Survey about renaming PCOS
A team of doctors have put out a survey about renaming PCOS! You should fill it in!
Why fill it in?
PCOS is a misnomer. Lots of people with it don't have polycystic ovaries.
They're open to keeping the acronym the same, which I think is a good idea personally. That would help people find existing resources, especially resources from the intersex and PCOS communities.
As @intersexpolls pointed out, changing the acronym would be a barrier for PCOS folks learning that we, the intersex community, overwhelmingly agree that hyperandrogenic-type PCOS is intersex!
There are some reasonable options for what PCOS could instead mean! Like P could be polyhormonal or polymetabolic! And C could be for complex or cardiometabolic! I also like S for spectrum instead of syndrome! (so... Polyhormonal Cardiometabolic Ovulatory Spectrum? Maybe?)
There are also some VERY BAD options like adding "female" to the name, which is straightforwardly transphobic.
The folks running this whole thing do not seem very great about gender inclusivity, like only asking "women with PCOS" (my emphasis) to fill it. So tell them that's transphobic bullshirt, but like, diplomatically. Because doctors have very fragile egos.
You do not need to have PCOS to fill in the survey! Despite the language on the landing page saying it's for "women with PCOS", the survey itself explicitly includes PCOS allies.
