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@adamslilith
🧡😍 😍🧡
Me and my MS art project A Thousand Faces was featured in my local newspaper and I'm still speechless
check out my latest YT video for more infos on this :)
ARTIST with and despite Multiple Sclerosis.
Watch my latest YT video to find out how I manage to keep pursuing my dreams even though I've wanted to quit many times.
Happy MS Awareness Month! 🧡
let's end misconceptions about MS 🧡🎨
Longer version with more infos ⬇️
Let's talk about paresthesia...
that's the medical term for abnormal sensations of the skin, that is pretty common when you got MS for example..
Now, what I've experienced is ... kind of specific and maybe a little weird, watch the video to find out more and please let me know if you've ever experienced something similar 🤔
As part of my art project A Thousand Faces I painted another invisible Multiple Sclerosis symptom, and it actually was the first symptom of my 2nd flare up; pins and needles. This is Beatrice, my personification of this abnormal sensation of the skin:
Created to raise awareness and spread knowledge of the chronic and invisible illness Multiple Sclerosis.
Watch the video to learn more about this :)
And please click some buttons to support me on my mission to show the world what MS really feels like!! 🧡 🥰
my disability: disables me
me: :0
Pretty much 6 months ago I had my first clinic flare up and got diagnosed with MS.
And here I am now.. again with a flare up. Again my immune system is destroying my central nervous system. This is way too early. This is not good at all.
So once again I can post "Gloria" who is my visualisation of Multiple Sclerosis.. from my art project A Thousand Faces created to raise awareness of this invisible illness by visualising every aspect of it.
I talk about this on YT... go check it out
I'm not "letting my disability win".
Bitch has already won long ago. There was never even a contest.
Some old lady at the supermarket after I explain that my disability is chronic and cannot be cured: hope you feel better!
Me: thanks, I won't
oooh and my collegues: "But you good now, right?"
NoOOoOo
In July of 2022 I was diagnosed with Multiple Sclerosis and on New Year's eve the same year I ALREADY had my second flare up. On YT I talk about this, the symptoms, the denial.. the treatment, and what this might mean for my future.. here's a sneak peek..
And here's the full video ⬇️
Pretty much 6 months ago I had my first clinic flare up and got diagnosed with MS.
And here I am now.. again with a flare up. Again my immune system is destroying my central nervous system. This is way too early. This is not good at all.
So once again I can post "Gloria" who is my visualisation of Multiple Sclerosis.. from my art project A Thousand Faces created to raise awareness of this invisible illness by visualising every aspect of it.
I talk about this on YT... go check it out