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a story of my name
How to influence people the right way and how not to push "the common good" down people's throats the wrong way. And how politicians and the public health bureaucracy spectacularly botched their COVID messaging.
I think I might start modeling again for right kinds of projects.
a time for gratitude.
From Willow: I just found this in the draft folder, dated Dec. 15, 2020. Apparently I inadvertently kept it in the draft instead of publishing it! So I am putting this out right now -- if you thought this makes no sense in the context of my earlier article today (July 7, 2021), that’s why.
In a time like this, it is too tempting for me to complain and whine about so many things in life. But this year I also find myself in a place of deep gratitude.
Four years ago, I moved out of a major Pacific Northwest city where I lived for over 19 years. Of the 19 years, I lived on the street for eight years total. The cost of housing was skyrocketing thanks to gentrification and revitalization of central city especially during the late 2000s and early 2010s. Yet, I could not find a courage to find another place outside the city, in part because of my fear that the suburbs and exurbs would be more “conservative” and thus less hospitable to anyone who isn’t white, straight, and middle-class, and in larger part because I feared I would lose all the resources and social capital I had come to depend on.
It was often said that it was impossible to starve in the city. At the time, it was not too difficult to survive there as long as one knew the how-to. Even when I had no more than five dollars to my name, I had never gone a day hungry. The city was very walkable and bikable, which allowed me to get around at no cost to me. From that environment to a great unknown was something I could not even imagine.
I was also always “on the go” since very young. I was never a homebody. I could not imagine how I could survive without all the sights and sounds of the city and things to do and places to go.
Last four years, frankly, has been a bit monotonous. Time flies very fast when every day is barely distinguishable from another. The nearest town is 50 minutes away on a poorly maintained county road. I’m lucky if I go out there once a week, and a day trip to the big city once a month.
At the same time, this year really made me feel thankful. The chance of me getting COVID is next to zero since I have little to no close contact with anyone. With all the crimes, riots, and hate group incidents in the news, as well as the notable increase in the houseless population and campsites in the city, I am grateful that I have been largely insulated from all this during the last four years.
And oddly enough, I feel safer in this Republican-dominated county than in the Democrat-dominated big city. Mostly people here are friendly and civil. During the last four years I have not personally encountered any discrimination or hate in this area. And I also noticed that this county is a lot more diverse than I originally thought.
This article was published on Dec. 15, 2020, at forest.willowashmaple.xyz. Copyright 2021.
A bit of mental health update and random thoughts, July 7, 2021 edition
After a few months of wait-and-see, and having anxiety attacks over the thought of it, I finally got myself vaccinated on June 4. I deliberately chose a location that was known to be low-stress and not staffed by assholes. Since I got a Janssen, I did not need to make two trips into the Big City (I never feel safe to get any kind of healthcare in the small, right-leaning town nearby). Fortunately I had zero side effects (though, should I be worried about this?) and a month later there is no signs of whatever the doomsday scenario I have heard of. (I know: 1 out of 500,000 possible such incidents is less than the chance of 5 out of 100 possibility of me being hospitalized for COVID because I weren't vaccinated - and with the rise of the Delta variant, to me it boiled down to statistical probability).
A couple of weeks ago I planned on going to the Pride festival about 30 miles away from here, but I had to call it off because of the heat wave ("once in a thousand year" event with the peak temperature of 119 degrees Fahrenheit). It was too dangerous for me, although the event did take place with a modified schedule, moving it to earlier hours to avoid the heat. It has been over three years now since I have been to any Pride event, so this sucked.
This past Sunday I managed to return to my church, after two years of being away. The church had just resumed regular services without capacity restrictions a few weeks ago, and also there was the annual church picnic (which did not happen last year for an obvious reason), so I got to see many people that I hadn't seen in a long time.
In retrospect, living out here in the woods had taken a big toll on my mental health (though, don't take me wrong; there are many positives too -- I feel like being here kept me safe from COVID, the Trump regime, and riots during the past four years). Isolation, monotony, and boredom have been a big problem.
