#pots?

[ruthniss]

Wait that's not normal?

In trying to figure out if I have POTs (all signs point to yes, but getting to a cardio is being impossible) it kept mentioning EDS as a co-morbidity. But I was like I am not hypermoile...

Both my knees can 'go backwards', so can my elbows

I am flat-footed (who knew this was tied to that?)

My thumbs can touch my wrists (TIL< why would I have done this otherwise?)

My ankles are very subject to rolling/ spraining and bend outside the normal range

I bruise like a banana (esp. my legs)

Snap, crackle and pop! (knees mostly but others can too)

And now this? Can I PLEASEEEEEEEE have a break?

[fibromyalgicaf]

The chronic illness life is rough (things are far from great) but I do have some small positive things happening...

I'm getting out onto the patio for sun and fresh air more regularly

I'm doing showers or baths a bit more regularly (aiming for at least every second day at the moment)

And we got given a new lounge set so I can sit with my partner and the child more often (our old couch was so busted, I couldn't hack more than a few minutes)

What are your wins recently? Even something small that's making a slightly positive difference?

[nonbeans]

I just got fucking diZZY after my shower ya'll.

[lolbitbutsus]

Had a panic attack at church today.

No service dog bc pastor is ableist and said no a few months ago.

Got overstimulated,and had to walk close to people,someone stuck they're hand out at me,triggerd PTSD. Tried to calm down and whent around the corner and laid down,stayed there the whole hour and 20 mins.think I passed out at some point for a moment(not sure tho),was very dissociated barely got any of the lesson.

[crowcussion]

consciousness go bye bye

[sevasey51]

So I’ve not been posting recently because we’re gonna start at monday it went pretty good, and the rest of the week Thursday was amazing, i passed my medical for my job so I have no restrictions on my medical so its all done now I’m just waiting for everything to come though to finalise it all :)

HOWEVER my chest and heart are really confusing me I wear an Apple Watch and it been everything’s been going haywire, like my chest has been in so much pain and I’ve been really dizzy too for 3/4 days and last night it scared me a little bit it’s chill because

This was weird for me because I never go over 100-110 unless I’m working out so I’m confused, my humans i need help if you know what it could be or anything I’d appreciate it 💖💖

[thefriedbird]