Today I went to see my consultant, a few days before the ‘big’ appointment at Royal Brompton. Brompton is a special tertiary centre for severe and brittle asthmatics as well as those who are unresponsive to standard therapy.
After an 11-month period containing a plethora of admissions, minimal recovery, a cocktail of ever changing drugs, pain and sleepless nights, Lucy and I have beeen gearing up to this appointment for months.
We first applied for the Xolair drug in July 2016 and have hit every funding stumbling block possible. A fruitless and tiresome journey, despite some outstanding respiratory consultants pulling out all the stops at my local hospital.
So, I sit in the waiting room, approximately 62 hours before travelling to Brompton and find myself feeling fairly sick at the prospect. The last two times I’ve seen my consultant she has admitted me to hospital (one of which saw me land promptly in ICU) so she’s understandably nervous when she ascertains the state of my lungs.
My pre work-up is done. All I have now is the wait and the withdrawal as I go without a small handful of my total drug therapy between now and then.
Work, as always are outstandingly accommodating. I will work from home for two days managing the symptoms and avoiding possible triggers to make sure I get there in one piece.
I leave you now to celebrate Lucy’s birthday and play normal. The presents are wrapped and the cards written - let’s hope she likes them!