There are some common misconceptions that autistic folks are "anti-social", that they are always "self-absorbed", and that they do not "function" in social settings. For some time I ended up internalizing this sort of hate, while my chronic depression pushed me into giving up on myself.
But in reality, some social interactions are necessary part of a healthy living even for me. And to a large extent I enjoyed attending events, being part of groups that are dedicated to specific causes or tasks (such as activist organizations), and even taking leadership positions in such groups. This is in spite of such scenarios often wearing me out and often causing severe anxieties from time to time.
What really bothers me, and burns me out, though, are people who are not consistent and steadfast: people who are flakes or liars, those who say one thing one day and another thing entirely different the next day, people who do not follow through, those who keep changing their stories and do not wholeheartedly commit themselves to things that they say they will do, those people who let their emotions, whims, and moods (even if they call those "gut feelings" or "the spirit" or "following my heart/passion/intuition/etc.") make decisions for them (please use your brain and reason to think -- God gave you the capacity for intelligence and reason!).
And the others who burn me out are people who think emotional and interpersonal dramas and conflicts are somehow "good" (ostensibly because they "challenge each other and help us grow"). "Process"-oriented people seem to like this for the sake of it, or maybe because it makes them feel "connections" or whatever. I don't get it. Please keep your personal issues and dramas out, we're trying to get stuff done.
I do not have patience or spoons for these. Regrettably these phenomena seem to primarily afflict the females far more often than the menfolks, and that really hurts. For many years I considered myself a feminist and elevated women, but I've grown so profoundly disillusioned with women and feminism over the past three or so years because of this.
I'm feeling really distrustful of people lately, though. I really don't know who or what to believe anymore.
On a different topic, I am thinking about teaching art and/or writing online. It seems like something I can do on a part-time basis to make more money. I know I've sort of put the art on the back burner some time ago, so you might be wondering why now? First, it is mostly for practical reasons: I can use extra money coming in, and if I accept crypto (mainly thinking of DOGE, NANO, LTC, and BCH) for payment that would be such a niche that I can gain a good competitive advantage. Second, I think I need more variety in life right now and having a less "brainy" and more creative outlet would be positive.
This article was published on July 7, 2021, at forest.willowashmaple.xyz. Copyright 2021.
The recent leftist reactions to the Hamas terrorist attacks on Israeli civilians are a perfect case study in the core belief of Woke: morality is defined by whoever who suffers the most.
No surprise why the Woke sides with Hamas never mind how sexist, xenophobic, homophobic and transphobic Hamas is, and the State of Israel is pretty much the only place in Western Asia where being LGBTQ+ is not a crime. But no, because Hamas is supposedly more "oppressed" than Israelis whatever Hamas does is excused.
I'm frankly getting tired of this. In the 20th century, Gandhi, MLK and Mandela all have chosen to take a moral high ground despite their being viciously oppressed and violently persecuted. By today's Woke standard they will be attacked for engaging in "respectability politics."
Hamas does not want peace. They want annihilation. And they have no moral qualms over making their own children human shields as they conceal WMDs inside hospitals and schools. If the Woke condones this it only means that the Woke is utterly amoral and morally bankrupt.
Go get lost.
When I was in high school (the 1990s, believe it or not!), I recall reading a passage in a book that read: “Americans are the people of entitlement.” These days, it’s probably better to say, Americans are the people of grievances.
I feel that much of the toxicity in the United States today comes from this culture of grievances and resulting tribalism and polarization. Some may call it “identity politics” or “oppression Olympics” or “social justice movement” but I see exactly the same thing happening among the conservatives and nationalists too. Grievance seems to be the driving force of public discourse these days.
Because of this, I try to make conscious choices not to resort to grievances. I do not like to hide behind whatever the “labels” that might be politically and socially expedient to wear. Human lives are complex. Sure, I am autistic, POC, immigrant, and queer. But I also grew up in a life of privilege, and to the extent my parents could, they gave me opportunities at getting good education; I have never experienced poverty until I was adult. With every “oppression brownie point” I may have, I can also be an oppressor, too. And I live on a stolen Indigenous land that I thought of as a Land of Opportunity and American Dreams. Moreover, character and agency matter. Much of my life is a product of series of bad choices I made. as well as good ones. It would be unfair to blame others for the consequences of my moral and ethical choices.
