Tiktok keeps killing my views and I really need help
Please help me save my vision and hearing guys 🙏💕 gofund.me/ad3e9740c https://paypal.me/isabellesofia26
I'm so sorry for spamming # guys but I really need help

if i look back, i am lost

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@yeonyeoncloud
Tiktok keeps killing my views and I really need help
Please help me save my vision and hearing guys 🙏💕 gofund.me/ad3e9740c https://paypal.me/isabellesofia26
I'm so sorry for spamming # guys but I really need help
Please help me save my vision and hearing guys 🙏💕 gofund.me/ad3e9740c https://paypal.me/isabellesofia26
I'm so sorry for spamming # guys but I really need help
Please help me save my vision and hearing guys 🙏💕 gofund.me/ad3e9740c https://paypal.me/isabellesofia26
and before anyone says anything no I'm not judging a WHOLE gender, so far two men have helped me and Im so incredibly thankful for these two angels, but more than 15 have also messaged me asking for certain pictures in exchange of help.
I'm so sorry for spamming # guys but I really need help
I really need help
hi guys I need surgery to aboid losing my eyesight and hearing, it'd make my days if you could share my fundraiser https://gofund.me/f8ad7ed93
Help me keep my vision and eyesight
Imagine being told you could lose your hearing & eyesight because of a disease you were born with. That’s my reality. I need surgery, and if 7,000 people donated 5€, I could finally afford it.
Last June, I was diagnosed with a rare genetic disorder calle… Isabelle Sofia needs your support for craniofacial polyostotic fibrous dyspla
Help me keep my vision and hearing, if only 7k people donated 5€ I could reach my goal https://gofund.me/2abd1a0da
WE GOT TWO DONATIONSSS AAAAAAAAAA
Thank you so muchhhh
Please share my story <33
Last June, I was diagnosed with a rare genetic disorder calle… Isabelle Sofia needs your support for craniofacial polyostotic fibrous dyspla
Last June, I was diagnosed with a rare genetic disorder calle… Isabelle Sofia needs your support for craniofacial polyostotic fibrous dyspla
Last June, I was diagnosed with dysplasia. At first, it just felt like headaches, and I genuinely thought it was nothing serious. I never imagined that a year later I’d be here writing this. As time passed, the dysplasia kept growing and the pain became impossible to ignore. I started having horrible headaches and intense pain behind my left eye, spending nights awake crying because no pain medication would help anymore. One of the hardest parts is knowing that because of where the dysplasia is located, there’s an increased risk of losing my hearing and vision on my left side. Being only 20 years old and hearing things like that is terrifying. Around the same time I was diagnosed with hypothyroidism, we don't know if it was because of the dysplasia or some other reason. In just a few months, I gained over 30kg, and it completely changed my body and my mental health. I’ve always been an active person. I love running, going on walks, moving around, being outside… it was such a huge part of who I was. Suddenly, the smallest movement would leave me sweating, exhausted, and bright red. My body stopped feeling like mine. Going from 55kg to 90kg so quickly was something I wasn’t emotionally prepared for at all. I stopped going out, slowly pushed my friends away, and spent most of my time locked in my room because I didn’t recognize myself anymore and as you can tell I don't even look my age anymore. I felt embarrassed, uncomfortable and exhausted. It got so overwhelming that I had to start therapy to help me cope with everything mentally, while also dealing with the constant medical expenses and thyroid treatment. We also found cysts in my thyroid, and now we’re waiting to see if they disappear or continue evolving to make sure they aren’t cancerous. My grandmother had thyroid cancer and had to remove her thyroid, so this has been another huge fear hanging over me. I try not to think about it too much, but it’s scary waiting and not knowing. Even with all of this happening, I still try to hold onto little pieces of myself. I do very low intensity exercises whenever I can because I genuinely can’t imagine my life without movement and being active and ome days are harder than others, but I’m trying. The reason I finally turned to private healthcare is because the public system simply hasn’t helped me in time. My neurology appointment through the public healthcare system was requested on August 14th of 2025, and to this day the status still says “waiting scheduling.” Months kept passing while my symptoms got worse, and I realized I couldn’t keep waiting. The surgery I need as well as the recovery is extremely expensive because of the location of the dysplasia and the fact that there are multiple areas affected. And honestly… I’m scared. I know I’m young, but lately it feels like my life has revolved around hospitals, tests, medications, pain, and uncertainty. I didn’t imagine starting adulthood carrying something this heavy. If you’re able to donate, thank you from the bottom of my heart. Truly, every single contribution helps more than I can explain. But support doesn’t only come financially, sharing this page, talking about it, or simply keeping me in your thoughts means just as much to me.
