Trying to get diagnosed for two years is weird because it finally happened and they gave me 10 FUCKING THINGS??? AT ONCE??? 10.5, my CFS has a Long Covid overlap
Weâre still doing more testing grahhhhhhh

blake kathryn
"I'm Dorothy Gale from Kansas"
taylor price
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Today's Document
wallacepolsom
let's talk about Bridgerton tea, my ask is open

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I'd rather be in outer space đ¸

ellievsbear
untitled
KIROKAZE

tannertan36
will byers stan first human second
Claire Keane
cherry valley forever
YOU ARE THE REASON

shark vs the universe
Fai_Ryy
Cosmic Funnies

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@canineoccultist
Trying to get diagnosed for two years is weird because it finally happened and they gave me 10 FUCKING THINGS??? AT ONCE??? 10.5, my CFS has a Long Covid overlap
Weâre still doing more testing grahhhhhhh
When you tell someone about being mistreated because of your disability, there is a common response that goes something along the lines of, "But did you explain to them properly why you can't do x thing?" "Did you make sure they understood why you need x accomodation?" "Maybe they just didn't understand?"
For example: "Did you properly explain that the reason you don't do hugs is because of your autism?" or "Maybe they don't really understand how bad fibro fatigue is and that's why they got upset at you for concelling plans."
I hate these kind of responses. They give me the same vibe as being asked, "Yeah, but what were you wearing when you got catcalled?" They put the responsability for the problem onto the person who was discriminated against, instead of the one doing the discriminating. Disabled people should not be expected to go through grueling explanations or justify their needs before those needs are respected.
After a year and a half of decline in health, dropping out of high school because of my medical issues, and reaching 95% bed bound status-
I HAVE FINALLY BEEN PUT ON THE WAITLIST FOR A CHRONIC ILLNESS CLINIC!!!!!!!!!
Bad news: suspected wait time is currently 1 year 8 months to 2 years
Being chronically ill as a teen is this weird limbo where Iâm not old enough for doctors to believe Iâm in pain, but Iâm too old for them to care or want to fix and treat the issue.
I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
How to have a great, disabled life.
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
they say you can't pour from an empty cup but i've been doing it my whole life and aside from all of these mysterious ailments it's working out great for me
Too much movement makes your joints hurt and too little movement also makes your joints hurt. This would imply that there's an optimal amount of movement that allows your joints to not hurt. This is a lie.
âsurvive out of spiteâ sounds cool and all but I miss feeling like I was a human being worthy of love
Guy with undiagnosed chronic illness: Dude Iâm tired all the time- like Iâm chronically fatigued
Doctor diagnosing Myalgic Encephalomyelitis: Youâre never going to believe this
Guy with undiagnosed chronic illness: damn I feel like shit and donât know why
Doctor diagnosing fibromyalgia: yooo dude you got the âyou feel like shit and no one knows whyâ disorder
when i was a kid my parents bought me an inflatable doll of the Scream by Edvard Munch (??) that was significantly taller than i was at the time and i used to slow-dance with it and pretend it was my boyfriend. It had its hands attached to its head obviously so it felt like he was always a bit horrified to be forced to dance with me
i didn't need no imaginary friends i had Screaming Joe right here !
I love this website I love it when people tell us what's wrong with them
PHRASES ADDED!
"i didn't need no imaginary friends i had Screaming Joe right here !"
"I love this website I love it when people tell us what's wrong with them"
CHARACTER ADDED!
Screaming Joe
Hey dude? Why donât you tie me to the tracks with the fucking vines while youâre at this. You can NOT be saying this to me, I just woke up
If you're not listening to sea shanties when you're doing boring but necessary tasks, I can only strongly recommend that you try. Firstly, they're literally designed to keep you focused on your work and easy to sing along with to stay alert, and secondly, sometimes it is a damn tough life full of toil and strife and you have to remember that you won't give a damn when you drink your rum with the girls of Old Maui, y'know?
Sometimes the voyage is long and sometimes the winds don't blow and it's time for you to leave your shitty boyfriend/workplace/roommate/pilates class
Whereâs the YA protagonist teen girl and her two boyfriends that are supposed to save us from this mess anyways
The dystopia books lied. The teen throuples arenât coming to save us.
Save me teen dystopia love triangle
Teen dystopia love triangle save me
Stoned af and made the best tweet of my life.
every person you meet will have one bit that only they find funny. it is important that you hate that bit as much as possible in order to enrich their experience of doing the bit. it is part of the enjoyment of the bit