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One Circle: The Pond
Tomorrow night I’ll be giving a short and sweet message of resilience and hope to my alma mater alongside my dear friend QueenB. If you can come out and support the KC community, we’ll be grateful and glad to see you! 🎗💚💛🐺#worldwithoutsuicide #realconvo #onewalk #keukastrong #survivor #realtalk #afsp https://www.instagram.com/p/B2VXFVrnfcA/?igshid=1l8c75mf271ds
Isn't this cute??? The Tshirt competition is up and running and Team Cut The BS needs your help! You can vote once per device so vote from all your devices! And then please share with your friends and have them vote!!! Thank you so much in advance!!! We so want this award!!! #curet1drightmeow #diabetes #t1d #t1dlookslikeme #kitty #tshirt #hillarious #vote #jdrf #onewalk #lasvegas #blue #cutthebs #cure
We're so proud to be a partner of #JDRF this year at their annual One Walk event this Sunday, October 1st at the Chicago, Warrenville, Schaumburg, and Palos walk sites. Registration will be at 8:30 AM with the official kick off at 9:30 AM. We'll be providing our signature Buona Beef among other delicious eats to everyone that volunteers to fight the good fight against Type 1 Diabetes that day. Visit JDRF.org/Illinois for more info. Hope to see you all there!
This is a painting I did of Thomas, the brother I lost to cancer. It took me about a year to do, not because it was necessarily difficult, but because it was emotionally draining. If we reach our goal, I could try and send out a few prints if people wanted, as a thank you. I haven't posted this painting on social media yet because it is probably my most personal and has so much of my heart in it. Posting it now means that this walk really means a lot to me and so does Thomas. So thanks for taking the time to listen to me. <3 and please if you can, please donate. 5 or 10 dollars will help out an enormous amount. You can donate here to Team Mom and Tom, http://www.onewalk.ca/site/TR/Walk/Toronto2016?team_id=6600&pg=team&fr_id=1070 #onewalk #onewalktoconquercancer #princessmargaret #art #painting #princessmargaretonewalk
6 months and some out
I’ve reached 6 months!
So lately not much has been happening. I have been dealing a lot with loneliness and frustration but I think that is par for the course.
Medically, I am doing alright. I haven’t had any more problems with CMV so far, which is really cool. I’ve still got my PICC line in, which is less cool but I will live. My counts are a bit on the low end, but they are stable and hanging in there. I have received a few hemoglobin transfusions in the last few weeks, but everything else seems alright. The only thing I have to really worry about now is the sun, because my one medication can increase my chances of getting skin cancer. And I still have to worry about sick people of course.
Another new development is a rash of tiny bumps on my chest and backs, which I have been treating with a low dose steroid cream as prescribed. My doctor said he could do a biopsy, however it would likely be inconclusive. It might be mild graph vs host disease, or it might be from medication, but either way the cream is helping.
Also, there are a lot of ducklings on the pond right now, which is very special. Oh! And that art piece I made will be featured in another show! It will be in the art show for OneWalk to conquer cancer, for the healing arts program.So if anyone is in Calgary here are the deets:
Shaw Millennium Park/Saturday June 25th
I’m not sure what time it is, but I’m sure if you go there someone will be there. It is apparently a big event with lots of participants.
Happy Trails!
Bailey