Pics:
1- User
2- Dysplasia results translated
3- Dysplasia results
4- Thyroid results translated
5- Thyroid results
6- Scan of the cysts
7- Me with 55kg
8- Me some months later with 80kg
9- Me now before I got embarrassed and angled the phone higher so I look better
I was really scared to post here because I've never done something like this, much less expose myself in a vulnerable way so thank you for reading my story and for making me feel a little less alone through all of this. ୨ৎ If you're going through something similar and would like to make some questions, I'm no doctor but I can definitely tell you what I know and how I'm dealing with everything to make it easier to accept <33
Link: https://gofund.me/f40adf738
Thank you doodles
Last June, I was diagnosed with a rare genetic disorder calle… Isabelle Sofia needs your support for craniofacial polyostotic fibrous dyspla
Last June, I was diagnosed with a rare genetic disorder called craniofacial polyostotic fibrous dysplasia (I was born with it but never needed a CT until then). At first, the only symptom I had were headaches, and I genuinely thought it was nothing serious. But as time passed, the dysplasia kept growing and the pain became unbearable. I started having constant headaches, intense pain behind my left eye as well as my vision going blurry on my left eye, and sleepless nights where pain medication stopped helping. Because of where the dysplasia is located, the longer it goes untreated the more probable is me going blind and deaf on my left side.
The dysplasia also affected my thyroid and caused hypothyroidism. In just a few months, I went from 55kg to 90kg, which completely changed both my body and mental health. I’ve always been a very active person, I love running, going on walks, and exercising, but suddenly even the smallest movement would leave me exhausted, sweating, and uncomfortable and my body stopped feeling like my own.
The rapid changes affected me emotionally more than I can explain. I slowly stopped going out, isolated myself in my room, pushed people away, and eventually had to start therapy to help me cope with everything mentally. Even now, I still try to do very low-intensity exercise whenever I can because being active has always been such an important part of who I am.
Doctors have also found cysts in my thyroid, and we’re currently waiting to see if they disappear or continue evolving to make sure they aren’t cancerous. Since my grandmother previously had thyroid cancer and had to remove her thyroid, this has been another huge fear for me.
I tried relying on the public healthcare system, but my neurology appointment requested on August 14th 2025 still says “waiting scheduling” to this day while my condition keeps getting worse. Because of this, I had no choice but to turn to private healthcare in order to finally move forward with surgery. Due to the location of the dysplasia and the fact that there are multiple affected areas, the surgery and treatment costs are extremely high.
I’m only 20 years old and a student, and lately my life has revolved around hospitals, medications, pain, and uncertainty instead of enjoying the years that are supposed to be the beginning of my adulthood.
Any donation, no matter how small, would truly help me more than I can explain. And if you’re unable to donate, sharing my fundraiser would already mean the world to me.
I'm also doing a little thank you sheet to remember all the people who stuck by me, so if you'd like feel free to send a picture of your animal for me to draw <333
And if you or anyone you know is going through something similar I'm more than open to talk about it, I'm not a doctor and there are things I dont really understand but I can do my best to help and give a piece of advice.
Love <3
Thank you doodles
Last June, I was diagnosed with a rare genetic disorder calle… Isabelle Sofia needs your support for craniofacial polyostotic fibrous dyspla
Last June, I was diagnosed with a rare genetic disorder called craniofacial polyostotic fibrous dysplasia (I was born with it but never needed a CT until then). At first, the only symptom I had were headaches, and I genuinely thought it was nothing serious. But as time passed, the dysplasia kept growing and the pain became unbearable. I started having constant headaches, intense pain behind my left eye as well as my vision going blurry on my left eye, and sleepless nights where pain medication stopped helping. Because of where the dysplasia is located, the longer it goes untreated the more probable is me going blind and deaf on my left side.
The dysplasia also affected my thyroid and caused hypothyroidism. In just a few months, I went from 55kg to 90kg, which completely changed both my body and mental health. I’ve always been a very active person, I love running, going on walks, and exercising, but suddenly even the smallest movement would leave me exhausted, sweating, and uncomfortable and my body stopped feeling like my own.
The rapid changes affected me emotionally more than I can explain. I slowly stopped going out, isolated myself in my room, pushed people away, and eventually had to start therapy to help me cope with everything mentally. Even now, I still try to do very low-intensity exercise whenever I can because being active has always been such an important part of who I am.
