[bethelightbethechange]

You don’t sieze the day with chronic illness

You ease into it

[bethelightbethechange]

GRACE DAYS

Giving myself these days to fall apart

To sit

To listen

To bare witness to my pain and grief

Allowing my shadows to rise and fall

In a space of grace and honour

[bethelightbethechange]

Stress

What I now realise know about stress and anxiety, is that rather than a dysfunctional thought pattern, weakness or worry - it can get be an overstimulated state of being. Unconscious. Subconscious. Bucket almost overflowing with accumulated things. Viral load. Inflammation. Trauma. Stress can be excitement- good or bad It isn't always the stereotype worrier, neurotic, over thinker It's just an undercurrent of overwhelm that can manifest in even the most calm person

[bethelightbethechange]

Imagine being so unwell, unable to function and doctors calling your illness, your trauma a WASTE BASKET ILLNESS and essentially refusing to provide adequate, open minded or informed care That is so incredibly invalidating and can impact your patients mental health For all those who's doctors have used those terms- Im sorry You deserve better Sending you strength and light x

[bethelightbethechange]

Start by doing better Then you can get good

[bethelightbethechange]

The enemy isn't stillness It's the mind telling you to go faster

[pureholistic]

Chronic life

It’s a small life It’s as beautiful as I allow it to be and as tragic as I let it be Im not cured but I choose to live I choose to heal and be at peace with who I am and what I can do without ever letting go of hope- even if that hurts me

[pureholistic]

Chronic pain

Chronic Illness can be Really invalidating for a long time and all you are searching for Is help and empathy Being constantly dismissed, unheard and overwhelmed impacts you and it’s only when you start to feel safe again that you start to process the trauma It may come up as uncertainty, negative beliefs, scripts, hurt- but it’s there to be looked at and loved and healed. Take your time Soften into the process You are whole You are loved

[bethelightbethechange]

On the plus side My social fatigue has disappeared now that I'm isolating and distancing I now have extra energy 💃💃

[bethelightbethechange]

It's just a belief and a belief can be changed

[bethelightbethechange]

Spoonie tip

When you are feeling low or can't decide on something- force yourself to smile or laugh The brain can't be in two states at once so it immediately responds by assuming it's happy. Even if you change state from stress, anxiety, depression, overwhelm for a second, that's enough to create a break in the neural pathway so that you can choose something else. Small steps over time can help reduce your load Choose to be aware and go from there Most of all be kind to yourself while you are healing x

[bethelightbethechange]

I didn't know feeling like that wasn't normal, I just though I was broken, like I wasn't enough I thought maybe if I just studied more, put myself out there, tried harder to fit in, that things would change. I didn't know that the fatigue wasn't normal The pain wasn't normal The dizziness and blackouts were not normal Until I did. And then I was dismissed so much that I really felt abnormal.

[bethelightbethechange]

There were so many signs that my health was declining Yet instead of realising that something serious was happening, I blamed myself for not trying hard enough for Not being good enough

[bethelightbethechange]

Idk about you but I am saturated in self doubt and insecurity at the moment

✨🌕🌝🌚

[bethelightbethechange]

Chronic dilemma

Do you do things physically struggling, miserable with post exertional malaise and push through or do you wait until you feel better so that you can really appreciate what you are doing/seeing?? But what if this is as good as it gets?

[bethelightbethechange]

Would you rather?

A long life of being house and bedbound with chronic illness Or A shorter life filled with no pain and ease?

[bethelightbethechange]

Life is Beautiful And Terrible And Wonderful And Horrible And All I know is thats just Hows it's always been And I think that's just how it's meant to be