I have a question for people with NEAD/NES/PNES/Dissociative/Functional seizures.
How long are your seizures? Because ours are quite long. Maybe we're just weird but here's a poll anyway:
How long are y'all's big/long seizures? (on average)
A few seconds
A few minutes
Quite a few minutes
An hour
2 + hours
5+ hours
7+ hours
12+ hours
18+ hours
24+ hours
Coming to terms with the fact that I am disabled is such a strange thing to experience. Just like that, one diagnosis, I'm disabled.
I've been at the edge of the disabled community as the partner and friend of many disabled people but I don't know how to make me feel like it's okay for me to interact with that space for myself.
I look at other people struggling so much more than me and I don't feel worthy of the word disabled even tho I know that we're all struggling, it doesn't matter how much.
I just need to take in some of the support that I give to my friends and partners when it comes to validation
uuuhhhhhh guess who quit their job today
having a seizure the first day of pride month? very homophobic of my brain. cancelling my nervous system rn
I’ve been having at least 2 (sometimes up to 12) seizures per day, every day for the last 25 days. I’ve had this disorder for 5 years and it’s never been this bad. Every doctor I’ve seen throws up their hands when I tell them my seizures are nonepileptic, like if they can’t throw drugs at it it doesn’t matter. Im at a loss. There’s no consistent trigger or presentation, so it’s hard to pin down what’s happening and why. What can I do?