Doctors have also found cysts in my thyroid, and we’re currently waiting to see if they disappear or continue evolving to make sure they aren’t cancerous. Since my grandmother previously had thyroid cancer and had to remove her thyroid, this has been another huge fear for me.
I tried relying on the public healthcare system, but my neurology appointment requested on August 14th 2025 still says “waiting scheduling” to this day while my condition keeps getting worse. Because of this, I had no choice but to turn to private healthcare in order to finally move forward with surgery. Due to the location of the dysplasia and the fact that there are multiple affected areas, the surgery and treatment costs are extremely high.
I’m only 20 years old and a student, and lately my life has revolved around hospitals, medications, pain, and uncertainty instead of enjoying the years that are supposed to be the beginning of my adulthood.
Any donation, no matter how small, would truly help me more than I can explain. And if you’re unable to donate, sharing my fundraiser would already mean the world to me.
I'm also doing a little thank you sheet to remember all the people who stuck by me, so if you'd like feel free to send a picture of your animal for me to draw <333
And if you or anyone you know is going through something similar I'm more than open to talk about it, I'm not a doctor and there are things I dont really understand but I can do my best to help and give a piece of advice.
Love <3
Last June, I was diagnosed with dysplasia. At first, it just felt like headaches, and I genuinely thought it was nothing serious. I never imagined that a year later I’d be here writing this. As time passed, the dysplasia kept growing and the pain became impossible to ignore. I started having horrible headaches and intense pain behind my left eye, spending nights awake crying because no pain medication would help anymore. One of the hardest parts is knowing that because of where the dysplasia is located, there’s an increased risk of losing my hearing and vision on my left side. Being only 20 years old and hearing things like that is terrifying. Around the same time I was diagnosed with hypothyroidism, we don't know if it was because of the dysplasia or some other reason. In just a few months, I gained over 30kg, and it completely changed my body and my mental health. I’ve always been an active person. I love running, going on walks, moving around, being outside… it was such a huge part of who I was. Suddenly, the smallest movement would leave me sweating, exhausted, and bright red. My body stopped feeling like mine. Going from 55kg to 90kg so quickly was something I wasn’t emotionally prepared for at all. I stopped going out, slowly pushed my friends away, and spent most of my time locked in my room because I didn’t recognize myself anymore and as you can tell I don't even look my age anymore. I felt embarrassed, uncomfortable and exhausted. It got so overwhelming that I had to start therapy to help me cope with everything mentally, while also dealing with the constant medical expenses and thyroid treatment. We also found cysts in my thyroid, and now we’re waiting to see if they disappear or continue evolving to make sure they aren’t cancerous. My grandmother had thyroid cancer and had to remove her thyroid, so this has been another huge fear hanging over me. I try not to think about it too much, but it’s scary waiting and not knowing. Even with all of this happening, I still try to hold onto little pieces of myself. I do very low intensity exercises whenever I can because I genuinely can’t imagine my life without movement and being active and ome days are harder than others, but I’m trying. The reason I finally turned to private healthcare is because the public system simply hasn’t helped me in time. My neurology appointment through the public healthcare system was requested on August 14th of 2025, and to this day the status still says “waiting scheduling.” Months kept passing while my symptoms got worse, and I realized I couldn’t keep waiting. The surgery I need as well as the recovery is extremely expensive because of the location of the dysplasia and the fact that there are multiple areas affected. And honestly… I’m scared. I know I’m young, but lately it feels like my life has revolved around hospitals, tests, medications, pain, and uncertainty. I didn’t imagine starting adulthood carrying something this heavy. If you’re able to donate, thank you from the bottom of my heart. Truly, every single contribution helps more than I can explain. But support doesn’t only come financially, sharing this page, talking about it, or simply keeping me in your thoughts means just as much to me.
Pics:
1- User
2- Dysplasia results translated
3- Dysplasia results
4- Thyroid results translated
5- Thyroid results
6- Scan of the cysts
7- Me with 55kg
8- Me some months later with 80kg
9- Me now before I got embarrassed and angled the phone higher so I look better
I was really scared to post here because I've never done something like this, much less expose myself in a vulnerable way so thank you for reading my story and for making me feel a little less alone through all of this. ୨ৎ If you're going through something similar and would like to make some questions, I'm no doctor but I can definitely tell you what I know and how I'm dealing with everything to make it easier to accept <33
Link: https://gofund.me/f40adf738