Having physical deformities is very isolating.
I have deformities in my hands, wrists, and everything from the pelvis down. There are some movements my body is physically not capable of and that will never change because my bones are a different shape than most people’s. My legs are rotated in a way that braces do not exist for, I would need highly customized super supportive braces for it to do anything other than sit there and be an explanation as to why I walk weird. Off the shelf aids do nothing for my body.
When you look from a distance I look mostly normal because I am sitting in a wheelchair and probably wearing long baggy pants, but the first time my boyfriend saw my legs uncovered and fully extended he found it hard to believe that I am able to walk at all. There’s not really a way to explain it without showing a picture which I am not doing.
My hands do not move the same way as yours probably do. My thumbs do not have full range of motion because I am missing half of a joint in both of them. I hold things differently, I do things differently, and I have been bullied relentlessly my entire life for it.
I’m tired of physical deformities being pushed to the side because it’s too much for most of you. Too much for the world to have to look at the body I don’t have a choice for.
There is not a single position that is comfortable for me unless I am doped out of my mind on several different types of medication. I have had doctors look me in the eye and say they have never seen anything like this before and they can’t help me. I have been told by a doctor that if she was me she wouldn’t have wanted to be born.
And this is all met with “well can you blame them?” Because my existence is some people’s worst nightmare. Being me is their worst nightmare.
While we’re here, never try to police the language someone is referring to themself with. I call it a deformity because that is how I view it for myself. That is what I am comfortable calling it. It’s the same reason I use the word crippled, it’s undeniable. I don’t like using flowery language to describe what has been a very hard experience. I don’t view it as something to be ignored and I don’t view it as something to be made pretty, it’s something that is real and very difficult.
This is why I am so drawn to Hephaestus. He has deformities in the same places I do. He was the first place I ever saw someone that actually looked like me. But also I feel like it’s pretty sad I can only find representation in a god from a religion that was at its highest over 2000 years ago.