The waiting game: a spoonie perspective
One thing I have found surprising as a spoonie – is the amount of time you end up waiting.
Waiting for appointments, for tests, for results of those tests…
The list goes on.
And this waiting is hard – waiting to find out what is wrong, or worse, that they still don’t have answers.
It can certainly spike your anxiety!
But that isn’t all.
Because sometimes, such as with certain digestive conditions (looking at you, coeliac disease/gluten intolerance), waiting isn’t just as passive experience. It is an active one, where you have to purposefully keep eating those potential triggers so that those tests have a better chance of finding out what is wrong.
This, frankly, sucks.
I am currently in this active waiting period now for coeliac disease. I mean, I am waiting for a lot of health things in general, but this one is the kicker right now.
Another two weeks before I can get my blood tests – which means another two weeks of pain, and very long visits to the loo (thank goodness YouTube exists).
Normally, I want this blog to offer some hope, or at least some tips to making things a little bit more bearable.
But right now, I don’t have any answers. I really wish I did.
Part of me says to fight for what you need. Push for appointments, tests, results, next steps. Chase them. Don’t be afraid to be “that person.”
But sometimes, that doesn’t work. Sometimes, there isn’t someone you can nag, or people you can chase.
Sometimes all you can do is wait it out. Know that sooner or later answers will come.
It is a horrible position to be in – I am very painfully aware of it.
But no matter what is going on, it will pass. Nothing lasts forever. Including the waiting game.
And while we wait, know that I’m right here with you – just as bored, fed up, anxious, and tired. But we are never facing this truly alone.
Sending spoonie hugs