But sometimes, I wonder if I am suppressing too much of my sorrows and frustrations in hope of not creating a scene, or to not “rock the boat” or to make other people “comfortable,” The truth being, I’m kind of at a breaking point when it comes to this.
The word “autism” was coined 110 years ago (1910) by a Swiss psychiatrist, from the Greek word αὐτός (self). This was perhaps because to a neurotypical observer, an autistic person seem too “self-absorbed” or even “narcissistic” and unable to “connect” with others, as if there is nothing outside their life other than themselves.
The truth is, it is more likely that autistic persons lack a strong sense of self. We tend to be influenced by others. Often we don’t have a very clear idea of who we are and are prone to become “chameleons.” And we try too hard to fit in. We care way way too much about what other people feel or think about us, and that’s even more anxiety-inducing and frustrating because we cannot easily guess (but we usually know if they’re lying or bullshitting to us).
About 10 years ago I began getting involved in all types of community organizations, activist groups, and clubs in hope that I could find some sense of meaning and purpose in life. I wanted to be worthwhile. I had volunteered for a few non-profit organizations on an almost daily basis. To an extent I enjoyed this experience and I met so many people that I would never have had. I was also part of the local art scene. I’ve shown my artwork in galleries and even had two solo exhibits during this period. I was busy and always on the go.
But I found myself not getting the same kind of respect the neurotypicals get. I was at best being tolerated and humored, sometimes even pitied, and sooner or later I found out that everyone was talking shit about me behind my back. I know people look at me like a freak of nature or an imbecile. They don’t tell me that in my face but they sure cannot hide it and I certainly know it. And I saw numerous times that the organizations that I got myself involved with imploded and dissolved because of me.
I’m tired of making victims of everyone around me by merely existing, as though I’m some sort of radioactive pollutant. Yes, I have done a lot of stupid things (in retrospect) while I was overzealous and overly devoted to the “cause of the day.” I took the missions and works of those organizations very seriously -- too seriously -- and worked very hard to get them to be in a better position than how I found them. Sure, I was not perfect. I could have done much better, and I have a tendency to become extremely territorial when I take my work seriously. I know I’ve alienated quite a few people because of this. But I was always the one who was blamed for whatever the shit that happened. While in my face they feign some appreciation it was clear that they were having meetings without me and my knowledge to air their grievances over me.
There is no genuine acceptance. I do not feel safe around people. I don’t appreciate their dispensing of know-it-all “advice.” They’ve never walked a tenth of a mile in my shoes. And if I said anything they think “the crazy is freaking out again.” And I know they don’t really want to say what they want to say, either, since they think I’m a dangerous mental case and they have to walk on eggshells so I don’t become violent or something (yeah right!).
This is why I’m being very very selective right now with my involvement with whatever the things the neurotypicals around me are doing near and far. I’m probably useless to them anyway, and I don’t have any spoons left for their constant need for emotional connection and uncompensated emotional labor.
If you spend at least some time with an autistic person, sooner or later you will hear about “autistic burnout.” It is important to understand that this is a common phenomenon among the autistic folks, and that it is not the same thing as what is commonly known as “burnout.”
delusional but a (reasonably) happy life.
Narratives are everything in today’s society. Political operatives, marketing professionals, preachers of Prosperity Gospel, “Law of Attraction” promoters, and motivational speakers all run on this principle.
In many ways, I know I maintained my sanity by controlling the narratives about me, and by fighting whatever the narratives and labels society wanted to impose on me.
