Last Sunday I started to have a fever, not good when you're already on iv antibiotics. I decided to wait and see if it would go away, but after an horrible night I still had a fever so I called my nephrologist. When he called I've had a 39,6C/103.3F fever, so he wanted me to go straight to the emergency room for blood work and blood cultures. My PICC line didn't have any blood return, so they had to do it by arterial puncture. I was admitted with a sepsis, because my blood pressure was only 75/25 and my heart rate was around 130. Wednesday I've had surgery to remove my infected port (originally this was to replace it, but because of the fever they only removed it), but they didn't place a new one yet. It was planned to do it next week, but they changed plans and won't do it for another 3 weeks, until they're completely sure I won't have fevers or blood cultures that are growing anything anymore for at least a week after finishing antibiotics. They also pulled my PICC line and placed a new one, just to be sure the bug wasn't on there either. They couldn't place it in one try, because my veins are so bad. I'm home now, but don't feel great. Head is pounding and I'm extremely nauseous from this new antibiotics. Also it's just a bummer that I also have to wait even longer for my shunt revision now and need an extra surgery to place my port back. Sometimes I just hate my body. When the on call nephrologist for this weekend heart I was hesitant to go home, afraid something would go wrong again, she gave me her private mobile phone number, so I can call her directly if I don't feel well or trust it. Also find out my hemoglobin it really low. ----------------------------------------------- #chronicillness #invisibleillness #portacath #portacathsurgery #PortProblems #piccline #sickandtiredofbeingsickandtired #hospitallife #neverendingstoryofmylife #highfever #sepsis #sepsissurvivor #portinfection #intracranialhypertension #spooniestrong #spoonielife #spoonieproblems #shunttap #shuntproblems #shuntrevision #ivantibiotics #antibioticsfordays #myheadhurts #chronicpain #chronicfatigue #totiredtofunction #butyoudontlooksick #lowbloodpressure #hypotensive #lowhemoglobin (bij Isala Ziekenhuis Zwolle)