I have survived more than a decade of homelessness and extreme poverty through this. As someone who was a product of the Word-Faith branch of Pentecostalism and a hopelessly gullible soul that used to believe anything (at least for a while), the most reasonable thing I would do was to deny the predicament I was in. That I was somebody, not nobody. Otherwise it was unbearably depressing: I was a literal bum, a chronic homeless, with obvious signs of severe mental illnesses, who was too anti-social and defiant to ask for help. And I managed to pass myself off like a “normal person” pretty well. I was able to successfully infiltrate the world that would otherwise never allow chronic bums to step a foot in, maybe out of fear or prejudice, or simply that they don’t belong there.
In retrospect, I was very likely delusional and my life was almost entirely founded on make-believes, and this has been the case since my early adolescence. I used to believe in all sorts of fringe ideas, such as conspiracy theories and fringe legal theories. I was able to convince myself to be all kinds of somebodies even though there was no objective evidence to go with it. And by convincing myself to be that somebody, I was able to present that make-believe self to the world around me with a relative ease, and I was also adept at quickly learning just enough facts, jargons, concepts, and terminologies so I could carry a conversation and not be immediately seen as a poseur (but in retrospect I now know I was extremely arrogant and made a big fool of myself).
Don’t take me wrong, this was a blessing. This was also a coping mechanism and survival mechanism. Because I was able to do this for many years, I was mostly able to stay away from the most depressing aspects of street life, such as shelters, jails, and soup kitchens. The downside to this, was that I lived outside far longer than 95 percent of all who have experienced houselessness, including nearly all of my 30s.
I was delusional. But I was rather happy, to a reasonable degree, even when I was freezing my ass in the middle of snowy December at 2:30 in the morning trying to sleep. I had something to look forward to. I was resilient. I was capable of dreaming. I had life.
I was pretty much a real-life Sara Crewe, constructing own make-believe world to maintain sanity until (in the classic Word-Faith/New Thought/Law of Attraction style) something comes to manifestation.
This year, as I recover from the worst autistic burnout of all times in the midst of the COVID-induced social isolation, I became increasingly critical of this past. All that I feel lately are shame, embarrassment, self-loathing, guilt, regret, and anger at myself for being so delusional. I am deeply unhappy. And depressed. And hopeless. Suddenly it had occurred to me that I was just a nobody.
The “conventional wisdom” is that this is good. Who should suffer from delusion, right? This has got to be a sign of healing. Growth. Self-responsibility. “Adulting.”
But I wonder: which is really better, delusional but happy, or “sane” but extremely unhappy to the point I can barely get up every morning and do something?
Atheists such as Richard Dawkins and Carl Sagan assert that religion and faith are harmful delusions. Yet, it is also true that these “harmful delusions” have shaped the history of the United States in a mostly positive way, provide ethical and moral underpinning for our social fabric, and even offer numerous health benefits. And religious people tend to be happier and healthier.
I don’t know. I could’ve done better, for sure. But now shame and regret are literally tormenting me and keeping me from moving forward. I feel like I have accomplished so much more when I was delusional.
autism and religion: my story.
This is a republication of my essay dated on Jan. 3, 2020. It has been slightly edited for this version.
This is my personal story. As it has been often said, if you’ve met one autistic, you’ve just met one.
It seems that for the neurotypicals, religion and/or spirituality is mostly an emotional experience, to provide a sense of calm and comfort amidst the challenges of the world. I’ve heard many “testimonies of salvation” that are littered with words like love, feeling, hope, and sadness.
In my younger days, I desperately longed for those experiences. Like some “model Christians” would often tell the church, I wanted to “feel” God in forms of supernatural revelations or miraculous convulsion or ecstatic sense of joy. I’ve traveled to many Pentecostal revival meetings and televangelist “miracle crusades” hoping to get a taste of it. None of that happened in my life.
In fact, to me, coming to Christianity (I was not raised in any religion, as my parents were atheists) was mostly a cerebral experience. I was convinced of the veracity of the Bible through the Moody Science Films and books written by creation scientists, as well as by the highly scholarly Bible studies offered by churches. (And one day I had come across a Jehovah’s Witness book called Life: How did it begin – evolution or creation? – which led me to almost become a JW at one point, until when I noticed a doctrinal contradiction around their beliefs of death and resurrection; I left them when their elders could not sufficiently answer my question! Eventually I ended up becoming a Fundamental Baptist at age 15.)
A couple years later, I switched to a Pentecostal church, looking for “healing and deliverance.” Their charismatic worship services were new and exciting for me, and so were the fervent prayers and speaking in tongues. This was in the mid-1990s and the suburban megachurches of the baby boomers seemed to be the coolest, cutting-edge church experiences.
Yet, the vague, fuzzy “spirituality” never worked for me.
I was drawn to the traditions and structures of liturgies. I’ve heard of a so-called “Messianic Jewish” congregation being advertised on a local Seattle Christian radio station one day, and I decided to check it out. The Hebrew liturgy from a siddur (albeit a modified one) and ritual elements were something I appreciated deeply. Yet, it did not take very long before I realized how shallow their misappropriation of Jewish tradition was, and their understanding of the Bible was no better than those of the charismatic megachurches.
I decided to study Judaism for real. I’ve been to Chabad and Kollel classes to learn more about Orthodox Judaism. I’ve read through the Mishnah. I’ve studied several different versions of siddurim. I’ve spent two full cycles through the Jewish year of observances. I’ve observed kashrut and shabbat. I would have actually converted to Judaism (again, I came very close to doing so) if not for three things: (1) as a POC and immigrant, I experienced a lot of racist microaggressions from the Jewish community in Portland circa late 1990s; (2) I had gone through a personal and financial crisis and I could no longer afford being in the Jewish community, in which I was expected to pay large sums of money on synagogue dues, donations, and J membership; and (3) it was still difficult to be an out queer person, even in the progressive/Reform/Reconstructionist Jewish communities at the time.
I’m not going to bore you with rest of the story, which includes one full year as a member of a UU church, a few years of active membership in a liberal Protestant church, several years of being an Anglican and a Benedictine oblate, experimentation with Neo-Paganism, spending several months in a Wiccan commune, and a few years of being not religious at all.
Only five years ago, after having a serious burnout from seven years of political activism and community organizing and after over three years of not being part of any faith community, I found myself in a Unity church, whose New Thought approach to faith appealed to me because of its emphasis on disciplining one’s thoughts and beliefs instead of some vague appeal to emotional experiences.
To make the story short, as an autistic person, I have always tended to approach religion from reason and structures – doctrines and rituals/observances. I could always learn and grasp the concepts around theology and liturgies.
But it has not been an emotional, ecstatic, or even mystical experience for me. Whenever I sought such an experience, I always came away disappointed.
Nevertheless, this is a valid religious experience – no less valid than all the emotionalism of NTs in churches, synagogues, temples, or covens.
Of course, your mileage may vary and your experiences might not be like mine, but a handful of autistic individuals of religious faiths that I have known so far seem to share similar experiences. I’d love to hear your thoughts and experiences on this!
equity and universal design principles, they aren’t just buzzwords.
So this is one of my political-adjacent writing.
I’ve been part of various activist organizing spaces for many years. I’ve had opportunities to speak directly to politicians, testify before the state legislature, and attend many public meetings. During the course of this, most of the people -- elected officials, career policy-making bureaucrats, political candidates, and even most activists -- were middle-class, college-educated, mostly white people who are not disabled, have a family, many of them with obvious signs of economic and social privileges such as homeownership.
Whenever they talk of policy issues, they are often blind to the needs of those who are less privileged than they are. They do not think of people with disabilities. They do not think of the lived experiences of immigrants, people experiencing houselessness, disabled folks, chronically unemployed/unemployable people, and so on. Even when they did, they have a fantasy view of what society is like to those people. For example, many middle-class people think every unhoused person can just go to a “shelter” and thus they should, never mind the reality is not anything like that. When they see a panhandler, they say “get a job” or “go to the welfare office,” never knowing how difficult those things are.
Public policy that is made without the input of the most marginalized, the most vulnerable, and the “weakest” in society is not something that works for everyone.
For some decades, “universal design principles” (UD) have been part of architecture and and more recently UX/UI designs. The idea behind UD is that what is good for the most vulnerable/marginalized in society tends to be good for everyone else. For example, the 1990 Americans with Disabilities Act (ADA) mandated public facilities to be accessible to wheelchair users. As a result, more elevators have been installed and steep staircases were eliminated -- which have benefitted more than just wheelchair users.
Likewise, social and public policies must be made from the perspective of equity. Otherwise many people (the kind of people politicians do not usually think about) will fall through the crack. When that happens, society often tends to blame those who fall through the crack instead, because policymakers usually lack imagination to think beyond their upper middle-class bubbles.
my frustration.
One of the things I am often frustrated with is that I seem to come across as a creeper to most neurotypical people. As though they think I’m some kind of sex offender or terrorist or both. I’m not a monster.
It is bad enough I am a queer and POC. I know people for the most part are barely tolerating me if they aren’t ignoring me or running away from me. Even those who tolerate me, honestly, aren’t really taking me seriously. They don’t think I can tell, but I can with ease.
my journey out of ‘sisterhood,’ three years on.
Almost two years ago, I wrote a rather lengthy critique of women’s movement and spaces, the female lifestyle empowerment brands, and feminism in general, closing it with this sentence: “No thanks. Count me out of your so-called sisterhood. I’m not interested in your culturally-appropriated ‘goddess’ circles and self-exalting ‘rituals.’ I’m not one of you.”
The gist of it, the tl;dr version is this:
People are divided more by race and class than being united by the biological accident of sex.
Much of what passes for feminism promotes a fantasy of a “global sisterhood” which sugarcoats the insidious problems that keep the affluent white women in the Global North in their positions of privilege while maintaining the oppressive system that dehumanizes and marginalizes the others.
The female lifestyle empowerment subculture, a multi-billion-dollar industry consisting of self-appointed coaches, spiritual teachers, practitioners, influencers, and businesses, capitalizes on cultural appropriation, ableism, classism, and reinforcement of a heteronormative and sexist gender stereotyping, while their fantasy of “the sisterhood” absolves all females of responsibilities and criticism.
Then I concluded, “About a year ago [2018], I made a conscious decision to remove myself from all women-only groups and organizations that I was part of. This was a difficult decision that I did not make lightly, and to a degree, a painful choice because I was part of them for the majority of my adult life. I made quite a few friends through such groups, and at times, they were the only social outlet that I had. But I could no longer keep participating in women-only spaces with a good conscience.”
I wrote this, at the time, in a more or less political language heavy on theories and critique of praxis. I did not, however, discuss what has been going on in my own life personally as it was not my intention or focus at the time.
During much of the previous decade [2010s], I was involved with several women-only organizing spaces -- many of them political, several of them religious. I used to think of myself as a feminist and I uncritically subscribed to the notion of “sisterhood” and all the emotional stuff that came with it. The more I spent time with them the more I found myself increasingly frustrated and ultimately had an awakening: I could not at all relate to women, or their experiences, or their emotions -- what the fuck was I doing.
Partially out of disillusionment, and partly out of disgust and anger, I decided about three years ago that I am nonbinary and therefore free from all that shit.
What I did not understand back then, however, was how neurodivergence informs and shapes who I am far more profoundly than I knew at the time.
Three years ago, I was falsely led to believe in the now largely debunked hypothesis by British neurologist Simon Baron Cohen (a relative of Sacha Baron Cohen, by the way) that autism is a product of an “extreme male brain.”
Maybe that’s why I could not relate to women, I concluded then, and basically gave up on feminism and myself alike.
But that didn’t exactly mean I could understand or relate to men, either. If I were, probably I could’ve felt right at home in the company of “extreme males” (imagine Proud Boys and the likes).
Since then, my understanding of neurodiversity has deepened, thanks to the increased interaction with other autistic people of all genders and sexualities.
I’ve learned that autistic folks generally communicate well with one another and can relate to one another, in the same way how neurotypical folks do among themselves (the phenomenon known as “double empathy”). As I look back, some of the most enjoyable and memorable moments were when I spent time with another autistic individual (even though at the time I was in deep denial about it).
Another thing I have learned since then was there is a huge proportion of the autistic community that exist outside the gender binary (in addition to the disproportionately high percentage of the autistic community that is also LGBTQ+ in comparison with the neurotypical population). Because the lived neurodivergent experiences generally do not align well with the conventional social construct of binary gender and heteronormative ideas of sexuality, there is even a word for it: gendervague, likely coined by activist and lawyer Lydia X. Z. Brown.
Not knowing these, I had beaten myself up rather severely for a couple of years because I felt like such a freak and failed human being. I was nonbinary not because I was proud of it but rather as a consolation prize of a sort. I was having a combination of self-loathing, identity crisis, enormous dysphoria, shame, and regret. Combined with the massive autistic burnout that I was experiencing for unrelated reasons (and exacerbated by four years of President Trump Stress Disorder!), I became depressed, anxious, and withdrawn in a way I hadn’t been in many years.
This also made me aware of how -- between all the misinformation and outright hate speech about neurodivergence, and my excessive exposure to peddlers of the self-improvement industry -- internalized ableism is extremely harmful, just as internalized racism and homophobia are.
covid blessings and curses.
When COVID arrived on the shores of North America (or when it was perceived as such) in March of 2020, roughly nine months ago, lots of things have gone virtual. Events and conventions were cancelled. Business meetings and church services too. They all seemed to have migrated to Zoom, YouTube, or Facebook Live.
This has been a mixed blessing for me.
On one hand, it has given me an opportunity to attend many events that I would otherwise be unable to because of distance or travel costs (such as the annual ASAN Gala!). It has been great, also, to see so many museums and cultural institutions offering concerts, art walks, museum tours, and public talks in this format. I have been able to sample a wide variety of such experiences right from home, and that is such a wonderful thing.
On the other hand, everything being online also has led me to a lot of frustration. A decade ago, I was a community organizer advocating for the rights of unhoused people. One of the common challenges for many of those who experience houselessness is that they encounter the police often and they were unduly targeted for “livability crimes” enforcement. Many of them end up in jails because they could not keep up with court dates. Likewise many of them would miss their appointments with social workers, healthcare practitioners, and potential employers. At the time, I thought it shouldn’t be that hard to keep track of such appointments. Now I find myself amidst the monotony of COVID life very difficult to keep up with all the online events and meetings. This is really frustrating. I hated so-called webinars long before any of this started, and I do even more so now, especially when most such webinars and online events need not to be synchronous as they are not that participatory.
I hate gossipy people.
Sometimes I come across individuals who proudly proclaim, “I’m an open book!” as if that’s a good thing.
I have learned never to trust such people. If they are gossiping and badmouthing others, behind their back, in front of you (I don’t care if they think they’re “just sharing” or even “venting” it doesn’t matter), then you can pretty much be sure they are badmouthing about you someplace else, behind your back.
Too often, their mouths move faster than their brains. So it becomes a very common occurrence that they are actually saying things that they don’t really mean seriously – hence it would appear as though they are saying one thing one day and a completely opposite thing the next day. Sure, I understand some people have to vocalize their thinking, even I do this often, but I don’t do that when other people are around! It confuses people and it will reflect very badly on you if you’re being perceived as liars or flakes.
Another thing is that the World War II-era slogan, “Loose Lips Sink The Ships,” is often true. Secrets leak and confidentiality is broken even unintentionally, causing some serious harms to others, while also creating both legal and ethical issues. If you see someone in a position of trust and mandated confidentiality – such as counselors, “life coaches,” attorneys, members of clergy, healthcare professionals, financial service professionals – acting like they’re “an open book,” run away from them as fast as you can. If they cannot control their mouths that’s a bad news if you are their client. You need a bank vault, not an open book.
(a repost from one of my old blogs.)
a lot of things going on inside me this year.
It’s been often said, almost like a cliche these days, that autistic folks have “a special interest,” as though that’s the defining characteristic of what it means to be autistic. There is this stereotype (though not entirely false) depicted in the popular media of an autistic who knows just about every trivial piece of knowledge about something even as they cannot “function” (I’ll discuss the problems of the “functioning” label on another day, not now since it’s not the topic today) in just about every other way.
What if, then, I lose interest in just about everything -- including those “special interests”? Also, sometimes those “special interests” change over time as one grows older, too.
As I look back this couple of years, I see how I have constantly lost my interests in something that I enjoyed, and something I was rather “good at.” And I had not found something else to replace those. I used to be a rather prolific writer in the blogosphere since there was a blog. I was an experienced artist who had more than a decade of experiences in gallery exhibits. I was a dedicated activist and community organizer for many years. All these things disappeared from my life for the last 18 months or so. Honestly, I no longer feel like I’m alive; more like merely existing on the neutral. I frankly do not know how to get myself back on track and to regain the kind of zest for life that I used to have even when I had a very tough life.
Lately I am increasingly becoming more aware of how autism informs and shapes my life far more than anything else -- something I used to be mostly unconscious of, and also something I was in deep denial about until maybe five or six years ago -- more than race, ethnicity, sexuality, religion, or political ideology. When I became first aware of it at age 18, there was no resource available to me: I was seeing the mental health for another reason (although, in retrospect, autism would’ve been the central reason why I got myself into that trouble -- I will not discuss this here -- in the first place) and the health insurance had a hard $2,000 cap per annum on mental health services. Soon I graduated from high school and I moved on with life. College felt like a better place, and so was living on my own in a studio apartment.
The more I learned the more I feel like I have been duped all along. Most of my adult life I tried hard to pretend like I was a normal human being. I had, very few if any, friends -- and I feel like they are just barely tolerating me (and likely talking shit about me behind my back). I’ve given up on dating, since past attempts largely went nowhere (and when they did, inevitably ended up in a tragedy), let alone any serious relationship or marriage. Things did not go very well. I could not relate to people. I never understood them. I could not understand why they always wanted to “feel connection” or why that was actually desirable. I blamed myself for being a unlikable, sociopathic freak and a failure, having been conditioned by the ableist predominant culture.
The worst part of it, unfortunately, was that I had internalized all the negative things about autism and as a result have given up on myself. I ended up believing in debunked theories such as I was utterly incapable of empathy (a scary, dangerous monster!) or that I cannot treat fellow human beings like humans with feelings and thoughts (now this one, actually it’s partially true for me: subconsciously I look at other people as though they are mere objects -- and it requires an intellectual and conscious process for me to overcome that).
But apparently it wasn’t that I was a failure or a defect; rather, I was different from neurotypicals. And there is nothing intrinsically wrong about being different. Recent scientific researches have discovered what is now called the “double empathy” problem: in a nutshell, “there is a form of social intelligence that is specific to autistic people.” In other words, autistic people have little problem communicating with or relating to other autistic people, in the same way neurotypical folks have little problem doing so with other neurotypical folks. It is as if they are two distinct cultures or languages. Indeed, it is estimated that 1 to 2 percent of world population is autistic (this estimate appears to come from a CDC figure that 1 out of 54 children at age 8 were diagnosed autistic -- which means potential underestimate, especially among girls); nevertheless, if 1.5 percent (a conservative estimate) of the U.S. residents are autistic they would make up a sizable minority group at par with Native Americans (1.6%) or ethnic Chinese (1.5%).
Anyways, the latest burnout hit me harder than previous burnouts. And I blamed myself for it. And now I feel like I have been duped. Burnout did not happen without years of me trying too hard to fit in, look normal, impress others, market myself, act like a “responsible normal adult,” and generally overstretching myself to the point of breakdown. This isn’t much better than forcing LGBTQ+ people to look and act “straight,” get married and make babies and pretend like they have a “normal, respectable family life.” (They are very similar!) And why would I be doing all this even though it took a massive toll on my sanity and health, if not for pleasing others, and make others feel “safe and comfortable”?